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Noobette

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Noobette

  1. Noobette
    I’m pretty sure I don’t have a flu or bug, since I don’t have nausea, vomiting, diarrhea, fever, malaise, or body aches. Just this damn pressure and bloating! I’m feeling quite a bit better the last couple of days, though - maybe it was the L-glutamine I started taking, or just time. i already eat a low-carb primal (paleo + dairy) diet, so pretty much no...
  2. Noobette
    I got glutened at a restaurant two weeks ago - I ate half a flour tortilla. This was the first time I’ve had a sizable gluten exposure since my diagnosis a couple of years ago. The other times I’ve accidentally eaten gluten (that I know of) was in small amounts (a few baked potato chips one time; salad dressing another time) and I had no symptoms. I was...
  3. Noobette
    Thank you @Megamaniac - I don't hear about chest tightness as a symptom of being glutened, so it's good to hear of someone else. My current symptoms aren't bad, just annoying. It's hard to tell if it's anxiety tightening my chest, or something else. But since it's only been happening since I ate that damn tortilla, my guess is it's gluten-related. My doctor...
  4. Noobette
    About 10 days ago I think I ate most of a wheat tortilla (the restaurant stuck to their story that it was a corn tortilla like I had ordered, but I don't believe them - I'm pretty sure it was wheat). Nothing happened in the first couple of days, then I developed intermittent chest tightness, which was one of my primary symptoms before my diagnosis, the others...
  5. Noobette
    I had 23andme testing which showed I have genes DQ2.5 and DQ8. When I learned this I decided to stop eating gluten to PREVENT getting celiac, but didn't worry about cross-contamination. A year later I got sick, and eventually had an endoscopy which showed Marsh 1. My blood tests were negative, as one would expect for anyone eating gluten-free. My gastroenterologist...
  6. Noobette
    The beginning of your story sounds very much like mine. I stopped eating gluten regularly when I adopted a mostly paleo diet years ago (bonus: my lifelong canker sores disappeared!). When I got 23andme testing done and learned I have both high-risk celiac genes, I stopped eating gluten altogether, thinking I couldn't trigger celiac if I didn't have gluten...
  7. Noobette
    I love Aroy-D coconut milk, although I use the canned kind. There are no ingredients which could contain gluten, so I feel very safe eating it - and I eat a lot of it. I'm not home so I can't check the label to see if it says "gluten-free" anywhere, but I certainly consider it safe.
  8. Noobette
    Cindy's Kitchen of Brockton - I've never seen this brand before. It contains soy sauce - not something I expect to see in balsamic vinaigrette!
  9. Noobette
    I would never have known the dressing contained wheat, except that my nephew really liked the dressing, found it at the store after lunch, bought it, and brought it home. I would also think balsamic vinaigrette would be pretty darned safe. Goes to show we have to be constantly vigilant.
  10. Noobette
    I am in a very similar situation. I tested positive for two of the celiac genes (2.5 & 8, IIRC), and stopped eating gluten proactively even though I wasn't having symptoms (that I recognized, anyway). However, I didn't separate stuff in my kitchen or worry about cross-contamination. I got sick a while later and eventually had an endoscopy which showed...
  11. Noobette
    I went to a big lunch yesterday at a distant cousin's house who I barely know. I really hate making food restrictions an issue in situations like that, so I usually eat sparingly and selectively instead of asking lots of questions and drawing attention to myself. The salad had dressing on it already, but it wasn't a creamy dressing so I made a calculated...
  12. Noobette
    It sounds like you're past the experimental phase, but just in case… did you use gluten-free oat flour in your "control" spice mix? If it wasn't gluten-free that could confound your results.
  13. Noobette
    One of my only symptoms before going gluten-free was painful canker sores in my mouth, which I now get very rarely. I was already gluten-free when I first got sick (I stopped eating gluten because I have the DQ2.5 and DQ8 genes), so was unable to get an official diagnosis. My bloodwork was normal, but my biopsy came back as Marsh 1. I was not willing to put...
  14. Noobette
    The report states that everything appears normal on inspection, except you appeared to have duodenitis, which is inflammation of the uppermost section of the small intestine. Duodenitis is a very common finding and could be due to a variety of causes. You had biopsies taken of multiple areas, so when those results come back you will have an additional report...
  15. Noobette
    I am in a sort-of similar situation. I cut out MOST gluten several years ago when I started eating a paleo diet for general health reasons. My join pain and canker sores quickly went away. I was not strict and continued to eat wheat maybe once a month. Then I got genetic testing though 23andme and found I had both DQ2.5 and DQ8. This was a surprise, since...
  16. Noobette
    Hello! My son had a colonoscopy & upper endoscopy when he was in 4th grade. The worst part was getting the bowel prep into him - that was pretty traumatic for both of us! The next bad part is getting the IV in. After that, he will just take a nap and wake up when it's all over. Even though he is gluten-free, ask the doc to biopsy the duodenum anyway...
  17. Noobette
    I had the same biopsy results. This is a Marsh 1, the mildest positive result. Celiac is the most likely reason to have this finding, but it's not definative. Other reasons include: infection, medication reaction, H. pylori, Crohn's, intolerance to a food protein other than gluten, or other autoimmune condition. I can interpret some of this, but...
  18. Noobette
    I had frequent canker sores for decades, starting as a very young child - basically as young as I can remember. They decreased dramatically when I stopped eating gluten.
  19. Noobette
    My son missed 15 straight weeks of high school due to unrelenting nausea. He had lots of testing, all normal. There are a bunch of "functional" GI disorders ("functional" meaning that there is nothing structurally wrong and usually nothing that will show up on a test). His various diagnoses included functional abdominal pain, functional dyspepsia, and abdominal...
  20. Noobette
    Flour is so fine, it can be impossible to work with without it going airborne and then settling on everything in the kitchen. If there's flour dust all over, you will ingest some of it. Lots of the resources I've read recommend banning flour from the kitchen entirely.
  21. Noobette
    Coconut flour is VERY different from any other kind of flour! Don't try to substitute it for other flour in a recipe because it's so different that the recipe needs to be adjusted a lot. Coconut flour soaks up a ton of moisture. Typically you use a small amount of coconut flour and lots of eggs. Or it's mixed with other flours in a recipe. I tend to follow...
  22. Noobette
    A book came out last year about HS and treating it as an autoimmune disease. I think people have had great luck using diet to help control HS, as outlined in the book. I haven't read this book myself since I don't have HS. http://www.amazon.com/Hidden-Plague-Overcoming-Hidradenitis-Suppurativa/dp/1939563011/ref=sr_1_1?s=books&ie=UTF8&qid=1413120...
  23. Noobette
    I think the 3-day test is only in the developmental stage, and it could be several years before it's actually available.
  24. Noobette
    Gliadin (part of gluten) is a prolamine, but not all prolamines are gluten. Corn and oats also contain prolamines. I think the article is poorly worded.
  25. Noobette
    I believe roti is normally made with wheat.
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