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tessa25

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Everything posted by tessa25

  1. tessa25
    If you had a celiac blood test done that showed high at diagnosis then I believe you are supposed to test at the 3 month then 1 year mark to verify that those numbers went to normal levels on a gluten free diet. If they are still high you might not be as gluten free as you thought or just going gluten free isn't enough. Some people need to do a more...
  2. tessa25
    Did you ever get your celiac blood tests redone to see if the numbers are now in the normal range?
  3. tessa25
    The full celiac panel includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA You can either have a gastroenterologist order the full celiac panel plus whatever else they typically test for, or you can order your own test at a site like walkinlab.com. At walkinlab.com it's called the celiac comprehensive test and costs...
  4. tessa25
    I'd try the gluten free diet for a few months to see if that helps at all. Can't hurt. If it doesn't help I'd try a low FODMAP meat and veggies diet.
  5. tessa25
    Re. gorilla munch - Made with corn, says gluten free on the box, I don't know why it wouldn't be. It's quite yummy. Corn pops and Post golden crisp used to be my favorites, before celiac.
  6. tessa25
    To me cereal is like dessert so Envirokidz Gorilla Munch cereal (corn pops equivalent) would be my goto if I had a hankering for some cereal. Quiche Lorraine makes eggs taste better so find a good recipe online and learn how to make a quiche.
  7. tessa25
    The full celiac panel is: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA in the US. You only need a positive on one to have them do an endoscopy to verify celiac. There are people here that only failed one test and have celiac.
  8. tessa25
    I was always of the impression that very strong positive celiac numbers like you posted could only be celiac. Not a doc though.
  9. tessa25
    I believe you just have to have one slice of bread per day.
  10. tessa25
    The IGA test being in the normal range just means that the TTG IGA result is valid. You only need one positive to need an endoscopy to verify celiac. Your TTG IGA is weak positive for celiac. And you say the biopsy showed celiac. So you have celiac. That means no more gluten ever again. No cheating allowed with celiac. Sorry. CYA: I'm not a doc...
  11. tessa25
    My tendons have a tendoncy to tear. Been going to PT for one reason or another for about 4 years. I've Been gluten free for two years and my blood test numbers are still slowly heading down. I recently managed to go 6 months without a new injury and my injury from 2 weeks ago is almost gone. Always figured it was due to malnutrition. Celiac confirmed it to...
  12. tessa25
    Next time your up for 12 weeks of daily gluten eating, as cyclinglady mentions, sign up at walkinlab.com, and order your own celiac comprehensive blood test for $298 after the 12 weeks. It's not covered by insurance. But it is the full celiac panel including TTG IGA and IGG, DGP IGA and IGG, IGA, EMA. Head to the nearest Labcorp for the blood draw. You'll...
  13. tessa25
    Live for the good things in life and not the bad. There's more to life than illness.
  14. tessa25
    I don't know anything about the ileum. But it's so easy to get a blood test for the full celiac panel, so why not do that now? The full celiac panel includes: TTG IGA TTG IGG DGP IGA DGP IGG IGA EMA
  15. tessa25
    If your results say you have celiac, that would be accurate. If they say you don't have celiac that would not be accurate because you have to be eating gluten daily for 3 months before doing the blood test.
  16. tessa25
    My biopsy didn't mention marsh stages. It mentioned blunted villa. Normal means normal.
  17. tessa25
    Since the standard range is <= .9 they look like you don't have celiac. But you didn't get the full celiac panel and I'm not a doc. I would recommend you get the full celiac panel that includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA You need to be consuming gluten for the 12 weeks up to the test. You can have a slice...
  18. tessa25
    No. But I'd be much worse off if I didn't do it.
  19. tessa25
    I'm two years into this. By testing levels monthly I quickly found out that my numbers only decrease on a strict, limited, liquid diet. I've just started eating eggs last week without getting nauseous, and I'll see if my numbers continue to decrease. Not everyone has their numbers go down just by going gluten free (most do). Some, like me, have more restrictions...
  20. tessa25
    Since celiac testing is done there's nothing preventing you from going on a strict gluten free diet for a couple of months to see if you get better. You could be in the early stages of celiac where you don't have enough damage for a diagnosis or you could have issues further down the pipes. The easiest way to go gluten free is to eat simple foods like meat...
  21. tessa25
    You can sign up at walkinlab.com, pay $298 for the Celiac Disease Comprehensive test, head to your nearest Labcorp for the blood draw and have your answers in a week. Requires you to be eating gluten for many weeks beforehand.
  22. tessa25
    I don't know about slippery elm. If spicy foods are bothering your stomach, then I'd avoid them completely until the problem is gone.
  23. tessa25
    Call the gastro's office and ask for copies of your test results. The endoscopy report will say if biopsies were done in the duodenum and small intestine.
  24. tessa25
    To me, not a doctor, you failed 3 out of 5 celiac tests. You only have to fail one test to have a gastro want to do an endoscopy to confirm celiac. EMA positive DGP IGG 68 is very high TTG IGA 28 high Everybody tests different, that's why there are so many tests, to catch everyone. They don't indicate severity. The endoscopy results will...
  25. tessa25
    Why is it the two people with the most severe diet restrictions are always the first to answer food questions? Haha, I think we obsess about food.
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