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cristiana

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Everything posted by cristiana

  1. cristiana
    Hi justthemum Was there an IgE test as well? My levels have recently trebled, and this coincides with the fairly recent appearance of a nasty rash in my scalp, across my shoulders, back and stomach. It calms down if I use regular moisturisers and when it is bad a topical steroid helps. My doctor now says he thinks I have a type of eczema. I...
  2. cristiana
    Hello alittle and welcome to the forum! Here in the UK where I live a large percentage of IBS sufferers turn out to be coeliacs when they are finally tested. There was a big campaign about it here a few years ago - the number was astonishing, I think it was nearly a third, although I've just read another figure - one in four. Of course, there can...
  3. cristiana
    Hi again Is your son dairy-free at the moment? C.
  4. cristiana
    Hello Karly Welcome to the forum! I am so sorry to hear about what your son has been going through. The answer is whilst coeliac disease doesn't come and go, for some people its symptoms may. Here in the UK our National Health Service website states as follows: "Symptoms of coeliac disease can range from mild to severe, and often come...
  5. cristiana
    PS - Iron supplements? These can really cause constipation - if so, perhaps changing to a gentler type?
  6. cristiana
    Hi Dkorm It's very frustrating. I would give peppermint tea a go, if you haven't already. I read somewhere - sorry, cannot remember where - that it can be just as effective as medication for some people, perhaps more so. I had a lot of discomfort for some years and only finally had a colonoscopy just last January 2020. It was then it was concluded...
  7. cristiana
    Hi Dkorm, Welcome to the forum. Where are you on your diagnosis journey with coeliac disease? Apart from blood tests and possibly an endoscopy, have you had a colonoscopy? I occasionally get really painful bouts of IBS-C and you have my sympathy. It tends to strike worst when I've eaten too many rice cakes, of all things! When things get...
  8. cristiana
    Hell Ivanab Welcome to the forum! I'm based in the UK and I would say the best way forward is to go to your GP for a blood test. If you are not currently gluten free, you will be asked to go on a "gluten challenge" before having the blood test and that will mean eating at least two slices of normal bread for a few weeks (when I was tested it was...
  9. cristiana
    Hi Meg Welcome to the Forum. You are going through such a lot at the moment, I'm so sorry. Some people are very sick indeed at the time of diagnosis, others feel perfectly well and the diagnosis comes as a complete surprise as an incidental finding. Some recover really fast, others it's a slower journey. But it is so good that they have arrived...
  10. cristiana
    Hello Scd Welcome to the forum. If you can get a biopsy that would be the best way forward as not only will it rule in/out DH, you may find you have something else altogether. It would be a shame to have to adopt a special gluten free diet if you didn't have to. I suffer from a mystery rash myself and am thinking of having a biopsy done....
  11. cristiana
    Hi Tim Fellow Brit here. Thank you for your posts - I've been very interested to read the exchanges between you and Trents. My mum had osteoporosis (not sure if she was a coeliac) so I'm trying to be careful, too. I've been offered two Dexa scans since my diagnosis (2013). I guess it varies enormously between different Health Authority...
  12. cristiana
    Hi Krisiti I really do commiserate with you. My diagnosis followed a long period of weird and troubling symptoms. My doctor even mentioned the word "cancer" at one point, so when she told me that it was coeliac disease, and I knew a little about it as I had a friend who had it, I nearly kissed her I was so relieved! My friend had given up gluten...
  13. cristiana
    Don't mention it , Mate (I think that's what you say in Oz?!) Spent a few months there myself years ago and put on a stone - what amazing food you have over there. I had a big stomach at the time - overindulgence being the cause methinks! I've just done some reading for you and definitely ask to be screened for iron, folate and B12 deficiencies...
  14. cristiana
    Well, I've just googled this and it seems that some coeliacs suffer from constipation, so it would therefore make sense that removing gluten would solve things! https://www.verywellhealth.com/can-i-have-celiac-disease-and-constipation-562705
  15. cristiana
    Hi DG and welcome to the forum. I'm so glad you speaking to your doctor to arrange testing, and are aware of the need to reintroduce gluten prior to your tests - make sure you eat enough. (I was told to eat two slices of bread a day before my endoscopy but as I had already had blood test results that were sky high and strongly indicative that I had...
  16. cristiana
    Hi Tone and welcome to the forum As I understand it, villi increase the surface area of the small intestine. The fewer or the more damaged the villi, the less nutrients we absorb. Generally speaking, I've always been led to believe that if we have this issue, we will still keep absorbing some nutrients, just less. (Hopefully someone better qualified...
  17. cristiana
    Hi Marina One can have coeliac disease without the antibodies, and that is why sometimes people pursue testing by endoscopy. A friend of mine had symptoms very suggestive of coeliac disease. Her blood tests were negative but she decided to have an endoscopy as her father was a coeliac. In the end the endoscopy was negative too, so she was diagnosed...
  18. cristiana
    If gastritis is part of your problem (I have it as well as coeliac disease) the pain can really be exacerbated by alcohol. C.
  19. cristiana
    I'm not so sure about that, Scott. Each time I play Cluedo (Clue in America?) it comes up a lot as a possible cause of death, in the Kitchen.
  20. cristiana
    Here in our part of olde Englande I dread to think what the Victorian plumbing around us might contain!
  21. cristiana
    I'm having the second Oxford Zeneca vaccine tomorrow and I'm so grateful. My husband still has to wait for his second one (us Coeliacs get preferential treatment here in the UK!) and then we're not sure but we think teenagers may be given a shot in the autumn. They are already saying vulnerable people will need a booster for the new strains come the autumn...
  22. cristiana
    I agree... and I find it all quite confusing. And I learned on my last trip to France... seems a lifetime away now... that things seem much more relaxed in their labelling. With the larger supermarkets in the UK, such as Sainsbury's or M&S, I find if gluten isn't on the label, it's safe. Any chance the food is processed in a factory alongside nuts...
  23. cristiana
    Yes, I've often wondered what the different phrases mean. One other variation we get in the UK is "free from gluten containing ingredients."
  24. cristiana
    Hi Wendy This is an interesting subject. When in doubt, it is always wise to contact the manufacturer. In more recent times I have started to suffer from what my doctor thinks is eczema, but I'm beginning to think that it gets a lot worse after consuming certain foods. I stay off gluten religiously, but it seems to be when I eat too many manufactured...
  25. cristiana
    I seem to recall having had a similar thing happen to me - I am sure I read in my letter following endoscopy that everything looked normal but was told in the same letter the results from the samples would not be known for a while. I had very high tTG so coeliac was suspected, and of course when the samples came back they showed I had coeliac disease....
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