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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    My bad. I had forgotten what the context was and that your previous testing was done while on gluten. I should have gone back and read the original post. I think I got this thread confused with another one.
  2. trents
    You're welcome. Both the blood antibody tests and the endoscopy/biopsy are designed to detect inflammation in and damage to the small bowel villi. If you withdraw gluten from your diet before testing is complete, healing would begin if you have celiac disease and the testing would be compromised. Amazingly, many doctors seem not to know this and neglect to...
  3. trents
    Magnesium sulfate is Epson salt which from antiquity has been used as a laxative.
  4. trents
    Sheri, don't start a gluten-free diet effort before all testing for celiac disease is complete. Otherwise, you will invalidate the tests.
  5. trents
    Donna-1, many of us have experienced that same kind of treatment from friends and relatives. I would suggest you check for celiac support groups in your area. You need to feel you are not alone and it may also open up some new and more supportive friendships.
  6. trents
    Whoa! Your doctor told you to go gluten free for 4 weeks before a follow-up appointment in 6 months? Did he mean four weeks immediately before the appointment and blood work? If that is what he meant that is absolutely wrong advice. The blood work tests for antibodies produced by inflammation in the small bowel when consuming gluten. If you remove the agent...
  7. trents
    I resonate with the melatonin mistake. I did that one too. They put gluten in things you never suspect.
  8. trents
    Kate33 has a good suggestion about getting your wife retested (blood antibody test should be sufficient) but I would wait awhile as she was only diagnosed 6 weeks ago. Retesting would help determine if she is still getting gluten from somewhere on a regular basis.
  9. trents
    Yes, but anything that goes into the blood stream will make to the gut tissues via the vascular system.
  10. trents
    Scott, I think she has already had the biopsy and it was negative: "My EGD from a few months ago (done before celiac blood panel) was negative for Celiac."
  11. trents
    Is her TPN gluten free?
  12. trents
    Welcome to the forum GNC! You are in a tough situation and I don't have any big ideas for you. Your doctor revealed his ignorance about celiac disease by saying, "That doesn't happen to older people!" Celiac disease can manifest itself at any stage of life and we have plenty on this forum in the geriatric crowd who will attest to that. But, I'm...
  13. trents
    If going gluten-free has reduced the amount of fiber you were consuming, via "whole grain" wheat-containing products, then yes. Also, gluten-free products are not fortified with vitamins as are their equivalent wheat flour products. I would suggest adding a magnesium supplement and a B-complex. Make sure they are gluten free. Costco's Nature Made brand is...
  14. trents
    Welcome to the forum, kjsimpson27! The tTG-IGA is the centerpiece of antibody blood work for celiac disease and it is negative. The endoscopy/biopsy, which is the gold standard for diagnosing celiac disease, was also negative. The symptoms you describe are common to both celiac disease and NCGS (Non Celiac Gluten Sensitivity) which is 10x as common...
  15. trents
    You would just have to answer that question through personal experience as different people will have different degrees of sensitivity. The safe answer is total abstinence.
  16. trents
    That I am aware of, high WBC is not a typical symptom associated with celiac disease. But your other symptoms are classic for either celiac disease or NCGS (Non Celiac Gluten Sensitivity) which is 10x more common than celiac disease. There is no diagnostic test for NCGS. celiac disease must first be ruled out. Sounds like you need to be tested for celiac...
  17. trents
    Welcome to the forum, LumpLady! I don't know about the lumps but the other symptoms you describe are certainly classic ones for either celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS but it has many of the same symptoms as celiac disease and is 10x more common. Celiac disease must first be ruled out. Do you notice these...
  18. trents
    Welcome to the forum, Klugett! I believe your doctor is incorrect in saying that you don't have celiac disease even though your tTG-IGA is elevated. And gluten sensitivity does not result in anemia because gluten sensitivity (I assume the doctor is referring to NCGS or Non Celiac Gluten Sensitivity) does not damage the small bowel villi. No inflammation...
  19. trents
    Welcome to the forum, ss82! I can contribute a couple of tidbits. I notice the high Anti Zonulin IGG. Zonlin is known to be the primary regulator of cell spacing in the small bowel villi. So that may have a bearing with regard to your leaky gut. Leaky gut is implicated as a primary factor in celiac disease but I don't know about how it fits in with...
  20. trents
    "The prevalence of celiac disease among patients with type 2 diabetes, with poor glycemic control despite insulin therapy, is slightly higher than the actual celiac disease prevalence in general population." According to that one study, that is. I would think more research needs to be done on that issue such that there is a larger data base.
  21. trents
    Milligrams per liter I'm guessing? Did you notice you typed "Dog" instead of "doc." But maybe that was intentional depending on how you feel about your physcian, hee! hee!
  22. trents
    Prayer request noted.
  23. trents
    Rob, Celiac.com has been around for almost 30 years. It is not a new source of Celiac topics.
  24. trents
    LADA is Latent Autoimmune Diabetes in Adults: https://www.mayoclinic.org/diseases-conditions/type-1-diabetes/expert-answers/lada-diabetes/faq-20057880
  25. trents
    No, not trying to eat gluten but trying to eat gluten free. Typo? Neurological problems are common symptoms of both celiac disease and NCGS. I'm not sure about the evening and nighttime pattern you describe, however. Gluten is found not only in wheat but barley and rye as well. You say you went without wheat one day and didn't have the tremors and...
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