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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, KMS0220! Between you and your doctor, you seem to be aware of the assortment of things that can cause lymphocytic inflammation in the small bowel. It does not appear that at this time you have celiac disease but you certainly could have NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms. Some experts feel...
  2. trents
    Welcome to the forum, Viola11! I can't speak to your question as I have never had that experience. But I just wanted to ask if you have started eating gluten free yet. You would need to be on "regular amounts" gluten for about two months leading up to the test blood draw in order for the testing to be accurate? Sounds like you have not started a gluten free...
  3. trents
    Being gluten free for one week will lower scores some and that could be enough if the test results are borderline to move you from positive to negative. But if the numbers are in the higher range it should still be valid.
  4. trents
    Yes, indeed! It can distort the shape of the LES (Lower Esophageal Sphincter) such that it doesn't seal well.
  5. trents
    Luba, first of all, any vitamins and supplements you take should be checked for gluten. Wheat starch can be used for a filler in pills and can also be found in pigment agents. Second, a multivitamin product by itself is seldom potent enough to effectively address the typical assortment of nutritional deficiencies found in those who have had celiac disease...
  6. trents
    I recently purchased some "low acid" coffee. Definitely helps with the heartburn but the flavor is not there.
  7. trents
    Wheatwacked, Aspirin is an NSAID and can damage stomach linings if taken regularly. Alka Seltzer and Sodium Bicarb are both high in sodium. Those are concerns for many people.
  8. trents
    I think that if it is true that TUMS has any gluten it's probably due to the pigments used in some flavors. But I would investigate that more thoroughly if I were you because it seems unlikely to me that they actually do contain gluten. The main ingredients are simply calcium carbonate (chalk) and I would prefer that approach to aluminum-based antacids for...
  9. trents
    Yes, that is possible. But I'm not sure what further testing can be done to distinguish between celiac disease and some other food intolerance. There are food sensitivity tests out there like ELISA and AlCAT but they are less than definitive. They typically throw a lot of false positives. Your best bet IMO is to trial a gluten free diet for a few months and...
  10. trents
    Dairy intolerance is not always driven by lactose, the sugar in milk. When it comes to damaged small bowel villi from dairy, the protein, casein would be the culprit. Certain foods have proteins whose structure closely resembles gluten such that some people cross react to those foods as they would gluten. It is estimated that 10% of celiacs cross react to...
  11. trents
    As Cristiana explained, because of the damage to the SB villi from the pathology report of the biopsy, you certainly could have celiac disease but there are other possibilities as well. Some meds and some foods that can cross react with gluten (e.g. , oats and dairy) can also blunt the SB villi. Since you have had both blood antibody testing done and biopsy...
  12. trents
    Emily, the blood work done and posted results are odd and seem deficient. The most common blood antibody test run to detect celiac disease, the tTG-IGA, appears to be missing unless the "Immunoglobulin IgA results" is an oddly worded reference to it. The tTG-IGA is the favorite of doctors and the #1 test that should be run because it combines good sensitivity...
  13. trents
    Has there been any thought given to an endoscopy/biopsy which is the gold standard diagnostic tool for celiac disease? If the biopsy shows damage to the villous lining of the small bowel then it is reasonable to conclude celiac disease.
  14. trents
    Welcome to the forum, jennmb! Celiac Ab tTG DGP TIgA Immunoglobulin A, Qn, Serum01 363 High mg/dL This one is the only "high" value from your testing. It is not a test to diagnose celiac disease per se but is a measure of total serum IGA antibody levels. The fact that it is high does not necessarily mean anything. If it were low, on the other...
  15. trents
    I have concerns about how that study was constructed. Not double blind. Small sample size. Not randomized.
  16. trents
    Thank you.
  17. trents
    Two years. That's pretty quick. It took 13 years for me to get my diagnosis and many on this forum will tell you 10 years is very common.
  18. trents
    I'd like to know that as well. What was the test called, specifically? The only tests I know of for food reactions are of the allergy type which would not apply in the case of celiac cross reactions.
  19. trents
    I could not find any information about it either.
  20. trents
    Welcome to the forum, northdove! Actually, it isn't necessary to purchase gluten-free processed foods in order to avoid gluten and eat healthy. Actually, processed gluten-free foods are generally not as healthy as their gluten counterparts because gluten-free flours are not enriched with vitamins and minerals as wheat-based flours are. You can eat well...
  21. trents
    Scott never accused you of spreading "rumors". He did not accuse you personally of anything, actually. In general terms he explained that he guards against the dissemination of "incorrect information" on this forum. You seemed to have taken it personally as an accusation. When you said, "I discovered wheat flour is used as an organic insecticide around olive...
  22. trents
    The IGG is a secondary test for celiac disease. It is less specific than the tTG-IGA or the EMA. Less specific meaning there is more of a chance that it is not indicating celiac disease but some other disorder. Don't take this as definitive truth but my impression is that a positive IGG with negative tTG-IGA and/or negative EMA may point to NCGS (Non Celiac...
  23. trents
    Maggie12, what do you mean when you say you had high gluten levels? That I know of there is no blood test to measure gluten levels. There are tests to measure antibodies produced by the inflammation in the small bowel lining that celiac disease produces in response to gluten ingestion, however. Can you be more specific about the tests that were actually run...
  24. trents
    Welcome to the forum, Sylvia Tapley! Are you referring to prescription pain relievers or over the counter?
  25. trents
    Just be aware that trialing a gluten-free diet will invalidate any further testing unless you go back on gluten ahead of the test (6-8 weeks before antibody testing and 2 weeks before endoscopy/biopsy). Yes, your youth can be a major player in how your body is coping with gluten. Young people's bodies resist damage better and heal faster than those or older...
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