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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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				ARCHIVED Grocery Shopping
kbtoyssni replied to smilie-girl99's topic in Gluten-Free Foods, Products, Shopping & Medications
Call me weird, but I like having the gluten-free food mixed in with the regular. Maybe it makes me feel more like a normal consumer that shops the entire store. I like seeing the other food products that are available even if I can't eat them. This way I know I'm getting the best selection, maybe because I don't trust stores to be able to find all the... - 
	
	
				ARCHIVED General Bread Questions
kbtoyssni replied to misoman's topic in Gluten-Free Recipes & Cooking Tips
The Gluten Free Gourmet's French Bread is delicious!!! - 
	
	
				ARCHIVED When To Retest & Horseback Riding
kbtoyssni replied to Cam's Mom's topic in Parents, Friends and Loved Ones of Celiacs
The amount of fiber sticks out to me, too. If you eat too much, it still makes things stick together, but if there isn't enough other matter then everything turns into, well, the big C. You have to have something softish in there in addition to the fiber. - 
	
	
				ARCHIVED Help The Us Govt Define "gluten Free"
kbtoyssni replied to VegasCeliacBuckeye's topic in Publications & Publicity
Oh, and I answered the "if we determine oats are gluten-free how do you want them labeled?" with OTHER: "I will not eat oats even if you do think they're gluten-free." - 
	
	
				ARCHIVED Help The Us Govt Define "gluten Free"
kbtoyssni replied to VegasCeliacBuckeye's topic in Publications & Publicity
From what I've read the protien in oats is starting to be different enough from the wheat gluten protien that some celiacs react and some don't (and I mean an actual autoimmune reaction, not just symptoms of glutening because some celiacs are asymptomatic even when damage is being done). I have no idea if I react, but I choose not to eat oats. Not worth... - 
	
	
				ARCHIVED Grocery Shopping
kbtoyssni replied to smilie-girl99's topic in Gluten-Free Foods, Products, Shopping & Medications
Do you (or someone you know) have celiac or have eating restrictions on food? Yes, I do (and my mum). Do you (or they) find it hard to go grocery shopping? No. Although for my mum it's harder to buy the specialty gluten-free food because the store is far away. If there was a store that catered to people who had restrictions on what they could eat... - 
	Non-stick pans have a coating that is very easy to scratch which would allow the gluten to get caught in the scratches. I have some non-stick pans, and I'm amazed at how beat-up they look compared to my regular pans. About the dishwasher: I don't think that using a dishwasher is necessary. BUT, people are correct that gluten gets trapped in washcloth...
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	A positive blood test means you have it. And I'm assuming from your reluctance to go back on gluten you've had a positive dietary response, too. You certainly don't need a biopsy to tell you what you already know. By the time a biopsy comes out positive, you've got so much damage to your intestines. I don't know why you'd want to do that to yourself....
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				ARCHIVED Help The Us Govt Define "gluten Free"
kbtoyssni replied to VegasCeliacBuckeye's topic in Publications & Publicity
The questions about oats have me freaked out. I would be really upset if they label oat-containing foods gluten-free. - 
	
	
				ARCHIVED Is He Faking This?
kbtoyssni replied to mdzplus2's topic in Parents, Friends and Loved Ones of Celiacs
I agree that the Taco Bell probably has to go. From what I've heard, I wouldn't ever eat anything there. Other food intolerances are a possiblity. My peanut intolerance feels just like a glutening. What about possible risks at school? Lunchroom tables are likely to have crumbs all over them. If kids are allowed to eat in the classroom and then touch... - 
	
	
				ARCHIVED Raisins
kbtoyssni replied to mollyacampbell's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have trouble with raisins, too. I can't remember what exactly it is, but grapes, pears, etc have something in them that can be hard to digest and raisins are super concentrated grapes. For the most part I stay away from them, but I'm able to tolerate them better now that I'm gluten-free. - 
	It could be that your mum's side has one gene, your dad's side another so you've got two making you more suseptible to developing it. It's also possible that other members of your family have it, but they've got some non-traditional symptoms and don't realize it. Anyone have allergies, reoccuring headaches, joint pain, unexplained sore throats, depression...
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				ARCHIVED Is It Possible To Have A Reaction From Handling Gluten Food
kbtoyssni replied to ami27's topic in Coping with Celiac Disease
It's probably not from touching the cookies themselves. It's just way too easy to accidently ingest some or get it around the kitchen and touch it later... It's also possible that you're just sick today, and it has nothing to do with gluten. - 
	
	
				ARCHIVED How About A New Reality Show?
kbtoyssni replied to lonewolf's topic in Introduce Yourself / Share Stuff
Hilarious! Thank you! Housemates should also periodically speak in foreign languages to simulate brain fog. Contestants must then read technical journal papers in a subject they have never studied and take a test on it. - 
	
	
				ARCHIVED One Year Anniversary
kbtoyssni replied to heathen's topic in Introduce Yourself / Share Stuff
Congrats! When I hit my one-year I invited all my friends over for a taco dinner. My one-year felt like a second birthday to me I was so excited! - 
	That is a horrible situation. I agree that moving out is probably the only thing that will keep you safe. Having your husband eat with you is an excellent idea. The two of you need to put up a united front. If your husband is willing, it would be great if he treated gluten the same way as you - as poison. So he doesn't eat it at home either and is just...
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	Not sure what you can do about the teeth grinding, but I think you need to work on being diligent with the diet. Being sick will only add to your stress. The teeth grinding may go away if you are more strictly gluten-free.
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				ARCHIVED It's Feeling Better The Best Way To Go?
kbtoyssni replied to alissa's topic in Coping with Celiac Disease
I agree. It seems like most people have to be very sick before they seek answers. If you just feel a little tired or get a bit of a stomach ache every now and then, it's not worth giving up all that yummy food. Now if you were throwing up after every meal and were too exhausted to get out of bed, you might reconsider how badly you want that food. - 
	
	
				ARCHIVED Choosing A Pediatrician & Vaccines
kbtoyssni replied to a topic in Parents, Friends and Loved Ones of Celiacs
Hard decision. You could always try a few doctors that are covered by your insurance and see how you like them. I try to pick ones that are younger. They tend to be more open to new ideas. I quiz my doctors a lot and am always asking them to do different tests and the younger ones are very receptive to my ideas. I figure that if I don't like what my... - 
	
	
				ARCHIVED Before Diagnosis
kbtoyssni replied to Kaycee's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had a friend mention it a few years pre-diagnosis so I knew what it was, but that's it. I'm lucky she mentioned it, though. I diagnosed myself through an elimination diet and probably would have thought I only had a wheat problem if she hadn't. I'm pretty sure I didn't even know what tortillas were made of. So when my server says "we have wheat tortillas... - 
	Welcome! Disodium is fine (it's just a form of salt). Calcium disodium is fine, too (that's a combo of calcium and salt if I remember my high school chemistry correctly!)
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	I think the issue with the colanders is that it's very hard to get every little bit of pasta out of those tiny holes, not that the material is "absorbing" gluten. I would still be leary of sharing even if you do wash them extremely well.
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				ARCHIVED Meeting In A Coffee/bakery Shop
kbtoyssni replied to rtilil's topic in Coping with Celiac Disease
Sometimes people at work have meetings in the cafeteria. Which I am starting to hate because the tables are always covered in crumbs. I always wipe the table off before putting anything on it. It's so hard to keep yourself safe in places like that. Pinned means that a moderator has read your original post and "approved" the content and forum it was... - 
	
	
				ARCHIVED Dang It's Cold!
kbtoyssni replied to Confused in Iowa's topic in Introduce Yourself / Share Stuff
I'm surprised the groundhog didn't freeze coming out of his hole. It was -5 plus wind when I left for work this morning, and it's getting colder! - 
	
	
				ARCHIVED Just Wondering Who's From Minnesota
kbtoyssni replied to linds's topic in Introduce Yourself / Share Stuff
I live just north of St Paul.