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NoGlutenCooties

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Everything posted by NoGlutenCooties

  1. NoGlutenCooties
    You may want to get your vitamin B levels checked. Vit B deficiencies can cause numbness and tingling. Can cause anger and mood issues too.
  2. NoGlutenCooties
    Not sure if you're referring to me and my mom - but this is exactly the case with my mom. Her brother has Celiac - diagnosed 15 years ago. And I was just diagnosed 6 months ago. Given her symptoms, there's simply no way she doesn't have it. But if you start to explain how you know you have it, but you don't have an "official" diagnosis, but here's...
  3. NoGlutenCooties
    That's true - you have to wiz up one serving at a time. Only takes about 20 sec. though (once you stuff all the ingredients into the cup). I'm not sure how long you'd want to let it sit before drinking it either. I have made them in the morning and taken them to work with me to drink several hours later, and as long as you stir it up it's fine. But I...
  4. NoGlutenCooties
    Hi and Welcome to the Forum! Your symptoms do sound like potential gluten issues... however every symptom of Celiac or non-Celiac gluten intolerance have other possible causes. The good thing is that it sounds like you had thorough testing for Celiac which is an important first step. Were you consuming gluten when you had the tests done? I ask because...
  5. NoGlutenCooties
    I don't mean this as some sort of advertisement for Nutri-bullet and I know there are other brands/varieties out there but I wanted to share my experience with it as I think it may help some folks. As you know, with Celiac it can be very difficult to break down and fully digest food - digestive enzymes help but it can still be difficult to get everything...
  6. NoGlutenCooties
    Just wanted to add that I read somewhere on this forum that the antibodies have a half-life of about 3 - 4 months. Which means at 3 - 4 months you still have approx. half of the antibodies that you started out with when you first went gluten free. If you had a very high number of them, it can take several months or even a year or two to get rid of them...
  7. NoGlutenCooties
  8. NoGlutenCooties
    You may want to find a new doctor. Doctors tend to be very slow to accept anything that cannot be cured with a drug. It is as if it goes against their DNA. I agree with the others on this one... try going 100% gluten free for a few months and see how you feel. If that isn't enough to convince you, go back to eating gluten and see if your symptoms come...
  9. NoGlutenCooties
    It makes me skeptical to hear this... while your doctor may be a great guy, that doesn't mean that he actually understands Celiac or the testing process for it. (Doesn't mean he doesn't either.) - if you were gluten-free for a significant period of time and were only eating gluten for a short period of time - or "gluten light" - the tests may not be accurate...
  10. NoGlutenCooties
    It's really hard to tell - everyone seems to experience it slightly differently. I got glutened once and it felt like having food poisoning. I didn't get GI symtoms but had cold sweats, chills, fatigue, and couldn't think straight. The worst of it lasted a couple of days but it was about 5 days before my appetite came back and I felt pretty normal. It...
  11. NoGlutenCooties
    Yes. Once your body gets used to the idea of not having to deal with gluten, it tends to react violently to being assaulted by it again. As I mentioned above, I had no symptoms when I went gluten free (just 6 months ago). After being gluten free for about 3 months I accidentally got glutened by a little tiny taste of what I thought was quinoa salad. Turned...
  12. NoGlutenCooties
    Yep - this doctor is outside his realm of understanding. I had no symptoms. Many Celiacs are asymptomatic. Others have symptoms but no GI symptoms. I only requested the blood tests because Celiac runs in my family. I was "weakly positive" - which to me is like saying you're "weakly pregnant" - my ttg iga was 13 on a scale that considered anything over...
  13. NoGlutenCooties
    OMG!! Hearing about how clueless doctors can still be about this disease that has been around for so long makes my blood boil! I was just diagnosed 6 months ago and I'm 42. I had no symptoms. I requested the blood test because it runs in my family. My ttg iga was "only" 13 - anything above 11 was considered positive. The biopsy showed moderate to severe...
  14. NoGlutenCooties
    Hi and Welcome to the Forum! Just wanted to add that if you're eating gas-producing foods (raw veggies, beans, etc.) you may want to try Bean Zyme - which is the gluten-free version of Bean-O (cheaper too).
  15. NoGlutenCooties
    Welcome! Yes, you have Celiac. Negative biopsy results are not uncommon as the inflammation can come and go and be spotty - easily missed. Next step? Go 100% gluten free. No cheating. Based on your blood work, consider supplements for the nutrients that you're particularly low in (esp. B Vitamins, D, and iron). Stick to whole, natural foods - especially...
  16. NoGlutenCooties
    Glad you figured it out... but my first thought is that if it really was the cinnamon flecks making it all the way through your system undigested, you may want to consider taking a digestive enzyme.
  17. NoGlutenCooties
    Just wanted to add that one of the benefits to getting the endoscopy is that they test for other issues too - not just Celiac. It's good to know you're not dealing with something else on top of gluten issues. Also, there's nothing keeping you from just telling people that you/your child has Celiac. They don't need to know that the doctor couldn't/wouldn...
  18. NoGlutenCooties
    If it were me, I would send the results to the first clueless doctor and let him know what a boob he is and how he put the health of your child in danger. Let him have it - both barrels - no holding back. And great job sticking up for what you knew to be right! Go mom!
  19. NoGlutenCooties
    Hi B and Welcome to the Forum! Dulcolax is not on the gluten-free drug list: Open Original Shared Link You can always contact the manufacturer to double-check. That said, I agree with GottaSki that laxatives can be too rough on your system until it heals - and once it heals, hopefully you won't need them. I use Metamucil on a daily basis and have...
  20. NoGlutenCooties
    I agree with kareng - get tested first. Being gluten free for a few days won't make much of a difference - but go back to eating gluten every day until all of the testing is done. Push for an endoscopy. They test for other things that may be going on in addition to Celiac, so if you're not having severe symptoms that would prevent you from sticking with...
  21. NoGlutenCooties
    Probiotics, digestive enzymes, and other supplements are definitely not a scam. There are good brands and better brands and other brands that don't seem to work so well (at least for me) but they are a necessity for many people. Once a Celiac has healed and managed to get their nutrient levels back up to normal they may not need supplements anymore, but...
  22. NoGlutenCooties
    As far as probiotics, digestive enzymes, and supplements there are several different varieties on the market. The most important thing is to make sure they are gluten-free. These are the ones I use: Probiotics: Open Original Shared Link Digestive Enzymes: Open Original Shared Link As far as supplements, it depends on your blood work and what nutrients...
  23. NoGlutenCooties
    Hi and Welcome! Just wanted to add that the importance of being 100% gluten-free cannot be under-stated. Also, probiotics and digestive enzymes can really speed up the healing process. Where in NJ are you? I live in Bergen County. There is a certified gluten-free Italian restaurant in Clifton that is excellent! (they serve regular stuff too -...
  24. NoGlutenCooties
    I don't find it rude at all. It's the rules of their house. Just like I don't allow illegal drugs in my house... and I don't allow anyone to smoke in my house. They don't allow non-Kosher food in their house. Their house. Their rules. I can respect that.
  25. NoGlutenCooties
    So sorry you're having such a tough time! Keep in mind that your body is still healing - both your gut and your leg. It has a lot of work to do and has to prioritize, healing what it needs for survival first. Try to eat foods that are easy to digest - raw veggies can be too rough on your insides at first. Maybe try a Nutribullet? I'm not a fan of regular...
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