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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, @breadbreadbaby! We cannot comment on your test numbers until you also provide the reference ranges used by the lab doing the analysis. Different labs construct the test analysis differently and used different reference ranges, Hence, there are no industry standards. You will likely have to repost the existing information in a new...
  2. trents
    Let's talk about terminology for the sake eliminating (as much as possible) confusion. Unfortunately, the terms "gluten sensitive" and "gluten intolerant" have, historically, been used indiscriminately. There are two primary categories of gluten disorders whose "official" terms are 1. celiac disease and 2. Non Celiac Gluten Sensitivity or NCGS for short....
  3. trents
    You are welcome! We frequently get similar comments. Knowledge about celiac disease in the medical community at large is, unfortunately, still significantly lacking. Sometimes docs give what are obviously bum steers or just fail to give any steering at all and leave their patients just hanging out there on a limb. GI docs seem to have better knowledge but...
  4. trents
    You might find this helpful:
  5. trents
    I would go for four weeks to ensure a valid test, if you can tolerate it, that is.
  6. trents
    https://www.healthline.com/health/at-home-celiac-test#_noHeaderPrefixedContent
  7. trents
    As Scott said, if you go on a gluten free diet ahead of testing you can expect the test results to be negative. If you remove gluten from your diet, the inflammation in the lining of the small bowel will subside, antibody levels (what the blood tests are checking for) will drop and the mucosal lining will experience healing such that a biopsy will be normal...
  8. trents
    Another factor revealed in your test results is that you are IGA deficient. Look at the line: Immunoglobulin A, Qn, Serum 35 (L) Reference range: 87 - 352 We also call that "total IGA". IGA deficiency results on in artificially low scores in the individual IGA celiac antibody test scores. In other words, the test score for the tTG-IGA would...
  9. trents
    Welcome to the forum, @Morgan Tiernan! I find it outrageous that your physicians refused to test you for celiac disease despite what were obviously outbreaks of dermatitis herpetiformis. Every physician should know that dermatitis herpetiformis is a classic symptom of celiac disease! In fact, celiac disease is the only known cause for dermatitis herpetiformis...
  10. trents
    We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and...
  11. trents
    Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain...
  12. trents
    Your chest pain could be related to the Sarcoidosis. "When it affects the lungs, wheezing, coughing, shortness of breath, or chest pain may occur." https://en.wikipedia.org/wiki/Sarcoidosis The bowel incontinence could be caused by surgical damage (or scar tissue) to the cauda equina nerve bundle in the lumbar area of the spine. Or,...
  13. trents
    Diabetes type 1 or type 2? Type 2 diabetes has a statistical correlation with celiac disease. The B vitamins work in synergy with one another so I still would recommend a B-complex. This may also help your anemia which is evident from your low ferritin, hematocrit and hemoglobin. Your "chest pain arm pain and burning with increased weakness in...
  14. trents
    Welcome to the forum @Tarp! Some more information would be helpful. What is your age? What led you to investigate celiac diagnosis 11 years ago? What were your symptoms then? Do you have osteoporosis/osteopenia? What areas of the spine have been involved with your four surgeries? As you probably know, celiac disease damages the lining...
  15. trents
    Welcome to the forum, @RobHicks! Actually, celiac disease damages the upper part of the small bowel rather than the stomach. It's the part of the intestine right below the stomach. Since being diagnosed, have you had a follow-up endoscopy with biopsy to check to see if there is good healing in the small bowel lining since beginning the gluten free...
  16. trents
    I have concern as well about the long term use of any PPI. I understand it was given to you to address the GERD but PPIs were never intended to be long term solutions. Yet, docs prescribe them like candy and never monitor for the ongoing need. They just leave people on them indefinitely which has long term negative health consequences from raising gut PH...
  17. trents
    My wife just brought home some Wendy's canned chili from Costco. I've eaten it at Wendy's and it's on their menu there as gluten free. However, it's not stated as such on the can. On the other hand, wheat is not in the allergen list on the can.
  18. trents
    There are other possible causes or damaged small bowel villi besides celiac disease. Google this: Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies There is also something known as seronegative celiac disease: https://pmc.ncbi.nlm.nih.gov/articles/PMC4586545/
  19. trents
    Thanks for the additional info, @TerryinCO. Can you give the reference ranges for the celiac antibody tests. The scores you posted are not of much value without reference range numbers since there are not industry standards for these tests as far as the the scales they use. What they are testing for is the same but how they concoct the tests is a little different...
  20. trents
    Welcome to the forum, @TerryinCO! Do you know what blood tests were ordered? Was it for like you would have done for an annual physical (CBC/CMP) or celiac disease specific antibody tests? I find it interesting that your GI doc did the endoscopy and biopsy before he/she ordered blood tests to check for celiac disease, assuming the blood tests ordered...
  21. trents
    Although I disagree with interjecting the element of dermatitis herpetiformis since this is not a real issue for the OP, I think Rogo72 gives good advice about how to navigate social situations as a celiac when finding yourself in unsympathetic company. It requires developing somewhat of a tuff skin and holding your ground in order to be safe. The psychology...
  22. trents
    knitty kitty makes a good point. Avocados are high in histamines. So are bananas. Both also trigger histamine production in the body when consumed so there's a double whammy with those two foods for those struggling with histamine intolerance/MCAS
  23. trents
    Roman Catholic theology requires bread made from wheat to be used in the eucharist. Therein lies the problem.
  24. trents
    @SaiP, why are you using white rice in instead of whole grain rice or even brown rice?
  25. trents
    This article strongly suggests what the celiac community already knows but what the medical community at large has been slow to catch on to and that is, celiac disease has long systemic fingers. Glutengek, I like your idea about a "celiac syndrome".
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