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LauraTX

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Latest Celiac Disease News & Research:

Everything posted by LauraTX

  1. LauraTX
    I am so sorry for your loss. We are here to help you out and get you the info you need to get tested properly. One of my symptoms as an undiagnosed Celiac was neuropathy- horrible tingly itchy sensations that sometimes got painful, mostly in my legs. I went through all kinds of testing for them to just tell me they don't know. It was frustrating. I still...
  2. LauraTX
    Very interesting that he is quite likely a seronegative celiac. Hopefully the sister will see some improvement on a gluten-free diet, too, as it is likely she has the same thing.
  3. LauraTX
    Im jealous!
  4. LauraTX
    What country are you in? If you would like to go into your profile, edit profile, and put that in your signature, it will help people tailor their responses.
  5. LauraTX
    For canned pears I think it is worth it to pay more for the name brand. I usually buy the kind in light syrup or in juice, no artificial sweetners. I know what you are talking about with the weird hard crap that some brand pass off as pears. Like, really, you sell this? LOL... you could probably sprinkle sugar on them and put them in the fridge for a...
  6. LauraTX
    I certainly understand the fear of something else going wrong. I am almost 30 and pretty much have the body of an 80 year old, lol. I have Celiac, Lupus, and Common Variable Immunodeficiency, and the way I cope with my fear of things going out of whack is to just take care of my current problems to the best of my ability. I am so anal retentive about eating...
  7. LauraTX
    With only being gluten-free for a week, it is going to take more time for things to change for the better. In the meanwhile, maybe she can try whole prunes instead of just the juice. I have bad constipation because of medications I am on, and I usually eat 5 prunes a day for regularity. A psyllium fiber supplement can help, too. Staying hydrated is important...
  8. LauraTX
    You are an awesome mommy My husband does the same... he can get his gluten fix out of the house no problem.
  9. LauraTX
    Well man, I was searching for one out of products I know, and can't track one down. Will look more tomorrow to try and hunt something down!
  10. LauraTX
    Good to hear you brush and floss Hehe
  11. LauraTX
    Well I have been on a lazy streak since I had lots of medical stuff going on recently, laundry laying around the house... I did clean the toilets, though, LOL. Catching up now, finally. Until next Tuesday another IVIG treatment. My new stuff seems promising on making me less sick afterwards. Today I made chicken fried steak, mashed potatoes, gravy, and...
  12. LauraTX
    It could be possible that the others have not come back yet. These tests tend to be shipped out to specialty labs that can take extra time. Hopefully that is the case.
  13. LauraTX
    There are inflammatory diseases that can manifest in this way. Celiac disease can cause many symptoms, and can occur with other conditions and weaken your body if it is left untreated. If you are going to be tested for Celiac disease, make double sure they run a total IgG and IgA level. Low levels of those can cause these kinds of symptoms as well.
  14. LauraTX
    If you have a candidia or bacterial overgrowth issue, that could make parts of the body smell in a distinct manner. It also could just be what you eat. I hate to ask this, but do you brush your teeth and the tongue regularly? Even if you do, breath also comes from farther within, which is why garlic breath stays past tooth brushing. (Thank god I, a garlic...
  15. LauraTX
    For everyday, I just keep a granola bar or two in my purse in case I am stuck out and get hungry. I also have three pillboxes in there that have any medication I may need (OTC and RX) for all my issues, and a 5 hour energy in case my lupus fatigue gets so bad I gotta have caffeine to get to where I am going. And a bottle of water- I always take one with...
  16. LauraTX
    Here is a link that may work Open Original Shared Link That is awesome to hear! Remember there still may be old product on the shelves, since those bars last a while. But should be seeing them around about now. I will definitely pick some up to try.
  17. LauraTX
    I have seen the thai kitchen ones at walmart. Also, they make thin rice noodles that you cook by putting them into hot broth or water, they are so thin you can't boil them really to keep them intact. I think thai kitchen makes them, as well as others. Those may be good to have a larger quantity and control what broth you use- maybe put some dried noodles...
  18. LauraTX
    Those thai kitchen noodle packets are pretty good. Give you that ramen feeling.
  19. LauraTX
    Awesome you got a good doctor to work with now!
  20. LauraTX
    THIS is what people should be doing. Get info but go to your doctor still. Work with your doctor as a partner in your own health. Great to hear (read) this, Fran.
  21. LauraTX
    While this does not sound like the typical onset of Celiac disease-associated neuropathy, given your history of vitamin deficiencies and IBS, it would not hurt to get tested for Celiac disease. However, in reference to the numbness and changing sides- that sounds like it is something different. Have you had your neck examined and have the nerves checked...
  22. LauraTX
    Oh, this is exciting. I have a friend out there, I want to visit again since I loved my last visit.
  23. LauraTX
    Lets see where did those links go....all the factsheets from Univ of Chicago are really helpful. This explains all the antibody blood tests: Open Original Shared Link Genetic tests: Open Original Shared Link Endoscopy and 5-6 biopsy sites: Open Original Shared Link In fact, anyone who is needing to get info to their doctor on how to diagnose will...
  24. LauraTX
    Yesterday we made spaghetti. Tonight I have some chicken to grill up, and the rest of the week I have easy stuff lined up since I have to go for IVIG tomorrow. I had a 1/4 sized dose of the new stuff last week and it made me almost as ill as the last stuff, so I anticipate not feeling well and being away from the computer for a few days.
  25. LauraTX
    Welcome to the forum! Despite some people and doctors associating Celiac disease with GI symptoms like diarrhea, Adults especially may have no GI symptoms at all, but have other symptoms. Here is a page that details some: Open Original Shared Link Open Original Shared Link In fact, Open Original Shared Link The only way to see if you are adequately...
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