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tessa25

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by tessa25

  1. tessa25
    malnutrition
  2. tessa25
    I have celiac and never had an obvious reaction to gluten. The small intestine is damaged and I am prone to tendon injury because of it. It sounds like your main symptom of celiac is vitamin deficiencies. You don't have to get sick from eating gluten for damage to be happening in your intestines. Instead of asking your friends to eat gluten free...
  3. tessa25
    I was anemic when I was in my teens. I used to get dizzy and almost blackout. Never occured to me to tell my mom. Lol. She found out when I got up from a chair and promptly fell to the floor. Iron pills fixed me right up. Have your doc order a blood test of your iron levels.
  4. tessa25
    Lol. I always liked having one Nestle Drumstick every day. And after my liquid diet is over I will switch to one Haagen Daz bar every day. But at the moment I am living on mashed potato soup, vanilla ice cream and chocolate drink along with gummy vitamins, D3 and magnesium oxide. These are all I can have and have my blood test numbers go down. I have tried...
  5. tessa25
    I have vanilla ice cream every day for the calcium.
  6. tessa25
    I workout, but with lighter weight than normal. I never go to failure. But being tired is not one my symptoms.
  7. tessa25
    You have eat gluten every single day until after testing. And the celiac blood test is supposed to be done as well.
  8. tessa25
    Unfortunately you need to keep eating gluten until all celiac testing is complete.
  9. tessa25
    I believe the talk around this forum is that cheerios are not gluten free enough for people with celiac at this time. I don't know if anything has changed on that and when their lawyer calls me I'll quickly delete this. haha
  10. tessa25
    The full celiac panel checks TTG IGA and IGG, DGP IGA and IGG, IGA, EMA as Jmg stated above. Your test included TTG IGA and IGA. If your IGA was low, a low on TTG IGA would be inconclusive. But your IGA is fine. A high on any one test is a positive for celiac and should lead to an endoscopy for confirmation. So I'd get tested for TTG IGG, DGP IGA and...
  11. tessa25
    There are definitely things you can do to make it easier on yourself. But all of my ideas seem to cost money and involve cooking. But I'll give it a shot anyway in case you haven't already thought of it. I would buy a small chest freezer and put gluten-free foods in it. Canyon bakehouse sells their fantastic bread and bagels right on their website. You...
  12. tessa25
    You can order your own blood tests at walkinlab.com. LabCorp does the actual testing. The full celiac panel is I believe $298. You get results in a few days. It's recommended that people use a doctor but if you feel that route would be too expensive this is a thought. But you have to be eating gluten for several weeks for the test to tell you anything useful...
  13. tessa25
    I use walkinlab.com for blood tests. The test is done at Labcorp. I get results within the week. $298 for full celiac panel, $248 for TTG IGA and IGG, EMA. I don't do the genetic testing.
  14. tessa25
    I get my blood tests ordered from an online site that has Labcorp do the tests. Not sure if I'm allowed to give the url on here. So if your doctor says no then order them yourself. If positive then give the results to your doc.
  15. tessa25
    You should get the full Celiac blood panel done. It includes the following tests: TTG IGA and IGG, DGP IGA and IGG, EMA, IGA. A positive on any one test combined with celiac evidence on the endoscopy = Celiac. There are people here who only fail one of the tests you didn't have. If Celiac testing is complete and you still don't have answers there...
  16. tessa25
    If you choose to go back on gluten then schedule an appointment with your gastroenterologist and get properly tested for celiac. That way you have a chance of finding out for sure what's going on. Make sure you get the full celiac panel TTG IGA and IGG, DGP IGA and IGG, EMA, IGA. If any one of those tests is positive then you need to do the endoscopy. if...
  17. tessa25
    I'm not a doc, but it looks like Endomys. Titer is 1:5 A and has a reference range where positive is >= 1:5, so the A means Abnormal . It looks like TTG IGA is 8.1 H and has a reference range where 7-10 is Equivocal. The H would imply High based on the last line, but I don't know if Equivocal is a week positive or inconclusive. The others look negative...
  18. tessa25
    If it helps at all Barilla makes a great gluten-free spaghetti. Etalia, Schar and Udi's make pretty good pizza crust, so you can make your own pizza. In the frozen section California Pizza Kitchen I think makes a gluten-free pizza. Etalia makes a nice artisan style bread. Schar makes baguettes. Canyon Bakehouse makes fantastic bagels. So you won't be totally...
  19. tessa25
    Metallic taste in the mouth is a symptom of reflux. Any reaction to gluten can be a symptom of celiac or gluten intolerance. A full celiac blood test can help you see if celiac is a problem. I believe the full test includes TTG IGA and IGG, DGP IGA and IGG, IGA, EMA. She has to be eating gluten every day for many weeks for the test to be accurate. A positive...
  20. tessa25
    It's good to start with soups and stews for a few weeks to help some of the damage start to heal. Easiest way to deal with school is for her to always bring a bag lunch to school with her. If you make up some chocolate cupcakes and freeze them in that small chest freezer I recommended in the other post then if the school is one where people bring in...
  21. tessa25
    When I had a TTG greater than 100 and a positive EMA my doctor said "you have celiac. I'm going to do an endoscopy, but you have celiac". LOL This was based on > 10 being considered high. That means no more wheat, rye, or barley ever again. Someone more experienced and more well spoken than me will be by here in a bit I'm sure, but here's my quick...
  22. tessa25
    I was given Propofol(sp?). That's anesthesia. It's light because it's only for 15 minutes so any reaction you typically have should be less of a reaction.
  23. tessa25
    If you've ever been put under, it's like that. You go into the hospital, put on the gown, get an IV inserted, wait. Get wheeled into the operating room, put under, wake up in recovery. Always feels weird to me going to sleep in the operating room and waking up in a different room 1 second later. Easy peasy.
  24. tessa25
    Thanks for the info! Next time I visit family I'll have to stop by there. If I've finished getting my numbers down that is.
  25. tessa25
    To me, any gluten is unsafe. I use the device to tell me something is bad. A smiley face does not mean to me that something is good. Just a tool in the box.
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