Jump to content

cyclinglady

Advanced Members
 View Profile  See their activity

  • Posts

    9,348

  • Joined

  • Last visited

  • Days Won

    396

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I use Jenna Hipp hand cream that I purchase at Costco. It is in a tube and clearly marked gluten free. It is are great to keep in your purse. I use Cerave at home.
  2. cyclinglady
    Yes!
  3. cyclinglady
    Everyone is right about parchment paper, I always use it when baking! gluten-free dough tends to stick.
  4. cyclinglady
    Hang in there, Mom! It is great that you are such a good advocate for your son and other children!
  5. cyclinglady
    Post your tests results if you can. And.....welcome to the forum!
  6. cyclinglady
    I think you tested negative because you had been gluten free. To get proper results from a celiac blood panel, you have to consume gluten daily for 8 to 12 weeks. That is about 1 to 2 slices of bread or the equivalent daily. I am sorry hat your doctor did not tell you this. For most of us here, it can take 1 to 2 years of being strictly gluten free...
  7. cyclinglady
    Any medical doctor can order the celiac blood panel. Make sure the complete panel is ordered. They often just order a shorter version to save on costs. If I had not had the complete panel, I never would have received a diagnosis. Not sure how your insurance handles it though. They may want a GI to order it. Five days of being gluten free should not...
  8. cyclinglady
    Reports like this from a reputable site might build your case in requesting celiac testing. Open Original Shared Link Open Original Shared Link
  9. cyclinglady
    I think the diagnosis means that he MIGHT have issues with food intolerances (like dairy,etc.). He might have something wrong with his immune system, but that does not necessarily mean that he has an autoimmune disorder, like celiac disease. Research celiac disease. There is a link between celiac disease and epilepsy. Celiac disease has 300 possible...
  10. cyclinglady
    He did NOT get tested for celiac disease.
  11. cyclinglady
    Bring your own ice chest and a bin of cooking tools as if you were camping. Works for us. We mark the boxes and cooler and no one touches them. We do this at my parent's lake house when a huge crowd is there too.
  12. cyclinglady
    No, he has to be eating gluten for 8 to 12 weeks daily prior to the blood panel. I would insist on the full panel because of his low IGA. There is no test currently that determines a gluten sensitivity. His low IGA can give weird results on the blood test. An endoscopy with at least six biopsies can help to detemine intestinal damage. Any medical...
  13. cyclinglady
    I think I will stick to scientific-based tests. Here is some interesting information about Enterolab and why their testing is not considered valid by celiac disease industry experts: Open Original Shared Link https://www.celiac.com/gluten-free/blog/856/entry-1546-enterolab-a-scientists-viewpoint/
  14. cyclinglady
    The only way to know for sure is to get tested. There are about 300 symptoms for celiac disease (University of Cicago's Celiac website). Some never experience any at all. Some realize after their diagnosis, that minor symptoms that they ignored, were directly related to celiac disease. After a glutening, some folks take a few days for symptoms to appear...
  15. cyclinglady
    Ah, my bad! I did say I was not a doctor. I guess Iron is what is circulating in his blood. So, yeah, you still need to see the ferritin level. My iron tests were all good except for ferritin. So, I have two anemias -- now just the Thals since the iron-deficiency one resolved on a gluten-free diet!
  16. cyclinglady
    And...you have the weekend to wait! So sorry!
  17. cyclinglady
    But isn't that the Iron result? Ferritin is iron stores.
  18. cyclinglady
    Newborn blood counts and cell size are significantly higher that older children or adults. My daughter's (she is 14 now) were very high -- higher than an adults. That is probably why the Ped did not rule out Thals at that time. Here is some research: Open Original Shared Link
  19. cyclinglady
    My kid tested negative too when she was born. Her Ped at the hospital said she was normal but "could not rule out Thalassemmia at this time." I keep ALL lab tests and health docs!
  20. cyclinglady
    I. am not a doctor, but I can tell you that the lows in his blood cell size and hemoglobin could be a result of Thalssemia. I have it. Just means I have tiny red blood cells. Tiny enough to prevent cells filing up with oxygen and keeping me, like your son, just out of range for hemoglobin which makes me slightly anemic. Nothing bad, but it is the one reason...
  21. cyclinglady
    Gluten is not stored in fat cells.
  22. cyclinglady
    I apologize, Mona, if I sounded judgmental. I suppose I have finally gotten used to feeling pretty good. There have been times when I have been afraid to eat because of severe pain (e.g. non-functioning gallbladder). I hate to see a little one suffer so much that he avoids eatng for days. I am sure whatever you decide will be best for him.
  23. cyclinglady
    Lots of folks here have other intolerances due to intestinal damage. My only symptom was anemia. No tummy issues. I was shocked when my GI suggested it, but he was right. Others have no symptoms at all and got tested because they had a first-degree relative who had celiac disease. Check out the University of Chicago's celiac website for more information...
  24. cyclinglady
    I can not find it but found another when I goggled low ferritin and PPI/Nexium: Open Original Shared Link Looks like PPI affect bones too! This is not a good drug when you are recovering from celiac disease.
  25. cyclinglady
    Sourdough.....Bread. Enjoy!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.