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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I often takes two weeks to recover from a glutening espisode.
  2. trents
    Your doctor failed to order the most important antibody test for celiac disease, the tTG-IGA which is the centerpiece of the celiac antibody panel: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ You should be on regular amounts of gluten (defined as daily consumption of gluten in the equivalent of two slices of wheat bread...
  3. trents
    ^What Ravenwoodglass said.^ Years ago researchers identified two genes that are associated with celiac disease. Recently, they identified a possible third one. And who knows if there are still more than that? The human genome contains many interrelated parts and to assign one or two genes as responsible for this or that may be too reductionistic sometimes...
  4. trents
    D3 can be toxic at high doses since it is a fat soluble vitamin. Magnesium has a laxative effect for me at fairly moderate doses, like "milk of magnesia." Zinc can also be toxic at high doses and even at lower doses can impair iron and copper assimilation. I take very modest amounts of both every other day.
  5. trents
    The expense of supplements is certainly a valid concern for some. But when this is not an issue, I would rather spend a little extra to make certain I was getting good coverage. In the past year there was an NIH research article that showed there may never be complete healing of the small bowel lining even on a strict gluten free diet. When they examined...
  6. trents
    Welcome to the forum Anxiety4lyfe! It is not all that uncommon for the antibody bloodwork to be negative while the biopsy is positive. The biopsy is the diagnostic gold standard for celiac disease. So, I'm baffled that your doctor would declare that you do not have celiac disease. There are a few fairly rare non celiac explanations for blunted villi...
  7. trents
    Elizabeth Butler, what's wrong with taking mega doses of B-vitamins like you would find in the typical caplet B-complex supplement? They are water soluble. You pee out the excess.
  8. trents
    Welcome to the forum, Sammie! It typically takes many years to arrive at a celiac diagnosis. There is an appalling amount of ignorance in the medical community about celiac disease, though there are signs that there is more awareness of this health issue, especially among more recent medical school graduates. One word of caution is in order. Don...
  9. trents
    That's exactly what I said. Please go back and read my post again.
  10. trents
    They contain emulsifiers and food coloring as well and who knows what else.
  11. trents
    But the yeast is fortified with B vitamins. What's the difference between that and taking a B12 supplement via tablet?
  12. trents
    You have already had both kinds of diagnostic procedures done (antibody and scoping/biopsy) and there are no more diagnostic tools left to check for celiac disease. Everything points to the fact that you are a celiac. Any more holding out would amount to denial. Start the gluten-free diet.
  13. trents
    It seems clear to me, both from the antibody blood test and from the endoscopy, that you have celiac disease and you may also have colitis. There is a statistically higher incidence of IBS and colitis among the celiac population than is found outside the celiac population.
  14. trents
    If you have access to a Costco, try Simple Mills Almond four crackers. Gluten free, much better nutrition than regular saltines and delicious!
  15. trents
    Can you sight any research to support your conviction that our bodies can manufacture B12 from the food we eat? It is no secret that animals can manufacture some amino acids and some vitamins and other nutrients that humans cannot. That is why bovines get all the essential amino acids that carnivores must get from meat and why carnivores don't need to...
  16. trents
    What are you doing to get B12? There are no vegetable sources of B12 apart from some fermented soy bean products I believe.
  17. trents
    Wrong! Edit: First, you have lots of symptoms that are classic for celiac disease. Second, you have a positive antibody test for celiac disease. Or apparently so. You need to find out what that test was. Do you have online access to your medical records? Third, your liver enzymes are trending high, even though still within normal range. About 18% of...
  18. trents
    Correction here. Previous to the blood antibody test you should be daily eating an amount of gluten equivalent to two slices of wheat bread for 6-8 weeks pretest. That is the guideline. Previous to the endoscopy/biopsy that same daily amount of gluten is prescribed for two weeks previous to the test.
  19. trents
    What do you mean when you say you don't handle B supplements well at all. What happens when you take them? Are you sure you have used gluten free B-complex?
  20. trents
    Eating truly gluten free is much harder than most think it will be at first. The social challenges are the hardest and for some, cravings for "the real thing." And education/becoming aware of how and where gluten is tucked away in the processed food supply is a process that takes some time. But every lapse sets the healing clock back some.
  21. trents
    Actually, it is possible that your insurance rates will go up if there is an official diagnosis since, statistically speaking, there are other health problems and higher morbidity rates associated with celiac disease. However, follow-up blood tests or endoscopies to check for healing progress once the gluten-free diet is begun might need an official diagnosis...
  22. trents
    Like who? Once it's in her medical chart it's official. And if her "celiac specialist" doc is willing to do that, I don't see the need for a biopsy given her strong antibody positives.
  23. trents
    There is nothing in your CBC/CMP blood work that suggests problems. The breast lump and swollen lymph nodes on the same side would be a cause for concern and does need exploration. An abdominal MRI would not likely show the kind of damage caused by celiac disease I'm thinking. It's not the correct tool for this but it could show gross inflammation...
  24. trents
    You might want to do some research on allergy testing between now and then. Results can be unreliable due to a number of variables. I've had a couple of different allergy tests done. One by skin prick and the other serological. People often find that the symptoms they experience in real life don't line up well with allergy testing results. And if you send...
  25. trents
    So have you already had allergy testing done or is this future?
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