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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Welcome to the forum, Maddie!
  2. trents
    Thanks for the update on your liver enzymes, Susan. That is good news.
  3. trents
    This is very useful information and accords with a growing body of data showing more variability in celiac disease manifestation than we ever realized just a few years ago. The disease is proving to defy our neat little diagnostic categories.
  4. trents
    BuddyBoy, welcome to the forum! How can you be sure that your reaction to the vaccination is related to your having celiac disease? Non-celiacs also sometimes have reactions like that to various kinds of vaccines.
  5. trents
    I don't think the villi are large enough to see with the naked eye. When the biopsy is sent in for evaluation to a lab it is microscopically examined for damage. Mucous could be tainted with blood or red-colored food like a tomato. When I have had mucous in my stool it is whitish. And I'm not sure that mucous equates with the villous lining.
  6. trents
    Thanks for this Jefferson Adams! Didn't know there was such a thing and now know there are some in my own state.
  7. trents
    Really no danger in high, everyday doses of B12 or any of the B's. They're water soluble and any excess is peed out. The only exception to that I know of would be the benfotiamine version of thiamine which is a fat-soluble form of that B vitamin.
  8. trents
    David B., welcome to the forum! Just a precaution here. If you are on prescription anticoagulants, fish oil may be contraindicated.
  9. trents
    Have you considered pernicious anemia?
  10. trents
    Welcome to the forum, helebOre! The CBC counts you provide are difficult to evaluate without including reference ranges used by the lab. We can't tell whether they are out of range.
  11. trents
    HeyMeema11, welcome to the forum! It is refreshing to see a parent so committed to doing what is safe for their celiac child. A lot of your questions can only be answered once you get a feel for how sensitive your daughter is to trace amounts of gluten. Generally speaking, you needn't worry about non porous materials like glass, metal and hard plastic...
  12. trents
    There really is no question that you have celiac disease. Everything points to it. Believe me, all of us in the celiac community understand the shock of getting this diagnosis because of the lifestyle changes it demands. It will have a major impact, not only on your eating habits but on your social life. Lots of adjustments are ahead and a significant learning...
  13. trents
    A full celiac panel looks at a number of different antibodies that could be produced by celiac disease and not just one (the tTG-IGA). The tTG-IGA is considered to be the single best test for detecting the inflammation of the small bowel lining characteristic of celiac disease. It combines good sensitivity with good specificity but some people's immune response...
  14. trents
    Welcome to the forum, Joshua98! What is your question for us? All three dimensions of celiac diagnosis (genetics, serum antibody tests and biopsy) point to celiac disease. What are you uncertain about?
  15. trents
    Maybe you have both. As both RMJ and myself mentioned, there is a statistical correlation between celiac disease and other bowel diseases. With your symptoms I certainly would recommend getting tested for celiac disease and I would recommend asking for a full celiac panel and not just the tTG-IGA test many doctors order.
  16. trents
    No, benign lymphatic colitis is not the same as celiac disease at all. Celiac disease affects the small intestine, right below the stomach. The colon is on the other end.
  17. trents
    Celiac granny, you will be more likely to get a response to your question if you post it in an area of the forum dealing with gluten free food products.
  18. trents
    Yes, that could be a neurological manifestation of celiac disease or of NCGS. Not uncommon.
  19. trents
    Welcome to the forum, LaureP! Supplements will not affect antibody testing for celiac disease. The Mayo Clinic recommends the consumption of two slices of wheat bread (or the gluten equivalent) daily for 6-8 weeks pretest. A complete celiac antibody panel would consist of total IGA, tTG-IGA, Deamidated gliadin peptide (DGP IgA and IgG) and...
  20. trents
    April42, celiac disease only affects the lining of the small bowel (the duodenum and duodenum bulb), not the entire intestine. But yes, you are correct. The damage can be patchy and many doctors do not take enough samples from the duodenum and duodenum bulb and so miss the damage.
  21. trents
    I think you send it back to Imaware or whoever produces the kit. There are other companies besides Imaware that offer these but Imaware is the most well known. So, I am assuming the cost of the lab work is included in the price of the kit.
  22. trents
    Yes, I agree that science is not about feeling or belief or persuasion. That's why I'm open to the science that is contrary to the establishment's narrative which in reality contradicts the actual scientific data at many points. There are many medical professionals and scientists who have arrived at the same conclusion, renowned neurosurgeon, Dr. Ben Carson...
  23. trents
    You can order a home celiac test kit from Imaware for about $100. You take a blood sample via finger prick and send it off. But whatever you do, don't begin the gluten free diet before all testing is complete. It would invalidate the testing.
  24. trents
    So, you haven't yet been tested for celiac disease. Correct? The incidence of other intestinal diseases such as Crohn's, IBS and (not sure) colitis is higher in the celiac population than in the general population. Autoimmune disorders tend to cluster.
  25. trents
    Which genetic marker do you have?
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