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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Just try the dairy first. Like a week. Then see about other food intolerances if you do not notice a difference. But dairy is a problem for most celiacs. At least until healing is done.
  2. cyclinglady
    The ends of the villi are the first to go and that is where the enzymes to help digest lactose (milk sugars) are released and the place to absorb iron occurs. So, like Karen said, avoid milk products for the first six months. Then add back in yogurt or cheese as though products have been fermented resulting in less lactose. If you have not seen improvement...
  3. cyclinglady
    I bet your doctor failed to tell you that patience (besides avioiding gluten) is your best tool for healing? It took me six weeks before I felt a little bit better. Two months in to heal two vertabrae fractures. Six months to resolve my anemia. A year to resolve most food intolerances. YWO YEARS to finally feel better! That is about the average...
  4. cyclinglady
    Unfortunaltely, we are not doctors here. If you suspect celiac disease I would suggest a celiac blood panel: -tTG IgA and tTG IgG -DGP IgA and DGP IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests -endoscopic biopsy - make sure at least 6 samples are taken ...
  5. cyclinglady
    Were you checked for anemia? Anyway, the learning curve is steep for celiac disease. Most folks on this forum take up to two to three years to feel better. Be sure to read our Newbie 101 section under "Coping". It contains valuable information about cross contamination, etc. I hope you feel better soon.
  6. cyclinglady
    I am sorry that you are unwell. Keep eating gluten until all testing is complete! Did you have a celiac blood test panel? That is usually the first step before the endoscopy. Here is a list of tests: -tTG IgA and tTG IgG -DGP IgA and DGP IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely...
  7. cyclinglady
    Welcome to the forum, Cynthia! Unfortunately, this is a really old thread from 2009. I would hate to have you wait for a response. You can start a new topic, or feel free to respond a current post.
  8. cyclinglady
    I use cornstarch -- the choice for Southern Gals! The tip is to use less than what you would use with wheat flour (about half) since it is a pure starch. Mix it well in a bit of cold water to get a nice roux. Then add to the hot drippings. If you dump the cornstarch into the hot drippings you will get lumps. I usually roast in my cast iron pan...
  9. cyclinglady
    I have Hashi's and have successfully taken Armour Thyroid for almost 20 years. It is gluten free and it has been around for over 100 years and is manufactured in the Mid-West. Open Original Shared Link I think you will do fine. Just work with your doctor and get those lab tests every six weeks for adjustments until you are stable and not experiencing...
  10. cyclinglady
    Six to eight months on a gluten free diet is not very long. The learning curve is so steep! I understand that your antibodies have dropped dramatically, but I think that recovery still takes much longer. I felt better and my anemia resolved within six months, but my intestinal damage took about two years. I have not had a follow-up endoscopy yet, but...
  11. cyclinglady
    Raven said it well! Please keep feeding her gluten until all testing is complete! Otherwise, you will get negative results.
  12. cyclinglady
    Maybe include a full celiac panel since you "passed" the initial screening? Whatever you do, keep eating gluten until ALL testing is complete (until that endoscopy/biopsy). Take care!
  13. cyclinglady
    Well, the one celiac test looks negative, but that is a problem. First, babies are harder to test and second, just one celiac blood test was run. (The other test checked for an IGA deficiency which validates the TTG test result.) If my doc did not run the complete panel, my diagnosis would never have been caught. My TTG was negative like your daughter...
  14. cyclinglady
    I am sorry that you are not doing well. Hang in there! ((hugs))
  15. cyclinglady
    I use Cerave too, but their facial sunscreen contains OATS! Be careful! I am still fuming about that recent change! I use coconut oil too. I like smelling like a Mounds candy bar or the beach!
  16. cyclinglady
    We have used Find Me Gluten Free. However, we check the reviews for ones posted by those who actually have celiac disease. There are plenty of people who recommend these restaurants but eat gluten free only because they think it is healthy. Plenty of restaurants who think that by offering gluten-free pasta, they have a handle on keeping it gluten free...
  17. cyclinglady
    It is hard to say. We are not doctors here, just folks who are have issues with gluten. Is there a reason you chose not to get tested for celiac disease? What made you decide to go gluten free? If you chose to remain gluten free, you need to make sure everything you eat is gluten free and you must learn about cross contamination and hidden sources...
  18. cyclinglady
    I completely understand! I am glad she is showing no signs of illness!
  19. cyclinglady
    I would get a new GP and arm yourself with research! Here is a link regarding celiac disease dietary compliance testing: Open Original Shared Link There is more supportive data to Google too!
  20. cyclinglady
    it is negative based on what you posted but an IGA deficiency test was not included. Based on my own experience, if my doctor had not ordered the complete blood panel, I would not have received my diagnosis. My TTG was negative, like your daughter's, but only one of my DPGs was positive! My biopsy revealed a Marsh Stage IIIB. So, you can not really rule...
  21. cyclinglady
    I am sorry that this is so confusing for you, but I am glad you are still fighting for a correct diagnosis! I would put my faith and trust in this immunologist and not because she and her kids have celiac disease (that is a bonus). I think (I am not a doctor or a scientist) that she knows how being IGA deficient and how it impacts celiac blood tests...
  22. cyclinglady
    Gemini, I am glad that you can confirm that Starbucks can produce a gluten-free Chai! When I read your statement about doing a Celiac 101 class, I thought that might be a good idea. I checked out our Newbie 101 section and information about testing for dietary compliance is lacking. I certainly can not keep up with all the latest information in...
  23. cyclinglady
    Congratulations! How exciting! I was not diagnosed with celiac disease when I was pregnant (I am sure I had it though) but I did have Hashimotos thyroiditis then. I made sure that I was tested several times during my pregnancy because thyroid replacement needs can change. There can be a higher rate of miscarriage too but that risk is small but real...
  24. cyclinglady
    I can not offer advice about Starbucks. Comments on this forum from baristas about cc issues have steered me to plain old coffee. I will comment about a shared household. My husband went gluten-free per the poor advice of my allergist and his GP. We knew nothing about celiac disease and testing. He felt so much better, but he got glutened still...
  25. cyclinglady
    Did you get a complete panel? I tested negative on TTG which is really odd. If my doc had not ordered the complete panel, I never would have received a diagnosis. Anemia was my only symptom at the time. I am officially diagnosed, but my husband was not. He went gluten-free per the advice of two medical doctors 14 years ago and is thriving (we knew nothing...
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