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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995
Everything posted by Ursa Major
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ARCHIVED Need Your Help!
Ursa Major replied to stef-the-kicking-cuty's topic in Gluten-Free Recipes & Cooking Tips
I would NEVER have suspected barley being in lentils! You shouldn't have eaten them, I hope you won't get a delayed reaction. I think I need to cook some good old-fashioned German sweet and sour lentils one of these days (thickened with light buckwheat rather than wheat, of course), I haven't done that in ages. It can be my lentil-trial, to see if maybe... -
In the fall of 2005 my vitamin D level was 24 (50 to 150 is normal, 125 is optimal). I've been taking Carlson's cod liver oil (two tablespoons a day) and at my last checkup it had gone to 150. You don't want it to go past that, so I've cut back now. Amy, the BAD sun at noon is not bad at all, the morning and afternoon sun won't do a thing for your vitamin...
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ARCHIVED Vitamin D Level Way Low ~scared
Ursa Major replied to chgomom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Normal vitamin D levels are between 50 and 150, not 20 to 60. Optimal is about 125 (despite what some doctors and labs tell you). My vitamin D level was 24 in the fall of 2005. I've been supplementing with cod liver oil ever since (I use the Carlson brand, which is lemon flavoured and the best brand on the market), and when tested last, my level had gone... -
Jenny, I am sorry you are still feeling bad. Unfortunately, it can take up to two weeks to feel better. I hope it will be a lot less for you. Still, it was a good idea to try gluten, because now you know that you are definitely intolerant to it, forget about ignorant doctors.
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ARCHIVED P.f. Chang's - Princeton, Nj
Ursa Major replied to A-Holovacs's topic in Gluten-Free Restaurants
That sounds just fabulous, I am glad you had such a good time. -
ARCHIVED Really Helpful Online Analysis!
Ursa Major replied to Anonymousgurl's topic in Related Issues & Disorders
The only multivitamin I've tried that works for me is the one from Open Original Shared Link. They sell a hypoallergenic multi called 'Super Nu-Thera', which I take. What I love about them is, that you can buy a trial supply of 30 pills for $3.99 to see if you can tolerate them, before you buy their large sizes. I tried it out first, and then bought the ... -
Debbie is right. This is normally what breast milk looks like. Alison, I guess it worked for me, because my milk was different. It was so rich, that the yellow cream was floating on top when expressing it. It never looked bluish and thin. My babies slept through the night right from the start, and I'd have to wake them because I was exploding. And my daughter...
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ARCHIVED Really Helpful Online Analysis!
Ursa Major replied to Anonymousgurl's topic in Related Issues & Disorders
Since they don't even ask what kinds of supplements people are taking, they are totally off on their estimates. Plus, they don't account for food intolerances at all. I know full well that I don't get enough of certain nutrients from my limited diet. That is why I supplement, under the care of a naturopathic doctor. Meaning, I am taking the best (and... -
ARCHIVED Ina Garten's Gluten Free Whole Grain Bread
Ursa Major replied to NicoleAJ's topic in Gluten-Free Foods, Products, Shopping & Medications
Nicole, arrowroot would not be in anything that says 'spices'. I had a terrible reaction to a food with 'spices' before, too, landing me in the hospital. It took a lot of effort to find out what those were. My store called the manufacturer, and they told her that those spices contained no common allergens. So, I called them myself, same result. I told them... -
Debbie is right with what she says. Both my oldest daughters feed only from one breast at each feeding. When I was breastfeeding I was told to switch half way through. Whenever the supply isn't there any more for baby's demand, he/she will want to be fed about every two hours for a couple of days (apparently starving, but don't be deceived), until the...
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ARCHIVED Ina Garten's Gluten Free Whole Grain Bread
Ursa Major replied to NicoleAJ's topic in Gluten-Free Foods, Products, Shopping & Medications
Nicole, you're being illogical. You are saying it is worth the risk if it tastes good, but not worth the risk if it doesn't? Since you don't know if arrowroot causes you an anaphylactic reaction, you ought to get tested for it. Anaphylactic reactions are caused by severe allergies, not intolerances. If arrowroot is the problem, a simple scratch test, while... -
ARCHIVED Quick Question For Anyone
Ursa Major replied to GraceE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Grace, I never felt well. But I certainly had days and even weeks were I felt okay. And all those years before 2005 I never had chronic diarrhea, my intestinal issues were intermittent. And there is no such thing as severe IBS. If your bowel is irritated, there is a reason for it. To say you have IBS is saying that your symptoms are your disease. The symptoms... -
ARCHIVED Really Helpful Online Analysis!
Ursa Major replied to Anonymousgurl's topic in Related Issues & Disorders
I did it, and they WANT TO KILL ME with their advice on what I should eat! -
ARCHIVED Celiac - And Small...does This Go Together?
Ursa Major replied to alison h's topic in Parents, Friends and Loved Ones of Celiacs
Yesterday I came across an article that talks about vitamin D (which actually isn't a vitamin at all, but a steroid hormone precursor). And in children, a vitamin D deficiency can lead to stunted growth! Here is the link to the article: Open Original Shared Link So, I suggest for all parents with very short kids, due to celiac disease or otherwise, to... -
ARCHIVED First Time Traveling- Who Do I Talk To At The Hotel?
Ursa Major replied to alamaz's topic in Traveling with Celiac Disease
Amy, we have asked if we could have a room with a small kitchen a couple of times. It did cost a little more, but we had a stove, fridge, microwave and dishes. But if that isn't possible, I think it perfectly reasonable to ask for at least a small fridge and microwave. In fact, most rooms have a fridge with snack food (that costs an arm and a leg to take... -
ARCHIVED Aspergers Support Thread
Ursa Major replied to 2kids4me's topic in Introduce Yourself / Share Stuff
I just did that Aspie Quiz, and got on the Aspie score 170, and the NT score 22. But of course I knew that already. I still haven't been able to locate the movie to watch (and after trying for a while I forgot). Steve, I am almost glad I am NOT a math whiz (I believe I have dyscalculia ). But I was made to perform my language skills in school... -
Unless you've cooked both the pastry and the vegetables directly on the grill (which of course you don't), you should be safe.
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ARCHIVED 1.5 Wks Of Depression From Gluten?
Ursa Major replied to LittleZoe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, it is very possible for you to suffer depression up to two weeks after eating gluten, and the same goes for the fatigue. For some people it takes even longer to shake the effects of gluten exposure. I am sorry you aren't feeling good. But it taught you a valuable lesson. It is much better to speak to a manager, not just a waitress when going to a... -
ARCHIVED Help! I'm On The Verge Of A Nervous Breakdown!
Ursa Major replied to Cam's Mom's topic in Parents, Friends and Loved Ones of Celiacs
If I remember right, the tTg indicates an immune reaction to SOMETHING, while the other tests are more specific to celiac disease. So, she obviously has celiac disease, no question about that. But have you considered that maybe she could be intolerant to dairy as well, and that the numbers won't go down until you also eliminate all dairy? Personally, that... -
ARCHIVED False Negative Biopsy?
Ursa Major replied to JamiD's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You appear to have come across one of the rare doctors who actually knows what they are doing when it comes to celiac disease. Even most GI doctors are woefully ignorant on celiac disease. You must feel so relieved! I agree, you need to have your son tested immediately. But you should also have your other kids tested, since celiac disease is often silent... -
Goofy, I agree, there is no good reason to wait for months to have your kids tested. They both sound like they need to be on the gluten-free diet as soon as possible. If it takes months for even testing, one of them may turn deathly ill by then. You simply can't wait. Demand that your doctor do the bloodwork immediately, and for both of your children...
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ARCHIVED Not Pregnant = Lactose Intolerant
Ursa Major replied to tracey*'s topic in Food Intolerance & Leaky Gut
Your symptoms may have just changed and you don't recognize them. If you've always been lactose intolerant I wouldn't consider it safe for you or the baby to suddenly start consuming dairy now. And it is a complete myth that you get calcium from milk. The pasteurization process destroys the enzymes needed to utilize the calcium in milk for the human bodies... -
ARCHIVED 18 Month Old W/celiac's
Ursa Major replied to ana-myceliacbaby's topic in Parents, Friends and Loved Ones of Celiacs
Hi Casandra, and welcome to this board. As FeedIndy pointed out, there is LOTS of gluten-free food that's easy to get. All meat, fruit, vegetables, are gluten-free. It would be wise to eliminate dairy from your daughter's diet for at least six months, as she may not get better otherwise. Right now her villi are too damaged to produce the enzyme lactase... -
ARCHIVED Newbie-43 With Osteoporosis
Ursa Major replied to Suzysliw's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Susan, it is definitely possible that you may have celiac disease. If you do, it is likely that you are deficient in vitamin D. It is needed for your body to absorb calcium and magnesium, hence the osteoporosis. What you need is to be tested for celiac disease, as well as the tests he wanted to do first. On the other hand, a lot of Americans are deficient... -
ARCHIVED Newbie-43 With Osteoporosis
Ursa Major replied to Suzysliw's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You know, Larry, what you say here is insulting, to say the least. Breast milk is the best food for babies. Milk from cows is the best thing for calves. It is terrible for humans. The food pyramid is the biggest joke in history, and the cause of the high rates of obesity in America. If you believe it, you would need to eat an awful lot of grain each day...