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Latest Celiac Disease News & Research:
Everything posted by Rusla
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ARCHIVED Emotional Reaction From Gluten? Do You Get This?
Rusla replied to tiffjake's topic in Coping with Celiac Disease
I knew what you meant. Tiffany, let us know that you are okay. Because we are worried as you are so upset. There are lots of things that are probably upsetting you along with gluten, weather, your husband not being there and some of the left overs from the other thread.So, just try to wash that other thread out of your head. What do you... -
ARCHIVED Emotional Reaction From Gluten? Do You Get This?
Rusla replied to tiffjake's topic in Coping with Celiac Disease
Let's see if we can get being "glutened" and "delayed lunar response" accepted in a court of law for murder. Kind of like temporary insanity. Alright girls let's go run over dear John with the John Deere. Remember the gluten made me do it along with delayed lunar response. -
ARCHIVED Emotional Reaction From Gluten? Do You Get This?
Rusla replied to tiffjake's topic in Coping with Celiac Disease
Actually when I am glutened I am so sick I can't be upset. However, for you it could have been a combination of gluten, weather, and all the other stuff. The things that make me more than emotional, even violent are certain allergies and one is to cigarette/cigar smoke. Not only do they make it so I can't breath but cigar and certain cigarette smoke, just... -
ARCHIVED Megan's First Birthday
Rusla replied to TCA's topic in Parents, Friends and Loved Ones of Celiacs
So happy she had a great birthday and she will have many more to come. Ones where she will be able to eat her gluten-free cake. -
ARCHIVED Thank You For The Warm Welcome
Rusla replied to bev40's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome Bev, if I haven't already done so. I have the worst fingernails in the world and always have they split and tear off below the quick. They have always been that way ever since I was a child, except they are even worse now. -
ARCHIVED Cross Contamination
Rusla replied to Annie/NM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This is how strict I am, because a small crumb I can't see will make me sick. I clean everything off at work that I have to touch with alcohol wipes. I also wear vinyl gloves when I do it. I clean everything phone, mouse, desk, keyboard absolutely everything. I go t the bathroom and even when I go to open the door I do it with a paper towel. -
ARCHIVED Gluten-free, Dairy-free, Soy-free Butter Alternative?
Rusla replied to Mango04's topic in Gluten-Free Foods, Products, Shopping & Medications
Earth Balance has always had it since I have gotten it. -
ARCHIVED Press Reporting -- Soy-based Foods Bad For Us!
Rusla replied to ms-sillyak-screwed's topic in Publications & Publicity
Soy is not bad for you unless you are allergic or have a sensitivity to it. Regular soy sauce is primarily salt and gluten. I love tofu but hate soy milk. If anyone thinks anything is a miracle cure for anything they are not all there. I know what is bad for me and what is not. Just like everyone else knows what is bad for them and what is not or what they... -
ARCHIVED Can Someone Have Dh And Not Have Celiac Disease?
Rusla replied to ktneal's topic in Dermatitis Herpetiformis
I believe it can look many different ways. Mine is an itchy and sometime sore but mostly itchy blisters. They look almost like white pimples at first but they have clear fluid in them. I started to get them in the corners of my mouth when glutened and down below my bottom lip, now they go up to my nose and under and on top of my left eyelid. They are far... -
ARCHIVED If You Are A Vegetarian.... Why?
Rusla replied to Jnkmnky's topic in Introduce Yourself / Share Stuff
I don't do dairy because dairy and I are not friends. But I do goat cheese, feta, mozzerella and cheddar. I love goat cheese it is the best. -
ARCHIVED Does Everyone Feel Sick Right Away?
Rusla replied to gointribal's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If I have been glutened which is an immediate injested amount of any quantity, I know within five minutes. If it is do to other glutenings and not directly eaten but injested through crubms etc. It can take an hour or two, but the dh can show up within a half hour. -
I was fine earlier at work, I have had no gluten today for sure. However, as three people were off today with a virus, I know that is what I have. It too was not the same as glutening. I would say you and I both have a virus now. If I have been glutened I know within 5 minutes. I have spent most of the day in the bathroom and it is not the cramps of gluten...
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Welcome to group Greysaber. Remember to be truly wheat/gluten-free you need to make sure all skin and hair care products don't have those substances in them also. Gluten hides in cracks and holes and lives in peoples minds. Because it lives in our minds, wehave brain fog. It also hides in many places you would not suspect it of being.
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I am so happy you finally found a doctor with a brain.
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ARCHIVED Recent Diagnosis - Symptom Question
Rusla replied to laluka's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the group. Being light headed is a symptom. Also you were low in ferritin which is a sign of that also. I suggest trying the sublingual B-12, you will find it in health food stores. It goes directly into the blood stream. I could not absorb normal vitamin B-12 but the doctor at that time was not bright enough to figure out why. -
ARCHIVED Response From Garnier Fructis
Rusla replied to Moongirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Matodextrin and dextrins are fine. The way it is worded is a little odd. However it says; " This list may also be used by the celiac patient to identify gluten-containing ingredients. This list gives the standard industry names for ingredients as found in the International Cosmetic Ingredient Dictionary." It doesn't mean all of them are grain carriers. -
I agree on having your thyroid check. Make sure they check antibodies and have an ultrasound too. That is because the TSH can read normal when your thyroid isn't. I would lose handfuls due to anemia, thyroid and this. Now I don't lose so much hair but then, I have just eliminated over a foot of hair.
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ARCHIVED If You Are A Vegetarian.... Why?
Rusla replied to Jnkmnky's topic in Introduce Yourself / Share Stuff
It is strange but my brother who used to call my sister and me the green sisters from hell. Now he declares he will not eat red meat because it takes up too much space. So, most of my family only eat seafood or poultry. As for protein, beans and tofu are excellent sources of protein. I suffered from anemia without being vegetarian. I once had a book... -
ARCHIVED If You Are A Vegetarian.... Why?
Rusla replied to Jnkmnky's topic in Introduce Yourself / Share Stuff
My granddaughter told me two years ago when she was six that she was Vegetarian. My son confirmed that she does not like meat and on very rare occasions will eat chicken or turkey but she prefers vegetables. Her brother prefers meat like my son. -
ARCHIVED The Best Advice Or Info About celiac disease You Have Gotten From
Rusla replied to Jnkmnky's topic in Coping with Celiac Disease
You are so right Lollie and gang. The first time I tried to go gluten-free was an abysmal failure. Then, I did not know about this forum or all of you. Without all of you and your support I would have been nowhere.As the song "If Not For You" says: "I'd be lost if not for you." In my first month on here I learned more than I could have ever learned from a... -
ARCHIVED If You Are A Vegetarian.... Why?
Rusla replied to Jnkmnky's topic in Introduce Yourself / Share Stuff
I like some others, have been toying with the idea of vegetarianism, for the last 33 years. Yeah, I know that is a long time to sit on the fence but when my son was growing up he did not like vegetables that much and still doesn't. So, the meat was for him, really. I could never be a farmer like my cousins unless it was a grain farm. I could not kill anything... -
ARCHIVED A Method To Prevent Your Credit Card Number
Rusla replied to Lynxear's topic in Gluten-Free Foods, Products, Shopping & Medications
Vincent-- that once use number has to be an American thing, it is certainly not in Canada. Thanks for the advice Lynxear. I use Safari because I primarily use a Mac. I refuse to download any microsoft things onto my computer. The only program on here that is microsoft is word and that is because that is what publishers prefer. -
ARCHIVED The Best Advice Or Info About celiac disease You Have Gotten From
Rusla replied to Jnkmnky's topic in Coping with Celiac Disease
Skoki-mom: told me to go join the Celiac Association in Calgary, great advice. And so many on here informed me that it is not just what goes into your body but on your body has to be gluten-free. Everyone on here has something to bring to the table, experience, trials and tribulations and trial by error. It is great to get such help and greater to give... -
Ovens differ in temperature but if you are a different altitude things will cook slower or faster. Maybe that is why the bottom came out mushy. I would have done the knife test on it, I do it on everything baked.
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When I first went gluten-free I had a dream that I was being held hostage by people who had copious amounts of gluten. The had me tied to a chair and were forcing cakes, cookies, pies, and bread into my mouth. I kept trying to spit it out while I was crying.