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cristiana

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Everything posted by cristiana

  1. cristiana
    Some years ago a nurse told me ginger could be beneficial. This article is interesting, see what you make of it.... Open Original Shared Link My dad had arthritis in his knees - I realise a completely different joint - but he did say that keeping weight down really makes a difference.
  2. cristiana
    Thanks so much friends. My GP did tell me that I could keep taking them but I wanted to check with the experts on this board too. The buzzing in my cheek is really playing up now having almost fizzled out (literally!) UNTIL I saw my doctor and she told me she was going to give me a barrage of blood test - B12 is just one of them... She has ordered so many...
  3. cristiana
    All the very best. I completely share your pain - I have on and off hip pain, and really don't like it when the doctor's office rings back! Just for what it is worth, a chiropractor told me my pain is sacroiliac pain even though sometimes it feels like my whole hip is on fire and needs replacing. SI pain is common in celiacs. So maybe that is it. Anyway...
  4. cristiana
    Absolutely nvsmon. I think doctors are quicker to pick this up in men - I know of two men who were dx'd just because of anemia. I think this was why my dx took so long to make... unfortunately in women anemia is often attributed to other factors.
  5. cristiana
    Mine was 9 before, and about 18 months later, 41. This is all from memory so subject to slight error. Thing is, I was able to absorb iron so when I was on some very hefty supplementation it went up very quickly initially. I think to 16 after six weeks. Then I took the pills on a more ad hoc basis because they never really agreed with me. After I admitted...
  6. cristiana
    I'm looking on advice on whether taking a B12 supplement prior to a blood test will distort the true picture by 'artificially' raising the amount in the blood. I have a few tingles and twitches which surface from time to time and am pretty sure that it is when my B12 is low. I have started on methycobalimin 1000mcg sublingual supplements in the last...
  7. cristiana
    Thanks so much Porcelain-dissonance. I have looked it up and it could be what is happening here, too. The attached seems to suggest sometimes these things get better with time - which is what appeared to happen when I had my first big experience of it around the time of DX. In recent months I have taken my eye off the ball really, not compromising on gluten...
  8. cristiana
    That is so interesting... thank you Cyclinglady. My friend's son and a distant aunt had this; I have done some research just now as you suggested and it seems that stress can bring it on, among other things. Interesting... I have been taking B12 for the last two weeks and PN symptoms in my feet and hands are much better, therefore I think I am low...
  9. cristiana
    I would be very interested to hear from any celiacs who have ever experienced tingling in their face. I was dx'd two years ago. About six months prior to my dx I went through an incredibly stressful time while my doctor did blood tests trying to find out what was wrong with me. I developed eye twitching and buzzing in my face which after a couple...
  10. cristiana
    Hi Alan This is one of my favourite resources, it is written for doctors in the UK, so don't be put off the European spelling of Coeliacl. I had migraines and a few other minor issues that I just thought were normal for me until I went on the gluten-free diet and they started disappearing. It is a bit like putting a jigsaw puzzle together which...
  11. cristiana
    I don't understand why gluten-free alternatives aren't fortified in the way that mainstay stuff is, such as bread and cereals, here in the UK. I am sure we need the vitamins more than the average person!
  12. cristiana
    Back on this topic, again. I am thinking about going back to my doctor as I do think I have small fibre neuropathy symptoms returning to the levels I had at DX - MomBTired's posted link has really made me think. I guess I could have blood sugar issues but I am not so sure. In recent months I have stopped supplementing and the tingles and buzzes have...
  13. cristiana
    Hi Alan. Welcome to the Forum. Have you ever had your B12 or iron levels checked? If these are low they can really affect anxiety levels - please get them checked if you haven't. I suffered from severe anxiety about six months before my diagnosis and obvious gastro symptoms started. (racing thoughts, weird physical sensations, waking up with...
  14. cristiana
    So right Laura - I had awful pain with orange juice for so long! But it took me soooo long to figure it out.
  15. cristiana
    Thyroid is a pain from what I've seen people go through. However, the age thing is another factor that just makes things even more difficult to figure out. I often wonder if I had been diagnosed ten years ago as some of my friends were whether it would have been an easier ride. However my overriding problem is being a lifelong hypochondriac, which has...
  16. cristiana
    Hello Gemini Thank you so much. So interesting that you took three years being as strict as that. I guess I should take comfort that my aura migraines are gone, and I haven't got a nervous twitch with my eyes anymore - it seems something is working! To be honest, the tingling only really gets to me when it is somewhere like my face, when it is in my...
  17. cristiana
    Laura - this is all very sound advice. Have you done Fasano's diet? I would love to hear from you or anyone who has. I have been living with a few mild tinglies since about nine months before my DX. They wax and wane, some come back in different places, sometimes start up again because of low blood surgar following exercise, other (for example a new...
  18. cristiana
    Well cocoa is a plant.... I quite like the idea of that!
  19. cristiana
    Thanks so much! RMJ, or anyone else who has given this a try, can you recommend any hot drink alternatives that might be permissible. I'm thinking probably root ginger sliced in water might be OK; mint or lemon in hot water. Is there anything else that might be nearly as interesting as coffee?! I think the coffee thing might be the most difficult for...
  20. cristiana
    Whoops! Sorry.... I think this should be in the diet section?
  21. cristiana
    I have been thinking about trying Fasano's Gluten Contamination Elimination Diet. Just recently I have had some of my symptoms back - tingling, ulcers, stomach pain. It could just be caused by cc or the very rare occasion where I have eaten a mouthful of gluten by mistake, not really sure. Anyway, I am going to see my gastro consultant again but the...
  22. cristiana
    We have this in our family. Seems to get worse in my case when I am low on sugar. And of course when I am anxious. I have noticed an older relative of mine has it and it has got worse with age. But it isn't Parkinsons.
  23. cristiana
    Hello there. I recommend you take a look at the following link to this excellent website - Think Coeliac! I was diagnosed through a blood test and endoscopy and have been through the NHS system but decided to hasten the process by using my private insurance to get the endoscopy over and done with quicker. Open Original Shared Link Your GP should...
  24. cristiana
    A good friend of mine from this site and I are always ping ponging back and forth from the doctors, meanwhile soldiering on… I'm sure we're not the only ones! What is suffering in my case is the house. I try to be there for my children, the family, the school and a few voluntary things that I do but the house is always a mess. In the olden days I...
  25. cristiana
    I attach a link that you might want to look at. https://www.celiac.com/articles/21858/1/Could-that-Canker-Sore-Mean-Celiac-Disease/Page1.html Do you think these lesions sound like what you have? Pre-DX I had two really bad bouts, felt like my mouth had shards of glass in it when it was at its worse. It was blistering, redness and sores. Both bouts...
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