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PinkyGurl

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Latest Celiac Disease News & Research:

Everything posted by PinkyGurl

  1. PinkyGurl
    I started LDN a few months ago to help fix my small intestine bacterial overgrowth. A good portion of celiacs have this issue. LDN is a prokenetic meaning it keeps the blowers flowing. It’s a big factor in treating SIBO properly. I have 5 autoimmune diseases so that’s why we choose LDN for my prokenetic. We are hoping it will help everything else. I...
  2. PinkyGurl
    Many of Walmart’s great value brand items have this disclaimer in it. That just means that it’s either made in a facility that also has wheat in it or on the same lines. It’s their cover their ass statement. Technically the sauce is made from gluten-free ingredients but Cross contact may have occurred.
  3. PinkyGurl
    I don't know what that diet is but I know a lot of us celiacs have leaky gut and small intestine bacterial overgrowth. Please look into Auto Immune Paleo Protocol. It actually proven to help with many auto immune conditions where people can't get their inflammation in check.
  4. PinkyGurl
    Any gluten is too much. Speak to your pastor about what you can do for communion. I don't believe for one second God would want you to be eating poison just for communion. Don't do it!
  5. PinkyGurl
    I'm super sensitive celiac and I have never had issues with Amy's. One of the few companies I trust shared lines because of their strict cleaning protocols.
  6. PinkyGurl
    Nothing the MDs give you via IV contains gluten. Gluten is found in oral drugs because it's a binding agent or filler. Since IV meds are liquid they don't need bindings agents. So the versed and fentanyl yo received are not the issue.
  7. PinkyGurl
    Hate to tell you but McDonalds French fries are NOT gluten free. The "natural beef flavoring" contains wheat. Their hasbrowns are also fried in the same fryers thus making them NOT gluten free. Lots of Miss information by this poster.
  8. PinkyGurl
    It was pulled a while back due to egg contamination. My Aldi's just got it back in stick this week, so hang in there slowly but surely it's shipping back out!
  9. PinkyGurl
    Celiac biopsies aren't taken from the terminal ileum they need to be taken from the duodenal bulb and 3rd portion of the duodenum. Which is reached by an upper scope not colonoscopy. If your GI believes he adequately ruled out celiac I'd find a new GI who knows what he/she is doing.
  10. PinkyGurl
    When taking thyroid meds yes you need to take on empty stomach with water only 30-60 minutes prior to eating. You should also avoid dairy or calcium containing things 4 hours around the pill as it decreases absorption. Magnesium at bedtime will be fine as it leaves plenty of time before your thyroid pill. Another option is to set an alarm for in the middle...
  11. PinkyGurl
    Yea even deficient in IGA she is very positive. Your little is likely celiac. Ditto to still eating gluten till the endoscopy. It is important to have it to correlate the diagnosis!
  12. PinkyGurl
    Gluten removed beers are not gluten free nor are they safe for celiacs. About 6 months after I was diagnosed I was given one of these beers...I didn't know then what I know now. I wanted to die that night. I spent so much time on the crapper I just slept on the bathroom floor. It took me 2 weeks to work through the rest of the symptoms. Brain fog, fatigue...
  13. PinkyGurl
    All Gatorade drinks are gluten free.
  14. PinkyGurl
    Yes celiac causes damage and inflammation to the small bowel. Once she goes gluten free her body will heal and she will feel loads better.
  15. PinkyGurl
    Problem is if you eat processed gluten free foods you will gain weight. Eat clean (meats, fish, veggies, fruit, and limited gluten-free carbs such as potatos) and exercise and you will lose weight.
  16. PinkyGurl
    Rice wine vinegar is completely safe for celiacs. The only one that is not gluten free is MALT VINEGAR.
  17. PinkyGurl
    Why didn't they run a TTG Iga? I see a TTG IGG and Gliadin IGA and IGG's. the TTG Iga is the main one they look at.
  18. PinkyGurl

    ARCHIVED Weight loss

    PinkyGurl replied to Theri's topic in Related Issues & Disorders

    From your post it sounds like you diet is a bit unbalance(nuts and carbs). You should be eating meats, cheese, carbs, veggies, fruit and good fats. (Avocado, olive oil)
  19. PinkyGurl
    Hi jamie111. I had the SAME thing! Turned out I also had hashimotos which is often seen with celiac. I would have your thyroid antibodies and thyroid levels checked. My antibodies were up but my thyroid labs were "within normal". I saw my endocrine and told her of all my thyroid symptoms and she was amazing and started me on meds (very low dose) and wow...
  20. PinkyGurl
    Interesting question for sure. My TTG Iga was 48 and I had no villi severe damage. We are very sure I became celiac when I was 12 as my symptoms started then and not on single MD connected the dots. I'm 34 when diagnosed. My endocrine said that often times when you've had a autoimmune disease for a long time you antibody levels are actually lower because...
  21. PinkyGurl
    The blood panel is only for celiac. They do not yet have a blood test for gluten sensitivity. Many people with silent celiac eventually get tested because they pop up with anemia or vitamin deficiencies like vitamin D. Unfortunately by that time the person has likely had the disease so long and are at higher risk of future auto immune diseases. Silent...
  22. PinkyGurl
    It's very hard to estimate that because prices vary sooooo much throughout the country. Find out what faculty they want you to have the endoscopy at and then call their patient financial services/billing dept and ask for an estimate of costs for an out of pocket payer. They should be able to give you a much better idea. You can also discuss Financial assistance...
  23. PinkyGurl
    DH is the skin form of celiac. Only way to know if you have celiac is to get tested. Start with your primary and request the celiac blood panel. The also request to see dermatologist if you skin thing is still there.
  24. PinkyGurl
    Sadly he should NOT have told you to go gluten free tell you see a GI doctor and have an endoscopy to get a actual diagnosis! IMO you should get back on gluten immediately and see a GI specialist for end and biopsy.
  25. PinkyGurl
    I use chapstick brand and have never had an issue. I am a VERY sensitive celiac so I wouldn't for sure know if there was even the slightest gluten CC in it.
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