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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    It is a blood antibody screening test. There are other blood antibody tests that can be run to screen for celiac disease but that one is the most popular with physicians.
  2. trents
    NCGS doesn't damage the small bowel villi as does celiac disease and that is why there is no test for NCGS yet. But with NCGS gluten can be toxic to other body systems. To post a picture use the three dots in the upper right corner of a new post window. But you only have a short time window to do it. After that window is closed you would need to start...
  3. trents
    What test is it you are afraid of? The blood antibody testing or the endoscopy/biopsy? Or both? I'm sorry but that doesn't make sense to me. "Front or back or both"? What do you mean? Is English your first language?
  4. trents
    First, to answer your question, "yes", you can have negative blood tests and still have celiac. We have had a number of reports on this forum to that effect. Blood work is negative but when a endoscopy/biopsy was done if the small bowel lining there was damage. We don't always know why or how the blood work can be negative but the biopsy positive but here...
  5. trents
    My iron levels got a little low before my celaic diagnosis but not critically low. I never had to get an infusion. I took iron pills for several years and went gluten free. Now it stays within normal range without iron pills. But, I am a meat eater and get plenty of iron in my diet.
  6. trents
    Anemia is very common among celiacs. The reason is the problem with malabsorption caused by damage to the villi. It is also common among those who are not eating meat since plant-based iron is not as available for absorption as is that found in red meat (hema iron). Also it is very difficult to get enough vitamin B12 on a plant-based diet. B12 is present...
  7. trents
    Your tTG-IGA score is not actually that high. It is solidly in the positive range but not alarmingly high by any means. Very recently we had a forum member post a 600 u/ml tTG-IGA. Besides, the size of the number does not equate with the amount of damage that has been done to the small bowel villi because there is also a time factor involved. Besides...
  8. trents
    Welcome to the forum, Raptorsgal! The "tissue transglutaminase" is the most common antibody test run by doctors checking for celiac disease. Celiac disease is an autoimmune disorder that causes the body's immune system to attack the villous lining of the small bowel, causing inflammation, when gluten is consumed. Over time, the inflammation damages the...
  9. trents
    The conclusions of the article are based on the assumption that having 20ppm of gluten (or less) equates to "safe" for celiacs. While that is true for the majority of celiacs, we know that there is a subset of "super sensitive" celiacs who have true gluten reactions on much less than that. Having said that, I always wonder when we read on this forum...
  10. trents
    Now the fun begins. Learning to eat truly gluten free (instead of just "lower gluten") is much more of a challenge than most people realize at the outset. Gluten is found in places you would never expect, like Campbell's Tomato Soup (most canned soup's, really) and soy sauce. And then there is the whole problem of cross contamination, especially when eating...
  11. trents
    Different celic antibody tests vary in their "sensitivity" and their "specificity". The Endomysial IGA is very specific for celiac disease which means a positive for that one all but eliminates other disease possibilities. It is also an expensive test. However, it is not very sensitive which means a negative misses many who actually do have celiac disease...
  12. trents
    Since your total IGA (Immunoglobulin A, Qn) is not low, the tTG-IGA (which is a fraction of total IGA) test value returned should be reliable. Low total IGA drives the individual IGA values down. So, this is not a problem in your case. Your tTG-IGA is unequivocally positive. This is a strong indication of having active celiac disease. There are other...
  13. trents
    Welcome to the forum, Gary! In order to address your question we would need the reference range for the tTG-IGA value. There is no standard. Each lab uses their own scale. So, please give us the negative vs. positive range for that one. Same for the Immunoglobulin A, Qn.
  14. trents
    But after one year you went back to eating gluten? Another option I would suggest is that you consider is getting genetic testing done for both you and your son. There are two genes (HQ2 and HQ8) that have been tied to the potential for developing celiac disease.
  15. trents
    There is a strong correlation between Hashimoto and celiac disease. Have you yourself ever been tested for celiac disease?
  16. trents
    There is also the possibility that your son does not have celiac disease but does have NCGS (Non Celiac Gluten Sensitivity) which is 10x more common than celiac disease. NCGS and celaic disease share many of the same symptoms. There is no test for NCGS. Celiac disease must first be ruled out.
  17. trents
    John, the term "flour" is not just used of wheat flour. It is used of any finely ground substance that is used in place of wheat flour, most of the time it will be finely ground seeds or nuts, such as "almond flour". Gluten free flour can also be a combination of finely ground substances that do not include wheat.
  18. trents
    Short answer, "No". But there is a possibility that you have an intolerance or sensitivity to pork protein. My mother in law cannot eat pork for this reason.
  19. trents
    Unfortunately, neuropathy (ataxia is part of neuropathy) can persist for a long time after gluten removal and some never experience full healing. In addition to gluten intolerance you obviously have an intolerance/sensitivity to corn protein which is not uncommon in the celiac community. Development of other food intolerances/sensitivities is very common...
  20. trents
    I must not have communicated well in my first post but my intention was to say that I do not agree with your doctor. I think there is a very good chance your son does have celiac disease. I do not believe all the correct tests for celiac disease were done since he is an infant. For instance, no DGP antibody tests were run. Also, infants who actually do have...
  21. trents
    Hello, Papafma! Welcome to the forum! An infant's immune system is not fully developed and will often not respond the same to celiac antibody testing. Here is a primer for antibody tests that can be run in order to detect celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ “Generally, children at risk for c...
  22. trents
    Welcome to the forum, Jay11114! I need some clarification. Are you saying you experience a cross reaction to corn that affects you the same way as wheat/barley/rye glutening?
  23. trents
    Ideally, all first degree relative relatives should be tested and tested regularly. In the real world, however, you are not likely to find a physician who will test in the absence of symptoms. The only other option would be to purchase home test kits from third party entities such as Imaware.
  24. trents
    Essentially, you have put yourself on a ketogenic diet if you have eliminated carbs. There is an adjustment period with the ketogenic diet that lasts for a couple of weeks I'm told. During that time, you feel crummy until your body learns how to efficiently burn fat for energy. But as knitty kitty said, you must give it the fat in your diet to burn.
  25. trents
    Two recent large studies found that almost half of the first degree relatives (parents, siblings, children) of those with active celiac disease will have or will develop active celiac disease themselves. Are you in the UK by chance? I ask that because the way out there scheduling for followup procedures by specialists is well known to be a problem in that...
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