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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    There are no diagnostic tools for NCGS. Celiac disease must first be ruled out. As you know, we do have diagnostic tools for celiac disease.
  2. trents
    If you are on long term PPI therapy I hope you are getting dexascans done for bone density every so often and are taking some potent vitamin and mineral supplements. PPI therapy raises the Ph in the gut which reduces the uptake of calcium and other minerals and vitamins.
  3. trents
    Welcome to he forum Gillianannpansan. Do you need an official diagnosis of celiac disease for some reason? Dairy intolerance is very common among people with celiac disease. Sounds like you either have celiac disease or NCGS (Non Celiac Gluten Sensitivity) along with dairy intolerance. Either way, the solution is the same. Avoid gluten and dairy.
  4. trents
    What about bone demineralization?
  5. trents
    You must be on a low dose for maintenance.
  6. trents
    LOL!
  7. trents
    I note that the first article you linked, Wheatwacked, was authored in 2014 and we have learned much since then about gluten-related disorders. Also, the author seems to ignore all but digestive distress effects of NCGS when there seems to be other medical issues connected with gluten in those who have been diagnosed with NCGS.
  8. trents
    I took prednisone for a sinus infection once and all my other discomforts disappeared as well. I told the ENT I hadn't felt that good in years. "I hear that a lot," he said. "Unfortunately, it's not drug that you can take long term."
  9. trents
    Wheatwacked, I am not sure what point you are trying to make in that last post. Are you trying to say the people with NCGS need not be concerned about the medical implications of NCGS since they don't have villi damage? Or, was that a tongue in cheek quote from NIH? I don't think NCGS rules out medical problems caused by gluten consumption such as neurological...
  10. trents
    Supplement with gluten-free B-complex, magnesium glycinate or citrate, and D3. Eating gluten free is probably going to be more challenging than you imagine. You probably have no idea how and where gluten shows up in everyday food industry products. Eating out at restaurants is the biggest risk as even though you order gluten free food it will likely...
  11. trents
    Also, the damage to the villi can be patchy and is sometimes missed by doctors who don't take samples from various areas including the duodenum bulb. Ditto. Confirms what the serological testing found. They did not give it a Marsh scale grade but it sounds like you caught it at an early stage of damage, which is good.
  12. trents
    Did your doctor order total serum IGA? If that is low, it can skew other antibody tests toward the negative range. I know what I said earlier about those with NCGS should get regular testing to see if there is a transition to celiac disease but I was referring to those who don't commit to eating totally gluten free. Many with NCGS take it more causally...
  13. trents
    Tracy, we have had posters on this forum who had negative antibody test results but positive biopsy results and vice versa. That is to say, some people who do have celiac disease throw atypical test results. That also reinforces the importance of getting full celiac panel done. Some throw negatives on the IGA tests but are caught by the IGG tests. As I said...
  14. trents
    Tracy414, welcome to the forum! You wrote: "I've read a lot of different articles, etc and I still have trouble understanding which group this puts me in. " Here is my take based on what I have been reading on this forum and on the internet: Your confusion is well-founded because the knowledge of the genetics of gluten related disorders is in a...
  15. trents
    By the way, welcome to the forum, Brook-lyn! Is it possible your daughter is having a delayed reaction to some food allergen? Allergen reactions can occur 24 hr. or even longer after exposure. I might also suggest you keep a food diary for her to track that kind of thing.
  16. trents
    Could her reactions be caused by something else in the environment besides gluten?
  17. trents
    I hope you find the help for your medical issues that you are looking for.
  18. trents
    Did you read knitty kitty's recent post? There she shared: "I have had my gallbladder removed. I have autoimmune gastritis." Going back to your original post, if all you need is advice on how to eliminate dairy and gluten, you don't need our assistance. There is plenty of information online about that. We were pressing you to provide evidence that you...
  19. trents
    Eileen, in post #15 you said, "who the hell has genetic testing for it?" You seemed to me to be asking how you could get that done. Sorry if I misunderstood.
  20. trents
    Doctors can order genetic tests for celiac disease and you can also get them done commercially through companies like 23andMe: https://www.23andme.com/topics/health-predispositions/celiac-disease/
  21. trents
    We owe you an apology, Eileen. Looking back over your posts I do see that earlier you did mention that you had been tested for celiac disease three times in the past year. As these threads get longer and different one join in along the way it can be easy to lose track of what people said in the early parts of the thread. The other thing I want to say in that...
  22. trents
    I was wondering that too.
  23. trents
    I would give dairy a good look as the possible problem: https://pubmed.ncbi.nlm.nih.gov/2262836/ This is a very common additional food intolerance among the celiac population.
  24. trents
    There are some other medical conditions and some foods and meds that can cause elevated tTG-IGA. Crohn's disease is one. NSAIDS can cause elevated tTG-IGA. Dairy and oats (even gluten-free oats) for some celiacs causes a celiac reaction for some people. You might google, "What can cause elevated tTG-IGA besides gluten" and "What can damage small bowel villi...
  25. trents
    Welcome to the forum, Termite! Amylase and lipase are pancreatic enzymes. Were you ever diagnosed with pancreatitis? Many of your symptoms point to that. However, the pancreas empties into the small bowel which is the part of the GI track that experiences inflammation from celiac disease. Yes. Blood antibody levels can drop significantly in 2.5...
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