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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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If I were getting married right now, unless I was doing a very simple lunch appetizer thing, I would *not* go gluten-free, because it would be more expensive, and it's just not worth the cost to me when you add it up. I'd go out, have some place special make me my own lunch/dinner and pack it separately for the event, having *whatever* I wanted. ;-)
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ARCHIVED Just Found Out This Monday 4 - 24
tarnalberry replied to RippinRick's topic in Coping with Celiac Disease
Welcome! Is it a blessing? Well, in so far as you can be much healthier and feel much better now that you know what's wrong and can deal with it, yes! In so far as it requires changing your diet to something that not everyone else has to follow, no. But it is what it is, and it certainly isn't the worst thing out there. Will your kids have it? It... -
Eh... Probably because a lot of parents used to use that word that way. My husband was really sensitive about the word being used that way (and I didn't realize it until we talked about it) until he mentioned that his whole family would calling him "a picky eater" in a negative way, saying "you should be such a picky eater" - and his family is by NO means...
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In a sense, we are the picky ones. We won't eat a number of things. We are very choosy over what we will eat, and will turn down a number of things. By most people's definitions, that is picky. Whether we choose to associate the word 'picky' with a negative connotation is our own choice. I learned this lesson the hard way as my husband is a 'picky' eater...
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It sounds like there's a bit of a power struggle going on there, between the two of you on dietary issues - and it's probably quite normal given that you're both being faced with some dietary changes that you don't necessarily really really want to make. (Regardless of whether or not the changes are qualitatively different, it sounds like she doesn't want...
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ARCHIVED Rice Paper Wrappers
tarnalberry replied to ebrbetty's topic in Gluten-Free Recipes & Cooking Tips
yep, I've used them, no you don't have to fry them. you can have them uncooked, baked, or boiled as well as fried. -
ARCHIVED What Do You Do When You Get Glutened?
tarnalberry replied to coco-loco's topic in Coping with Celiac Disease
echinacea, if you've been glutened, may not be a good idea, since you are boosting you're immune system, but it's an immune response gone awry that's the problem. -
ARCHIVED Vaccines?
tarnalberry replied to odcdinah's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That is why efficacy trials require large population studies. Even doctors who whole-hog support vaccines will tell you that there are some people who shouldn't get them. And people who have badly reacted to things they are made from are top of that list. -
ARCHIVED Gelatin
tarnalberry replied to Kiki's topic in Gluten-Free Foods, Products, Shopping & Medications
gelatin is safe for celiacs (though it is not vegan), and coke products are gluten-free. (I don't remember about pepsi, but I think so...) (note that altoids gum has wheat starch... peppermint flavor at least - not all altoids products are safe.) -
ARCHIVED Getting Pregnant With So Many Health Issues?
tarnalberry replied to Green12's topic in Related Issues & Disorders
Not a full semester, only a partial semester. :-) Physics ended up being my major, so I was calculating entirely different probabilities. My whole point here is that it's not a closed system. The inputs are not entirely known, hence you can't actually calculate the full risk. You can get an idea, based on population studies, but even with the ones... -
ARCHIVED Getting Pregnant With So Many Health Issues?
tarnalberry replied to Green12's topic in Related Issues & Disorders
no one can calculate the risk of someone actually getting a disease that is only encouraged by genetics - the calculations that are done are for things that you will get one way or the other. it's 'fuzzy math' at best. I certainly wasn't talking about any doctor calculations, because there is absolutely no way to do any hard calculations on the sorts of... -
I have/had migraines. Didn't get them very often at all until recently - I went gluten free two and a half years ago, and dairy free a year and a half ago. I tried eliminating a number of common (and uncommon) triggers (sleep, foods, caffeine, scents, light, temperature, exercise, etc.); I tried natural remedies (except the icy cold shower method, research...
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ARCHIVED How Do You Tell Others When Eating Out?
tarnalberry replied to cultureslayer's topic in Coping with Celiac Disease
For me, it usually depends on the situation. If there's room/time to negotiate a place, I'll state it upfront, so that I can ask that we look for a thai place or a sushi place or something like that, so I can maximize my chances of finding something safe to eat. In a case like that, I'll say something like "I've got food intolerances that make eating... -
ARCHIVED Getting Pregnant With So Many Health Issues?
tarnalberry replied to Green12's topic in Related Issues & Disorders
The thing is, most genetic diseases (not all), are the sort that means "you have a higher than average risk", but does not mean "you will get this". I have a number of genetic conditions that run in my family, from RA, to mental issues (schizo/bi-polar), blood disorders, allergies (environmental/food), and so on. None of these things is a simple case of... -
ARCHIVED Maltodextrin Question
tarnalberry replied to skipper30's topic in Gluten-Free Foods, Products, Shopping & Medications
In the US, it's gluten-free; made from corn most of the time. -
ARCHIVED Vaccines?
tarnalberry replied to odcdinah's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That sounds like quite a round of negligence on a number of doctor's parts - both for not stopping the vaccines earlier, after the first reaction, and not paying attention when you told them about your reaction to the preservative in the eye drops in the first place. -
Ooo! That's no fun! Good luck with the exercises. Perhaps biofeedback can help with that. (Specifically, I'm thinking about sensors hooked up to measure the electrical output of the muscles along your back that display the output on a computer that helps you learn to recognize tight muscles that you previously weren't able to consciously feel (because...
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actually, that sounds like food poisoning....
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ARCHIVED For You Law Savvy People Out There
tarnalberry replied to NicoleAJ's topic in Coping with Celiac Disease
in most cases, our employers don't supply us with food, so it's kinda a moot point at work in many situations (not all, I know, and in those other situations, employers may have to make some accomodations). if we stay on the gluten-free diet, we're pretty much like anyone else unless we're dealing with additional medical problems, which usually end up needing... -
ARCHIVED Vaccines?
tarnalberry replied to odcdinah's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yep, I got the pneumovax after being diagnosed (I also have asthma, which puts me on the 'consider for this vaccine' list. I got a *bad* reaction to it (swelling, pain, redness, heat), though nothing bad enough to send me to the ER - just a call in to the doctor and a phone discussion with her on it, but it lasts about a decade, fortunately. The theory... -
ARCHIVED Almod Milk
tarnalberry replied to lisaemu's topic in Gluten-Free Foods, Products, Shopping & Medications
I too use Almond Breeze, but since it has soy, you may want to look at recipes for making your own almond milk. (Google to the rescue!) -
ARCHIVED "normal" People Just Don't Know How Good They Have It!
tarnalberry replied to cgilsing's topic in Coping with Celiac Disease
Oooo... I wish I could have cool whip. Nah, I know what you mean. There are things we want to have the other people can have, and are shocked when they whine about things we consider pretty minor. That's what we've got each other for. :-) -
ARCHIVED For You Law Savvy People Out There
tarnalberry replied to NicoleAJ's topic in Coping with Celiac Disease
Unless a well controlled celiac disease would significantly interfere with the daily requirements of your job, it should not come up. If you are to be a pastry chef, it may play a role, and is then worth talking to your potential employer about. (Employers actually can't ask you most questions about your status on most things - could lead to discrimination... -
ARCHIVED Gluten And Dairy Free Whipped Topping?
tarnalberry replied to momandgirls's topic in Gluten-Free Recipes & Cooking Tips
I think there's something called "Hip Wip"(?) available that's dairy/gluten free that is like that. Other's on the board have tried the product I'm thinking of and have mentioned it and can tell you more. -
ARCHIVED Chilli Peppers
tarnalberry replied to awesomeame's topic in Gluten-Free Recipes & Cooking Tips
lol... it definitely won't taste the same, but try staring with one tsp, and add more at the end, on individual plates, to taste, afterwards.