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trents

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Everything posted by trents

  1. trents
    The official pretest guidelines are the daily consumption of an amount of gluten equivalent to at least two slices of wheat bread for 6-8 weeks leading up to the blood draw. Less than that will likely drive the antibody test numbers down towards the negative end.
  2. trents
    Let me start over as I see there are four options from your original post and not just three. If cost is not a limiting factor, definitely go with the Celiac Disease Panel. The extra tests in this one can serve to catch somebody who actually has celiac disease but whose immune system is not producing typical antibody responses. And, if you can afford...
  3. trents
    First of all, I'll address your question about how could the doctor diagnose you with celiac disease and then tell your mother you could go back to eating normal after your biopsy was clear as a 21/2 year old. That he told her this comes as no shock to any of us veteran celiacs. We are well aware of the blatant ignorance of the medical community as a whole...
  4. trents
    This might be helpful: Check meds and supplements as well. Wheat starch is often used as a filler. Avoid restaurants like the plague. Even when you order food that would not naturally contain gluten you have no control over howe kitchen staff handles the food with regard to cross contamination. Are those gluten free spaghetti noodles being boiled in...
  5. trents
    Do you have diagnosed celiac disease?
  6. trents
    I just contacted the company and found out it is not gluten free. Bummer! I just ate a big chunk of it. It is delicious but not safe for celiacs. I have been eating it for awhile without any strong reactions but decided to contact the company today anyway. They replied to my email right away. I'm guessing the cultures are grown on a wheat substrate.
  7. trents
    It can be very challenging to eat gluten free when others in the house are not. But, I can't emphasize enough how important it is for your health for you to find a way to truly eat gluten free. If you want to be present for your kids and not sickly then you will find a way to do this. The inflammation caused by celiac disease damages the lining of the small...
  8. trents
    200 IU will not make any impact. That is much too low. I would recommend a minimum of 2000 IU but there are those on this forum who would recommend much more that that daily. Recommendations for D3 supplementation by the medical/scientific are all over the place. Some years ago there was concern about over dosing on D3 since it is a fat soluble vitamin and...
  9. trents
    200 IU of D3? Did you mean to type 2000 IU?
  10. trents
    More than likely you have celiac disease with the high tTG-IGA score and more than likely your biopsy will be positive. The original biopsy was negative years ago, probably because you were in the early stages of celiac disease or possibly the damage was patchy and enough samples were not taken. The other possibility is that you have NCGS (Non Celiac Gluten...
  11. trents
    Are you following a strict gluten free diet?
  12. trents
    Zinc is the number 1 deficiency in celiac disease. I thought it was B12.
  13. trents
    There are foods that are naturally high in histamines but you should also realize that all pickled foods are high in histamines and so are canned foods. Essentially any food that is preserved and sits in storage will increase in histamines with time. Just for your information as I'm not thinking this is your problem.
  14. trents
    Have you been tested for DH or celiac disease and have you been confirmed to have either by formal diagnosis?
  15. trents
    Could be dermatitis herpetiformis ("DH") which is a classic expression of celiac disease and which has no other known cause.
  16. trents
    This occurred to me as well when HectorConvector stated he only ate white, low fat meat and when the list of foods that followed that did not include fats or oils. Made me wonder if there was a deficiency of some fat soluble vitamin or vitamins. We have been sold a false narrative for many years by dietary science by being urged to eat a low fat high carb...
  17. trents
    Have you had a follow-up endoscopy/biopsy to check for healing of the villi? Have you heard of refractory celiac disease?
  18. trents
    Humans don't have the ability to digest cellulose. This is not the result of changes in the gut biome caused by antibiotics.
  19. trents
    How quickly could you get an appointment scheduled with your PCP? If you could see him the first part of next week and he was willing to do a blood draw and order a celiac panel it would expedite things by about 1 week. Then the GI doc you are seeing on Dec. 1 might decide to move ahead with the endoscopy/biopsy for confirmation. Hang in there and don't let...
  20. trents
    Jacky Bender, welcome to the forum! Currently, there are no tests to diagnose celiac disease that will give valid results if someone has already begun the gluten free lifestyle. Having said that, a positive diagnosis of DH is definite proof that you have celiac disease. There are no other medical conditions that cause DH besides celiac disease...
  21. trents
    The first thing to realize is that neither celiac disease or NCGS (Non Celiac Gluten Sensitivity) are allergic reactions. Celiac Disease is an autoimmune condition. It engages an entirely different immune system pathway than do allergies. So, allergy testing will not be helpful. Likewise, NCGS is not an allergy. Currently, there are no tests to directly diagnose...
  22. trents
    I think thyroid hormones work like blood pressure. Depending on the day and the time of day and probably a number of other factors, there can be considerable variance in results from different samples. It would probably be more helpful to get thyroid hormones tested several times over time at the same time of day. I know that this is not very practical. Given...
  23. trents
    Welcome to the forum GarbrielReita! We do know that celiac disease has neurological manifestations for some people. This is not at all uncommon. The fact that when you began to eliminate gluten from your diet there was some improvement does point to a problem with gluten. Your next step needs to be to get tested for celiac disease. The first...
  24. trents
    That is an area of the body prone to arthritis where the clavicles attach to the sternum. There is kind of a pseudo joint there. Does the pain coincide with getting glutened?
  25. trents
    Are you asking about this in relation to celiac disease?
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