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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, kitty! I could be wrong but I think you might need to wait until a fresh outbreak of the rash before a skin biopsy would be valid when testing for DH. If you do have DH that is definitive for celiac disease. but because of your family history and your symptoms it sounds like given that you have celiac disease.
  2. trents
    I was never underweight before diagnosis but picked up about 10 lbs. within the first six months or a year after diagnosis. Wish I could give it back now.
  3. trents
    Unfortunately, they did not do full celiac panel antibody test. The tTG-IGA misses 20% of white Europeans and 50% of those of African decent who actually do have celiac disease. There are a number of other antibody tests that could have (and should have) been ordered. If the rash is not actually DH then you could have NCGS instead of celiac disease. They...
  4. trents
    You might want to get checked for Crohns or IBS. Both are more common in the celiac population than in the general population. I would also checked into an occult fecal test to detect small amounts of blood in the stool.
  5. trents
    Welcolme to the forum, swiftie-13! It might be helpful for you to know you don't have to concern yourself with the burden of finding acceptable gluten-free processed foods in order to eat gluten-free. Generally speaking gluten-free processed foods are much more expensive and less nutritious than their "wheat" counterparts. Judging by the way you spelled...
  6. trents
    It takes time but it does become the new normal for you and your friends. Some of your friends (and family) may not accept that you have a legitimate disease and will be rude and uncooperative. But that's their problem, really, not yours, so don't let it become yours. It is common to be in denial when something life changing comes your way like this...
  7. trents
    Salinas22, you only have a few minutes to edit any post before that function is no longer available. Just click on the three horizontal dots to access the edit function before that.
  8. trents
    Not familiar with it at all.
  9. trents
    The Mayo Clinic recommends being on gluten for 6-8 weeks before antibody testing so that may have been long enough to give valid test results.
  10. trents
    Yes, Wheatwacked is correct. At the end of the day whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity) the antidote is the same, namely, total abstinence from gluten for a life. These two share many of the same symptoms and it is not necessarily true that NCGS is just unpleasant and inconvenient but will not do harm to your body in the...
  11. trents
    "Said it wasn't hereditary, the blood test will give markers even though I had been gluten-free" These two statements are incorrect. While it's true that having celiac genes does not ensure that you will develop celiac disease (about 40% of the population has one or both celiac genes but only 1% of the population develop celiac disease) it does establish...
  12. trents
    Tricks1208, welcome to the forum! Don't neglect the possibility that your new symptoms are not gluten-related. Sometimes those with celiac disease forget that there are things that can go wrong with our bodies that have nothing to do with celiac disease. Having said that, I note that you stated, "I felt so much better after having a gluten-free...
  13. trents
    From the article: "A great example of a popular high oxalate gluten-free flour is almond flour. Almonds are one of the very highest oxalate foods, with about 300 mg of oxalate for one half cup of whole nuts. Given that you will actually have more nuts in a half cup of flour than you will in a half cup of whole nuts." I believe this is incorrect. By grinding...
  14. trents
    Welcome to the forum, ryanbragna232! Some clarification, please! Do you have an official diagnosis of celiac disease and if so, how long ago? Or, do you have NCGS (Non Celiac Gluten Sensitivity)? You say, "tried . . . eating no gluten. I get better but then if i eat even the slightest amount of gluten I become a plant for a week." So, when you totally...
  15. trents
    There are signs of mild anemia in your bloodwork and some inflammation going on somewhere (Erythrocyte Sed Rate is high). But like Scott said, sounds like you can't put much stock in the celiac antibody scores themselves because of low gluten consumption.
  16. trents
    I think maybe they do. If I recall correctly, I told some girl scouts selling their cookies outside a Safeway store that I couldn't buy from them because I needed to avoid gluten. They replied that they had some gluten-free version for sale. Then they had me over a barrel and I had to come up with another excuse not to buy their over-priced goods. This would...
  17. trents
    If you don't want your daughter to go through with a biopsy, you can always veto (tactfully, of course) what the doctor wants. The doc may agree to regular antibody testing, say every 6 months or yearly to check healing progress and compliance with the gluten free diet. If her antibody levels are quite high that certainly seems like a reasonable course of...
  18. trents
    Yes, you should be taking those vitamin/mineral supplements during your gluten ingestion period. They will not affect celiac disease testing. My personal recommendation would be to look at Costco Nature Made and Kirkland vitamins and supplements. Most of them are gluten free and will clearly say so in the labeling. I use: 1. Kirkland Mature...
  19. trents
    I understand where you are at with this but don't be surprised if the biopsy results are inconclusive. I would hate to see it unfold this way because it would interject an element of uncertainty. Hopefully, the damage to the villi is significant enough that being off gluten for 3 weeks will not invalidate the biopsy. Your other option is just to forgo the...
  20. trents
    Welcome to the forum, Heather! According to FDA guidelines, food products may use the "gluten free" label as long as the concentration of gluten does not exceed 20ppm. So, according to regulatory standards they can still have very small amounts of gluten and advertise as gluten free. This standard works for the majority of celiacs but there are some...
  21. trents
    What can mimic celiac disease: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5587842/ Gluten containing grains will be high in carbs and would feed into the SIBO issue.
  22. trents
    Perhaps it was something else besides gluten, especially if she has never had this kind of reaction when consuming gluten previously. Her reaction sounds like anaphylaxis. Having said that, most celiacs will tell you that once they have been off gluten for a significant period they lose all tolerance to it and getting "glutened" makes them quite ill. But...
  23. trents
    Welcome to the forum, pawbearbear! Ambiguity with regard to diagnosis has a constant presence on this forum with regard to new forum participants. You are certainly not alone. Often it is due to physicians failing to explain to their patients being tested for celaic disease that it is necessary to be consuming regular amounts of gluten for weeks to months...
  24. trents
    The connection between deep sleep and gluten consumption sounds like an opiod effect, doesn't it? So, you did not answer my question about other symptoms normally connected with gluten sensitivity/celiac disease. You allude to "common side effects" but do not elaborate. What I am wondering is what led you to investigate the possibility of gluten sensitivity...
  25. trents
    Welcome to the forum, Datsanne! Did you double post this? I take it since you are self-diagnosed that you do not know whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Correct? What symptoms did regular gluten consumption produce for you? What is not clear to me is whether the bed wetting occurs regularly or only when...
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