LauraTX

You might want to subscribe to the Gluten Free Watchdog. It's $4.99 per month. 

Open Original Shared Link

 

They test 8 products per month. You get a notification in your inbox each time a product is tested -- they do 2 products at the time. Just this month a Rolled Oats product labeled gluten free tested well above 20 ppm of gluten. 

This is a great site, I am glad I signed up with them.  I highly recommend them.  They also have some great informative articles that can really deepen your understanding of things like gluten contamination in food processes, etc.

There is another website which is older & more established. it also has more information imo, being that it has reviews by people who have eaten there.

Open Original Shared Link

I feel this is the best site for finding Celiac-Friendly dining.  I leave reviews on it, good or bad, so others can know.  Some places will have multiple reviews letting others know it is not safe for Celiacs, and I will know to steer clear.

What is everyone planning on eating for super bowl watching snacks?  I am not a big football person, but I do watch the game and the commercials.  My husband suggested we break out the deep fryer and make fried chicken tenders and fried pickles since it has been a while, and I agreed that is a great idea.  Yum Yum!  Hopefully we can leave some ideas here to inspire our people new to gluten-free and Celiac life.

I marinate my chicken tenders in buttermilk, sriracha, and spices.  Then coat in gluten-free bisquik, and fry.  Really nice to have something like that since I definitely can't go through a drive through and get it like the old days.

I just checked with the hospital and they explained their sterilization process to me and said they will be using a gastroscope, which is different than a duodenoscope. The article referred to the duodenoscope that was causing the problem. So maybe I should still go through with it?

Yes!!! Definitely go through with it.  I totally understand the fear of germs, I am a horrible germaphobe myself, but the benefit of getting needed medical procedures done should not be missed.

It was 80 in north Texas today.  What Blizzard? lol

That website can be a good starting point, but especially with the menus they list, they could be outdated and such, so definitely do a second check for yourself.  They also include things on the gluten-free menu listings like fries that are fried in shared oil, etc, so use caution and verify yourself.  

If your son's total IgA is low, get him to an immunologist right away.  A possible immunodeficiency can cause many of the symptoms you describe, but only an expert would be able to tell what exactly is going on.

The author of that book is not a doctor.  Also, it was written in 1994, so it is already 20 years old and likely dated.  I would be cautious taking any advice from it.

SLE, or Systemic lupus erythematosus, is an autoimmune disease just like Celiac is, and they tend to run in groups.  If you were properly diagnosed with lupus, then you will always have it, but that doesn't mean you can't also have Celiac disease.  With symptoms you describe, it can be difficult to tell what is causing what, but to at least answer one question... yes, what you describe is constipation.  Ask any of your doctors for a referral to a gastroenterologist, so you can be tested.  You will need to be consuming gluten for the tests to be accurate.

Also, even though you see your rheumatologist for your lupus doesn't mean you should skip out on checkups at your primary care doctor.  Go see that doctor as well, and get that thyroid checked since you suspect something is going on.

I know it may not make sense to go to a GI doctor for an autoimmune issue, but in this case they diagnose because they need to do an endoscopy if Celiac is suspected.  I have Lupus (SLE) and Celiac disease, and actually found out about both around the same time, but from different doctors.  If you do end up having both, it is extra important to your overall health to properly manage both diseases.  Let us know how your appointments go, and don't hesitate to directly ask for tests if your doctor is not doing them.

Great to hear you are healing up!  The body has much more IGG than IGA, so in general the IGG number is going to stay higher as they go down.  Great progress so far on it!

What has your doctor said about the ANA and the bilirubin?  It is good to hear that the lupus test was negative... have you seen a rheumatologist?  Open Original Shared Link, however there isn't much known about it.  But given that it is going down as you heal, I would give both blood values more time to normalize as your body heals from the Celiac damage. 

Ask your doctor if he will be using a duoendoscope if you have to schedule an endoscope.  If he is DON"T HAVE IT DONE!  See USA Today article (1/23/15) about the deadly bacteria that has been traced back to the fact that THEY CAN NOT CLEAN CRE - an antibiotic resistant bacteria - off this kind of endoscope.  People are dying - it kills 40% of the people it infects - since it is antibiotic resistant. 

Welcome to the forum. While there have been limited outbreaks from use of specialized duodenoscopes (equipment that is more specialized than what is needed for a standard endoscopy), even in Open Original Shared Link, they say: 

"Meanwhile, the scopes' "lifesaving" ability to detect and treat potentially fatal digestive disorders outweighs their infection risks, the statement adds. "It (is) important for these devices to remain available.""

 That means that individuals who still need life saving care, such as a Celiac disease diagnosis, should NOT avoid diagnostic procedures.  While I understand such articles can be alarming for a member of the general public to read, please do not discourage others from seeking medical care based on a secondary source article.  The equipment mentioned in the article is a specialized instrument used in a procedure called Open Original Shared Link.  That is far beyond what is done in a endoscopy for Celiac diagnosis.  If a patient feels better checking before an endoscopy, then there is no problem in that.  But they should still get the needed medical treatment.

Open Original Shared Link out there, the risk of not seeking medical treatment for issues far outweighs the risk of catching said bug.  While the media takes tidbits of information and runs with them using scary headlines, that blows things way out of proportion, and we like to see things in a reasonable, realistic proportion here on the forum.

I can't believe they haven't found a way to make the Thin Mints gluten free!! I'd buy tons!!

There are a few copycat recipes online... but that may be a dangerous thing to have... lol!

I actually hate thin mints.  I know, I'm weird.  But my husband loves them.

Welcome to the forum!  Cyclinglady has left you some great info and links already there, so I don't have much to add there.  But let us know how everything goes!

Hi Piper,

I move this topic and your pet food topic to our super sensitive celiac section since the experience of being glutened from the sources you talk about are atypical for most people with Celiac.  That way people know where you are coming from and can reply accordingly.   Feel free to post things there so you can get the answers you need.

Do you have a wheat allergy as well as Celiac disease?  The things you describe, like hugging gluten eaters... I have not heard of any seuper sensitive Celiac even experiencing those.  Do you struggle with anxiety about gluten? 

I got my gluten-free cookies!  I picked up four bags of the trios cookies... they are really good.  Those are the oatmeal peanut butter chocolate chip ones.  Soft and very good.  They only have oats in them, no other gluten-free flours. I want to try and get a hold of the toffee tastic ones, I had someone tell me they are like pecan sandies, which are a cookie I miss dearly. 

Welcome to the forum, jim.  Do note that this thread is 4 years old and the people on it are not active anymore.  Also, the ingredients in Vans waffles may have changed since then.

Van's makes regular gluten-filled waffles, too, did you buy those by mistake?  Also, was the soy sauce you had a reaction to regular soy sauce, or gluten-free soy sauce?  Sorry if those sound like silly questions, but it happens so I like to ask. Their gluten-free waffles do contain a lot of soy, so if you suspect you have a problem with soy, this would definitely be a problem item.  A good way to pinpoint whether or not that is happening is to keep a food diary so you can link symptoms back to what you ate.  

Hi Kathleen,

Dextrin is usually made from corn, but can be made from wheat.  Good news is that if it is made from wheat, in the US, it must say so on the label.  The illness may just be from eating junk food, or cross contamination.  Also, remember not every illness is caused by gluten.  Aside from gluten problems, tummy aches can come from various foods and bugs that can give us similar symptoms, so sometimes we Celiacs can be too quick to pull the trigger on a usual culprit.  

Also, I do want to let you know that we have a section for people who consider themselves to be super sensitive Celiacs, such as those who feel they react from vinegar, which is generally a safe ingredient for most people with Celiac disease.  The answers on the general forum are going to be from all Celiac sufferers, so please feel free to use that category to restrict answers to those who understand the needs of the super sensitive.

That is awesome to hear!  It is definitely worth the peace of mind.

 Eden Organic Pasta Co makes the pasta, so, if you can't find the pasta locally, you can order it from them.  Open Original Shared Link

That company page only lists their wheat products, so I found the actual product page, and their artichoke pasta also has wheat in it. Not safe for a person on a gluten-free diet.  Open Original Shared Link

I've had this appointment for the neuro psych eval for 6 months.  I just want some answers.  It's getting to the point where I can't handle her anymore.  Hopefully cutting the gluten will make it better.  Though the doctor at Johns Hopkins Hospital told me that research does not support the correlation between gluten and behavior...

 

Thanks for the advice

This doctor was probably referring to the people who put children with autism on a Gluten Free Casein Free diet and say it makes their children better.  There is not science that supports that.  However, when untreated Celiac disease is present, there absolutely can be psychological symptoms.  Here are a few links, maybe the last paper you can refer the psych specialist to if they deny this is the case.  Obviously, treat what is happening now, and be very strict with the gluten-free diet and you may see some very great improvements as healing happens.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

To find sales in your area check out Open Original Shared Link

There is an app called cookie finder that they put out that is the same thing.   You can check that out.  I stopped by a booth sale at a sore near here, the leader said they get the gluten-free cookies in on Wednesday so I gave her my contact info.

Time to run to the grocery store!!!!!!

I would have never known to look for these, thank you for the heads up!   They are a big brand around here so surely someone has to have it.  Quite exciting.

My SO plans on bringing his kitty over from Germany. It is currently living with his parents. We will be feeding her Royal Canin. His father is a Veterinarian and is the lead guy for RC in Germany so I am given NO SAY in the food his kitty will eat. hahaha  I will be getting a kitten soon too and I refuse to pay the price tag on RC so I was looking at Blue  Freedom as they have a grain free variety. I really wish I could convince my SO to get his kitty grain free too. That way the kitties can BOTH be around me and I will never worry about it. If we have a child together, I will demand it if the baby turns up Celiac though.

The gluten-free version of Blue is around the same price as Royal Canin.   My cat now eats the Royal Canin Feline Urinary SO prescription food, it helps with her urinary tract problems.  The regular one is gluten-free, the lower calorie one has wheat gluten as a top ingredient, so we just make sure to be strict on portion control.  We fed her Blue before, she liked it a lot.  The can version of her RX food is gluten-free as well, we feed her those sparingly as a treat when we have to mess with her to clean her and such.

I feed her gluten-free because I keep the food in my kitchen, she licks herself, I pet her, etc.  I am sure the risk of transmission and issues is very low, but it is worth the peace of mind for me to make sure her food is gluten-free.

We do occasionally give her greenies which are not gluten-free.  They work wonders on that bad cat breath!

Luckily they add the "contains gluten part" so there is no guessing.  In the case of the icing mixture, it is likely that it is made on shared equipment and is probably contaminated with gluten, so they just put that statement on there.  If you aren't sure why they put the statement on there, like in the case of the glucose syrup, you can write the company to ask.  Then you can use that info to judge whether or not it is safe to consume.

Well you are tempting me to make donuts now... LOL