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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Now That I'Ve Got The Soy Sauce, What About Sushi?
tarnalberry replied to David in Seattle's topic in Gluten-Free Foods, Products, Shopping & Medications
My friend loves I Love Sushi in Bellevue. They have a lot of non-sushi dishes and vegetarian options. Meh, I wasn't that impressed. Fairly moderate size standard menu without a whole lot of creativity. We actually went out to sushi tonight - I had a roll that was sun dried tomato and avocado, one that was broiled salmon and lemon zest, and one that... -
ARCHIVED Nightly Sciatic Nerve Pain
tarnalberry replied to YoloGx's topic in Coping with Celiac Disease
Chances are - and if your chiro is good, he/she can help you determine if this is the case - your flexibility may not be helping the issue. Well, it helps, but it has the downside - too much mobility. With the damage to the SI joint and L5, it could be even more tricky, since joints that are already hypermobile are also not whole. You talk about a... -
ARCHIVED Is It Possible To Have False Pos Serology And Biopsy?
tarnalberry replied to Streetlegal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What all have you changed in your diet? If you got rid of gluten, you're probably eating more of something. Are you still eating oats (many celiacs cannot tolerate them)? Are you eating more corn or rice? Are you eating more dairy or soy? What else changed? (Something had to - you don't take out a major source of calories and add *nothing* back in.... -
ARCHIVED I Need Help!
tarnalberry replied to reeetz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There's no hard and fast rule for how long it takes on the gluten free diet for antibody levels to come down. Is six weeks long enough? It's certainly possible. Not for everyone, but for some. If you feel better gluten free, why go back to feeling bad? -
ARCHIVED Nightly Sciatic Nerve Pain
tarnalberry replied to YoloGx's topic in Coping with Celiac Disease
Some yoga poses will exacerbate sciatica, so you may need to work with someone who is good with modifications (a yoga therapist if you can find one). Exactly what exacerbates it will depend on what the problem is. Tight glutes/external rotators? Continuing compression of a disc exacerbated by poor posture? Different leg lengths (OR SI/pelvic length on... -
ARCHIVED Tricks To Staying Gluten Free In The Economy?
tarnalberry replied to columbakss's topic in Coping with Celiac Disease
All these. Fruit juice is a special treat around the house here. Like dessert. Baking soda is an excellent cleaner as well - great for the stovetop. -
ARCHIVED Now That I'Ve Got The Soy Sauce, What About Sushi?
tarnalberry replied to David in Seattle's topic in Gluten-Free Foods, Products, Shopping & Medications
Ditto what Jestgar said. Assume that anything "crab" is fake (and has gluten), anything with sauce has soy sauce (and hence gluten), anything marinated has soy sauce (and hence gluten), and anything fried (tempura) has wheat. If you're ever in Bellevue, look up Rolls & Rolls Sushi Plus (across the street from the downtown Bellevue library). They... -
ARCHIVED Elevated Cholesterol And Celiac Disease
tarnalberry replied to cblack's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It could be related, but doesn't have to be. My cholesterol has always been... let's just say enviable. I'm only 31, so perhaps that will be changing in the years ahead, but I've never had much trouble with it. My husband's family has much more difficulty with maintaining good cholesterol numbers, but there's no particularly good reason to think his father... -
ARCHIVED Tricks To Staying Gluten Free In The Economy?
tarnalberry replied to columbakss's topic in Coping with Celiac Disease
Adjust your regular, normally gluten free foods, to be cheaper. Beans and rice as a "filler" aren't expensive. Meat and produce goes along with it, but as a compliment. Find recipes that allow you to make the most use out of the cheaper produce - vegetable stews that use root veggies, bean soups with onions/carrots, etc. (Literally, next time you... -
ARCHIVED Going About Things The Wrong Way?
tarnalberry replied to coconut12's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Enterolabs says they can detect antibodies for a little while after going gluten free. But you already have a very positive test - dietary response. You can, if you want, choose to stay gluten free based just on that. Enterolab doesn't diagnose celiac disease (just gluten intolerance) because it's not an intestinal biopsy. But the diet requires no prescription... -
ARCHIVED How To Handle Being A gluten-free Wedding Guest
tarnalberry replied to GFLindsey's topic in Coping with Celiac Disease
I tell the guests that I won't be eating any of the food (they are using the rsvp cards to get a headcount for food anyway) and eat before and bring my own food. -
Going dairy free was far harder than going gluten free for me. Really, it seems like this big scary change, but, IMHO, that because most of us get ourselves stuck in this rut of eating the same things over and over and don't put creativity into our cooking. (That's not meant to be finger pointing at anyone - heavens knows that I've done it, and do it on...
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The blood tests are looking for an immune response to gluten. If there is no gluten, there cannot be an immune response to it. If you want to know if you have an immune response to gluten, you have to be eating it for the tests to be of any value. Seven days may or may not make a difference - problem is, you can't know whether or not it does.
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ARCHIVED Advice
tarnalberry replied to JBaby's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's also worth noting that you found a number of other issues to work with in addition to the gluten intolerance. This won't be true of EVERYBODY. For many, yes, it's worthwhile to investigate other things, and for many people learning more about their food and their diet is helpful. It doesn't always require a dietitian, but sometimes it does. (Good... -
ARCHIVED Under Eye Twitching...
tarnalberry replied to AmandaD's topic in Coping with Celiac Disease
They can most certainly be caused by stress and eye strain. Getting enough sleep and enough time off the computer is important for me. Even if I'm getting enough potassium (and other assorted minerals), I get them from time to time. (Less so now that I'm not working at my office job. ) They'd last for two to five days and get annoying as all get out... -
ARCHIVED Crazy? Or Actually Gluten Intolerant?
tarnalberry replied to LAdams's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
None of your tests for celiac were worth anything - you were either gluten free, gluten light, or hadn't been back on gluten long enough to make a difference. (Two days is CERTAINLY not enough time to show up on a biopsy - even four days isn't. It's three slices of bread a day (or the equivalent) for three months.) What struck me about your description... -
ARCHIVED Gluten Free In Seattle
tarnalberry replied to carrieanna76's topic in Traveling with Celiac Disease
Yelp has a gluten free section that can help you find places - but check the reviews to see what people have actually said about them, of course. Flying Apron bakery is in Fremont. Chaco Canyon Cafe is in the U District, not too far away. Cafe Flora is just south of the arboretum, and pricey, but I hear it's quite good. Pizza Pi in the U District... -
ARCHIVED Celiac And Miscarriage?
tarnalberry replied to renoyogamom's topic in Related Issues & Disorders
I'm sorry for your loss. It's impossible to say whether or not the timing of your gluten ingestion and losses is coincidence - a lot would depend on how quickly your intestines are damaged (if you are celiac) and how quickly they heal. Since SO MANY pregnancies end in miscarriage due to other reasons, there's just no way to know, for sure (certainly... -
ARCHIVED Don'T Want To Biopsy
tarnalberry replied to StephanieL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As you can see - there are reasons for and reasons against. It's a personal decision, and I would encourage you to give it due consideration, but also realize that it doesn't HAVE to be done in order to be gluten free. Good luck navigating this difficult decision. -
ARCHIVED Can Bloating Lead To Damaged Muscles/Tendons?
tarnalberry replied to stillight's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
IF there was a significant postural change, the strength of your muscles on opposite sides is going to be different. One side may be stronger (from holding you bent sideways), the other weaker (from being overstretched and underused). It's totally expected that your soreness wouldn't be symmetrical if you've been living asymetrically for a while. The... -
ARCHIVED Blood Test Cost
tarnalberry replied to Don in Dallas's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No way to know if that's reasonable or not unless you know the full set of tests ordered. -
ARCHIVED Should I Change My Diet Before I See The Doc?
tarnalberry replied to chasing4's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
ditto everything ravenwood said. spot on. -
ARCHIVED Question Especially For Parents
tarnalberry replied to brianw's topic in Coping with Celiac Disease
Land mines is about how I feel on the issue. We're about to have a baby, and our plan, at the moment, is to keep the house primarily gluten free. (My husband has a little bit of gluten stuff - granola bars, instant oatmeal, cereal - that he can keep. We may or may not keep his dedicated cutting board out while the kid is in "run around the house with dirty... -
ARCHIVED Camping Food- What Kind Of Protein?
tarnalberry replied to munchkinette's topic in Traveling with Celiac Disease
I make my chili rather thick, and there are teflon sheets you can put on trays (or use saran wrap or wax paper) so nothing leaks through if you like. It takes about two days to dry, but reconstitutes fabulously. (I tend to do "freezer bag cooking". Boil water in your stove, pour into freezer ziploc bag, insulate (with fleece or what have you) for 20 minutes... -
ARCHIVED How Careful Do I Have To Be?
tarnalberry replied to Kategrad7's topic in Coping with Celiac Disease
It's quite important. Not all celiacs have strong symptoms, but they are still damaging their intestines, increasing inflammation in the digestive system, and increasing their risk for long term complications. Cross contamination is a definite concern for celiacs. There are some things you can share in a kitchen - stainless steel pots and pans that are...