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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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It's possible your husband has the celiac gene but doesn't have celiac disease himself. If he was tested via blood test or biopsy that could easily be the case.
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Sneak something in! If you have a doctor's note, you shouldn't even have to do any sneaking. I've never eaten at ballparks (even pre-dx) so I'm always a little confused when people want to eat there. The game's not that long, so you can easily make it through without starving and save some money. Maybe do a little tailgating pre-game so you're nice and...
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ARCHIVED Already Diagnosed? Take This Survey!
kbtoyssni replied to vivihneich's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Done. -
ARCHIVED What's Your Color?
kbtoyssni replied to jkmunchkin's topic in Introduce Yourself / Share Stuff
you are darkkhaki Dark Khaki is a color? Your dominant hues are red and green, so you're definately not afraid to get in and stir things up. You have no time for most people's concerns, you'd rather analyze with your head than be held back by some random "gut feeling". Your saturation level is lower than average - You don't stress out over things and... -
ARCHIVED Want To Quit Smoking
kbtoyssni replied to wowzer's topic in Introduce Yourself / Share Stuff
I had one friend who stopped smoking. A few months before, he stopped smoking in the house, which ultimately made it easier for him to quit. Once he quit, he was used to not having cigarettes as part of his indoor routine so the breaking-the-habit part of it was much easier. He was also motivated by the fact that Minnesota winters are COLD - he didn't... -
You might want to do a session or two with a personal trainer who specializes in osteoporosis. He/she should be able to come up with a challenging workout for you that builds bone mass. I don't know much about the 30-minute workout places. I just know I would get bored and want to vary my workout more.
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ARCHIVED Gutened And Frustrated
kbtoyssni replied to Crystalkd's topic in Coping with Celiac Disease
You may not need a large amount to feel yucky. It's sort of a chain reaction in the intestines so one little bit can do a lot of damage. The butter is VERY suspect and I'd guess that's where the gluten came from. Not sure on the other ingredients. I tend not to buy Archer Farms or Market Pantry because their customer service is practically non-existent... -
ARCHIVED What Do I Thow Out, What Do I Do, Will I Get Better?
kbtoyssni replied to F.deSales's topic in Coping with Celiac Disease
Lays Stax are made on dedicated gluten-free equipment so you'd probably be ok. -
ARCHIVED Besides The Obvious
kbtoyssni replied to saldwal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, it can really show up anywhere. Any food that has modified food starch is suspect until proven innocent. Some brands like Kraft will always label if there's gluten, but you really have to check on every one. Soy sauce often has wheat. Chicken/turkey may have broth added to "plump" it up. Some doritos have gluten, Pringles have it (but Lays Stax... -
ARCHIVED Recently Diagnosed 9 Y/o Dd--emotional Issues And Lethargy
kbtoyssni replied to BreeVanDeCamp's topic in Parents, Friends and Loved Ones of Celiacs
Welcome! When you say she can live on pasta - many celiacs are "addicted" to gluten. I've heard it compared to morphine in terms of how you body craves it, so loving carbs is really common. Have you tried putting your daughter in ballet or gymnastics? Ballet is a nice, easy form of exercise that will help stretch the Achilles and gymnastics is just... -
My mum homeschooled my brother and was able to borrow textbooks from the local school so he'd be learning the same stuff. I think she was also able to take him in during standardized testing days just to see how he was doing.
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ARCHIVED Plane Travel To Alaska
kbtoyssni replied to trober's topic in Traveling with Celiac Disease
Security will let you bring all non-liquids on the plane so I'd try to pack mostly that kind of stuff. I believe they will let you bring some liquid if you have a doctor's note, but I'd call on that just to clarify the regulations. Most airlines have gluten-free food available for long flights, so I'd call and see what they can offer. -
ARCHIVED Fast Food French Fries...is Anywhere Safe?
kbtoyssni replied to taweavmo3's topic in Parents, Friends and Loved Ones of Celiacs
Not exactly fast food, but Red Robin has a dedicated french fryer so they're gluten-free. Sometimes I go there just for the fries There's nothing wrong with ordering three baskets of fries and a water, is there??? -
ARCHIVED Bacon
kbtoyssni replied to barbara123's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Most meat is ok, but you do have to make sure that chicken or turkey hasn't had broth added to it to "plump" it up. I also notice that you're not buying packaged meat. The one problem here is that if they cut it for you and there are other meats that have been cut before you that contain gluten, you're contaminated. For that reason I buy only packaged... -
Heeehee, just noticed I had a typo in my post I meant to say I ate corn CHIPS with cheese, not corn TORTILLAS. So the corn chip brand is tostitos. Tostitos are made by Frito-Lay - here's a list of all their gluten-free food: Open Original Shared Link Try Mission-brand corn tortillas, they are gluten-free. I buy more mexican-style tortillas ($2 for...
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ARCHIVED Bento Box Saves School Lunch! Onigiri Rocks!
kbtoyssni replied to zarfkitty's topic in Parents, Friends and Loved Ones of Celiacs
I was a kid who never ate school cafeteria food and I was always so embarrassed about my lunchbox that I often wouldn't even eat. I'd splurge a bit just so your kid is happy at lunchtime. There's nothing worse than being "different" and being self-conscious about it. -
ARCHIVED School Lunch
kbtoyssni replied to mother2gf3's topic in Parents, Friends and Loved Ones of Celiacs
Cold pizza! I eat this all the time. I make a double batch on weekends using Jill's Quick and Easy crust in The Gluten Free Gourmet cookbook. It's quick and easy as advertised and tastes good, plus if you add lots of veggies to pizza and not *too* much cheese, it's actually a pretty healthy meal. Chips and salsa String cheese Hot dog in thermos of hot... -
ARCHIVED Can You Trace Celiac Through Your Family Tree?
kbtoyssni replied to ItchyMeredith's topic in Coping with Celiac Disease
My mum's got it, and I'm pretty sure her mother had it, too. They're both English (I'm only half English ) which is interesting since practically everyone who's replied to this thread can trace their celiac to the English side of the family. -
I'm sorry you're having such a tough time. You're right, a dietitian should be covered by your insurance if one for diabetes is. Not sure if this will help you, but most people here haven't found dietitians to be that helpful. As you know, the diet's harder than "don't eat WBRO" and that's a lot of what a dietitian will give you. To me, this site is far...
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ARCHIVED Normal Food Suggestions
kbtoyssni replied to Suffering in Ohio's topic in Coping with Celiac Disease
There's plenty of normal food out there! I rarely buy gluten free substitutes. Kraft brand will label gluten so you can feel pretty safe buying that. Frito-Lays are mostly gluten-free - try tostitoes, most doritoes, (some do have wheat labeled), lays stax, cheetos. Candy's great, things like dove chocolate, 3 musketeers, M&Ms, Andes, etc Kemps... -
ARCHIVED Soaps, Shampoo, And Other Personal Care Products
kbtoyssni replied to radgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I wouldn't consider myself paranoid I think of it as one more risk, one more opportunity for me to accidentally ingest gluten. And this is a risk I can easily avoid. I'm going to save my risks for things like restaurants. I'm a huge hair twirler so I know if there were gluten in my shampoo, I'd get it on my hands during the day. I'm also eat most... -
ARCHIVED Should I Be Ashamed Or Excited?
kbtoyssni replied to blueeyedmanda's topic in Introduce Yourself / Share Stuff
The new dress is beautiful! Good choice. You'll be miserable if you aren't comfortable in your dress and your wedding day is not one that you want to spend being miserable. And if buying three dresses is the most bridezilla thing you do, you're not doing so badly. Besides, this is all about you and your soon-to-be husband and the marriage and the rest... -
ARCHIVED Waiting On Biopsy Result From Possible Incompetent Doctor
kbtoyssni replied to cindy lou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is pretty common for your reactions to gluten after being gluten-free to get worse. I figured my immune system was so overloaded before that one more bite of gluten didn't do much. Now that the immune system is back to full strength it's able to fight off gluten with a vengeance! -
ARCHIVED Testing Before Seeing The Gi?
kbtoyssni replied to newbieva's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Are you gluten-free now (or at least partially gluten-free, I know you said you had pancakes, but I get the impression that you're not eating a lot of gluten)? If so, the GI's probably not going to get you positive biopsy or blood test results. If you want to stay gluten-free, you probably will have to do something like Enterolab if you want a positive...