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NoGlutenCooties

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Everything posted by NoGlutenCooties

  1. NoGlutenCooties
    FWIW... there's a lot of gluten in a piece of toast. When folks do a gluten challenge they eat 2 pieces of bread each day. You're eating at least half that (the piece of toast plus whatever hidden gluten or cross-contamination is in the other foods you're eating). Just don't want you thinking that you're barely eating any gluten by "only" eating a slice...
  2. NoGlutenCooties
    While I agree that a biopsy is a good next-step, a negative biopsy does not mean that gluten isn't a problem. It doesn't even mean that you definitely don't have Celiac. False-negative results for both the bloodwork and the biopsy are not all that uncommon - they can easily miss it. And there's always the possibility of non-Celiac-gluten-intolerance in...
  3. NoGlutenCooties
    Correct. My point was that if some other food manufacturer used this as their smoke flavor it is possible that they could list "Hickory Smoke Flavor" on the label without listing what's in it. Maybe they wouldn't do that... but I just don't trust anything with "smoke flavor" in it without checking with the company first. Like I said before... maybe you...
  4. NoGlutenCooties
    You can start with "I'm gluten intolerant" and watch their facial expression. You can usually tell right away if they have any clue as to what you're talking about. Continue with, "I can't have anything that has wheat or flour in it or I'll get very, very sick". Then proceed to ask them about their food options. I don't typically bother mentioning rye...
  5. NoGlutenCooties
    So sorry to hear that... (((hugs))).
  6. NoGlutenCooties
    Hi PurpleOrchid and Welcome to the Forum! As Barfull suggested, definitely check out the Newbie 101 thread. Personally, I don't trust makeup that has gluten in it because it's just too close to my mouth. Too easy for it to get on a napkin that then ends up running across my lips, etc. I use Bare Minerals makeup and most of their product line is gluten...
  7. NoGlutenCooties
    So I did a little more digging and found this (this one is specific to bacon): "some manufacturers of liquid smoke flavor actually use barley malt powder to make their products (Open Original Shared Link, as we know, is a gluten grain). If your bacon maker can't guarantee the liquid smoke in the bacon is gluten-free, definitely choose a different product...
  8. NoGlutenCooties
    Hi Greg and Welcome to the Forum! The good news is that your strict gluten-free diet seems to have elimated the evidence of Celiac from your gut - so good job on that one! Otherwise, I agree with Arlene - try eating easily-digested foods and keep a food journal. Your body may just not be able to handle certain foods yet, or you may have other food intolerances...
  9. NoGlutenCooties
    Just wanted to add that they also check for other nasty stuff when they test the biopsy samples - forget now exactly what - so its worth getting the biopsy just to make sure that Celiac is all that's going on in there.
  10. NoGlutenCooties
    I don't think anyone asked to have Celiac Disease. And as others have said - you can't wish it away. That said, I do believe that having a positive attitude can help the healing process. But you have to be realistic. For example, a positive attitude won't keep you from getting sick if you eat gluten. But a positive attitude can help you heal faster and...
  11. NoGlutenCooties
    I would get a new doctor. Anyone who tells you that you can't have Celiac now because you didn't have it 3 years ago is an idiot. Also, have you had your blood sugar levels checked? What you describe sounds a lot like low blood sugar. Try making sure you eat something with protein in it every 2 - 3 hours and see if this makes a difference. Good luck...
  12. NoGlutenCooties
    You're going to get very tired of hearing this, but it's the annoying truth... everyone is different. In my case, my labs considered anything above 11 on the ttg iga as positive. Mine was only 13. But my endoscopy showed visible signs of inflammation - the surface was bumpy looking, like rolling hills - and the biopsy showed moderate to severe villi damage...
  13. NoGlutenCooties
    I wish I could say I was surprised. My sister is a Registered Nurse and generally a very smart woman. But she has started to have issues with gluten and came to the conclusion that she doesn't need to get tested and doesn't need to worry about cross-contamination as long as she doesn't eat anything that makes her feel icky. All you can do is calmly explain...
  14. NoGlutenCooties
    Hi Peter - Are you also using your own strainer, toaster, etc. - anthing porus that can hang onto food particles? I know some of the folks on here are advocates for having your own plastic storage containers too... but as long as you wash them well, that isn't necessary. Any shared condiments (i.e. mayo, butter, peanut butter)? As far as your work...
  15. NoGlutenCooties
    Wasn't saying Case said the whole thing.. just copied/pasted the pertinent section - which is sourced to two different people.
  16. NoGlutenCooties
    Welcome to the Forum LostInPA - You're born with a predisposition for Celiac - the predisposition for it is genetic. But that doesn't mean that you will necessarily get it. Some develop the disease very early in life - pretty much as soon as they are given solid foods that contain gluten. Others don't develop it until very late in life. Some develop...
  17. NoGlutenCooties
    Keep in mind too that Celiac causes malabsorption. So your body has been going without enough nutrients for a long time. It's not just about the villi damage and getting rid of all the pesky antibodies. Your body is also replenishing vidal nutrients and repairing whatever damage/weaknesses have been caused by being low in certain nutrients. So your body...
  18. NoGlutenCooties
    Just wanted to add that you want to make sure the digestive enzyme has lipase in it - that's the enzyme that breaks down fat. I agree with the others that a low-fat diet isn't really a good idea (not that you should overdose on fat though either). Your body needs good fats. This is the digestive enzyme I use: Open Original Shared Link
  19. NoGlutenCooties
    Holy sh*t! Not that I would ever cheat... but this really brings it home.
  20. NoGlutenCooties
    Hi Meg and Welcome to the Forum! Diagnosing Celiac is tricky because it comes with a myriad of possible symptoms - all of which can have other causes - or no symptoms at all. There is also a condition called non-Celiac-gluten-intolerance in which you get to enjoy all of the symptoms, but there is no villi damage so it's even harder to diagnose. Also...
  21. NoGlutenCooties
    FWIW... I've taken a heaping tablespoon of Metamucil every morning for about the last 20 years and have never had an issue. I do drink at least 8 - 10 glasses of water every day too (which you really should do whether or not you're taking a laxative). I too use the one with regular sugar in it as the sugar-substitutes don't agree with me. As far as it...
  22. NoGlutenCooties
    I've wondered about the smoke flavor in turkey breast deli meat and in provalone cheese too. This is from the "Gluten Free Dietician" website: (Disclaimer: this isn't a "scientific" site or based on medical research, but I've found them to be reliable.) Smoke Flavoring This flavoring is derived from burning various woods, including hickory and mesquite...
  23. NoGlutenCooties
    But don't all of us overly-emotional women need those "little yellow pills" just to make it through the day? (Bartfull - love the smelling salts comment!)
  24. NoGlutenCooties
    I've also been gluten free since early October. I haven't experienced what you descibe but I know from reading accounts from others that this is very common. Over time you'll find you have more good days than bad - and then eventually you'll realize you only have bad days when you've actually been glutened. I don't know the reason for this, but I suspect...
  25. NoGlutenCooties
    Just a word of caution... the genetic testing for the "Celiac gene" won't tell you if you have Celiac or not. All it will tell you is if you have one or more of the genes that pre-disposes you to Celiac. But about 1/3 of the population has at least one of the genes, while only about 1% have Celiac. From what I've read, the gluten challenge is at least...
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