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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    Sorry I didn't answer your questions yet. I got glutened in a restaurant in Mexico last Thursday night, and then in the airport on Sunday, and I am still feeling rather crappy. The problem with nightshades (which includes potatoes, tomatoes, peppers and eggplant) is, that they are high in both lectins and salicylates, plus they have something else (don...
  2. Ursa Major
    Thumper, I wished I could come over and help you out. You are having the 'diet blues' right now, and everything seems impossible. But you will get better, be patient. It takes a LOT longer than three weeks to feel 'good as new'. It took you years to get really sick, and it will take at least a year to be really well. Instead of 'real' milk, people here...
  3. Ursa Major
    Hi Carolyn and welcome to these boards. It sure sounds like you've had gluten intolerance all along, but with the divorce stress it turned into full-blown celiac disease. You realize that you will need to keep eating lots of gluten in order to get positive tests, right? Because if you are trying the gluten-free diet before testing, you'll more likely...
  4. Ursa Major
    Congratulations, that is exciting news!
  5. Ursa Major
    I know some of you are probably waiting to hear a report on how Mexico was, and how I fared with my diet there. Fortunately we stayed with Canadian friends, who have been transferred to Queretaro (city) in the province Queretaro. Since they are a couple our age (early fifties) and their grown kids are all back in Canada, it was much easier to be...
  6. Ursa Major
    Thanks, everybody. One consolation is, that my oldest daughter finally understands about cc! I told her what her sister does, and asked her if she believes in cc. And she said, "When J... comes home from work and has eaten gluten, he has to go and brush his teeth and rinse his mouth before he is allowed to kiss me.......... does that answer your question...
  7. Ursa Major
    What your doctor is saying is, that you should make sure her villi are completely destroyed by loading her up with gluten, just to get a 'more' positive biopsy. That is crazy. I agree with ravenwoodglass that it would be much better to eliminate gluten instead. If she gets better, you will have your answer. And you will have helped her heal, instead of...
  8. Ursa Major
    Oh yes, I get everything-that-moves sick . I am in Mexico, and the way here was torture. First a 4 1/2 hour plane ride with turbulences in between, and turbulences on the way down. I could hardly walk after getting off the plane. And then we had a three hour bus ride across fairly rough roads after that. Needless to say, I wasn't so well for two days. And...
  9. Ursa Major
    Scotty, I am in Mexico right now and don't have my bookmarks, of course. I will answer your question with links to follow when I am back home (we are flying tomorrow).
  10. Ursa Major
    Leg pains can have many causes. My grandson (who is also gluten and nightshade intolerant) gets dreadful leg pains from red food dye. So, it can be caused by things other than gluten. I had 'growing pains' for over fifty years, until I went off gluten, lectins and salicylates. I like Rice Guy's suggestions for extra magnesium and vitamin B12 (a B...
  11. Ursa Major
    Thank you guys! Actually, where we are going it isn't hot in the winter. At night it is supposed to go down to 5 degrees Celsius (41 degree Fahrenheit), and the warmest time of the day will be anywhere from 17 degrees C (62.6 degrees F) to 25 degrees (77 degrees F). And it isn't humid, either (about 62% humidity). Mind you, I suffer in humid heat and these...
  12. Ursa Major
    Just in case somebody wonders where I am, my husband and I are leaving very early tomorrow morning (Saturday, Feb. 16th) to go to Queretaro, Mexico until Sunday, Feb. 26th. A friend of ours was transferred to Mexico for five years last year. He is an engineer working for Michelin, and the plant he was working at was shut down. It is hard to find good...
  13. Ursa Major
    You're right. It irks me that at our store they have a lot of the Bob's Red Mill products. I would like it if they'd have the gluten-free ones on one side, and the gluten ones on the other. But of course, they couldn't care less. The gluten and gluten-free ones are right side by side and above or below each other. Which shows that while the store managers...
  14. Ursa Major
    It could be corn or soy. Or dairy after all. Or maybe tapioca or sorghum, who knows? I am afraid you'll have to play detective and use the ingredients from what you made somehow one at a time to see if you react. It doesn't sound like it is gluten. So, it must be something else. Pasta or rice is rice. I guess you aren't intolerant to rice. But those...
  15. Ursa Major
    Hi Dibbles and welcome to these boards from another 'hypochondriac'. I finally figured out I was sick because of gluten when I was 52, two years ago. You are right, forget about doctors, be your own doctor and get well. You have figured out that you shouldn't have anything with wheat, rye or barley. Good for you. In order to really heal you will likely...
  16. Ursa Major
    Apparently you are going through withdrawal. Be glad you are only feeling spacey, some people feel like they are going off hard drugs! Gluten acts like an opioid on the brains of people who are intolerant. Your brain isn't happy with you 'depriving' it of its favourite drug. I am glad you are otherwise feeling so much better. I am sure the spacey feeling...
  17. Ursa Major
    I had my hip joints and my hands x-rayed a few years ago to check for arthritis, as all my joints were so very painful. Now my joints only ache if I eat gluten, rice or eggs. Especially gluten and eggs are bad. But rice makes my finger joints swell to where it feels like I can't bend them at all. You need to print out some evidence for your doctor that...
  18. Ursa Major
    Who does most of the cooking? When we have guests, everything that is served is gluten-free. Nobody would ever know the difference. I've even made gluten-free Black Forest Cake for visitors, and they thought it was the best dessert they'd ever tasted. You can thicken gravy with cornstarch or buckwheat flour. Potatoes or rice, meat and vegetables are gluten...
  19. Ursa Major
    You absolutely CAN do the enterolab tests, if you can afford to pay for overnight courier to ship the samples back to them. They will send their kit all over the world, and give you the results by e-mail.
  20. Ursa Major
    I will pray for your dad also. I hope everything turns out well, and he really gets to go home tomorrow.
  21. Ursa Major
    You have been through an awful lot. It is true that celiac disease could be causing most, if not all of your symptoms. It attacks the brain and nervous system as well as the digestive system and can certainly cause all those pains as well. But the heart attack? I don't know. Have you been tested for Lyme disease? The only test that is really valid...
  22. Ursa Major
    Candida is one possibility. Another is that you are casein intolerant and actually need to eliminate ALL dairy, and possibly soy as well. You also may have Lyme disease. Anyway, see if your doctor will test you for candida. If you are officially diagnosed with candida, then it won't be your choice to be on the candida diet, but an obvious medical necessity...
  23. Ursa Major
    Unfortunately, even most GIs are so ignorant about celiac disease that I wouldn't be so sure that his answer will be true, either. After two months gluten-free, you'd likely need to eat the equivalent of four slices of bread a day for three to six MONTHS to even have a chance of the biopsy being valid (and even then it could end up being a false negative...
  24. Ursa Major
    It sounds like your older daughter is addicted to gluten, which is what happens when you are intolerant to it. It is true that whatever you crave is usually what you are allergic/intolerant to. The testing isn't reliable in children under six, and even after that (including for adults) it isn't all that reliable. Many people get false negatives and are...
  25. Ursa Major
    All Kellogs cereals have barley malt in them and are not safe. But some corn flakes might be fine. Somebody here will likely know the answer.
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