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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    All your symptoms are common to celiac disease except maybe the elevated platelet count. I haven't heard that one before.
  2. trents
    I think that is the highest tTG-IGA value I have seen reported on this forum. Are you sure the laboratory doing the analysis didn't mistype when entering the report data? If that is a valid number, there is no wonder you are not assimilating the vitamin and mineral supplements you are taking. My guess would be your villi are badly damaged. Do you mind me...
  3. trents
    Welcome to the forum, Ace! Can you be more specific about the particular antibody test or tests that were done? There are a number of antibody tests that can done for celiac disease. The most commonly ordered test is the tTG_IGA. It is the most specific for celiac disease but not the most sensitive. Maybe this will help you to get a flavor for what I...
  4. trents
    Yes, there is a chance he could still have celiac disease. A full celiac antibody panel was not run and that should have been done since children often do not develop antibody responses in the same pattern as adults. Really, only one celiac antibody test was done and that was the tTG-IGA. The other one is just a total antibody count to make sure the total...
  5. trents
    Make sure the doc doing the scope not only looks for celiac but actually takes biopsy samples and sends them to a lab for microscopic analysis. Depending on the experience of the one doing the scoping, the resolution of the scope being used, and the extent of the damage it may not be visible to the naked eye.
  6. trents
    Living in a large metro area you will likely have resources to help you cope such as celiac support groups. There may even be gluten free eateries available where your family can dine without fear of cross contamination. The hardest part can be getting family and friends onboard in the sense of taking it seriously. Many people take the attitude that gluten...
  7. trents
    It is a very good thing that this was discovered at such a young age and it might prove to be a blessing for other family members in the since of being on the lookout for celiac disease. But this will have a major impact socially on all your lives it if is confirmed that your son does have celiac disease.
  8. trents
    Oh yes. If your son goes for further testing such as the edoscopy/biopsy he should still be consuming regular amounts of gluten. Many people sabotage the testing by starting a gluten free diet prior to testing. And many physicians don't know enough to tell them not to do that.
  9. trents
    Studies that show the chances of first degree relatives of someone with celiac disease having celiac disease themselves are all over the map. One large recent study done by the Mayo Clinic determined that is is 44% but the most common figure I have seen over the years is 10%. First degree relatives would be siblings and parents. Celiac disease can develop...
  10. trents
    Yes, it certainly looks like celiac disease. The gold standard for confirmation is an endoscopy with biopsy of the small bowel to check for damage to the villi. But docs are more reluctant to do something invasive like that on children than on adults.
  11. trents
    Cari, it definitely looks like he could have celiac disease. Do you have the reference range for each of those tests? They say "high" but the actual values aren't particularly large. Do you have the reference range for what is normal? Different laboratories use different standards. In the meantime, you might find this helpful: https://celiac.org/about-celiac...
  12. trents
    NCGS produces many of the same symptoms as celiac disease but does not cause damage to the small bowel villi, and hence does not produce positives on the antibody tests or with the endoscopy/biopsy of the small bowel. There is also the occasional situation where someone who really does have celiac disease tests negative for antibodies. The endoscopy/biopsy...
  13. trents
    Have you been checked for diabetes?
  14. trents
    What was your total IGA score and what is the reference range for that laboratory? If total IGA is low then it skews the individual tests downward. If you were practicing a low gluten diet for some weeks before testing that could be the reason for the low scores. You could also be looking at NCGS (Non Celiac Gluten Sensitivity). What made you look...
  15. trents
    And this happens regardless of what you eat? If you were to eat a plain meat patty would this be true?
  16. trents
    When giving dairy products to cats and dogs, vets advise starting with very small amounts but increases over time to give the animal's gut biome a chance to adjust by making more microbes that produce lactase. I think it works the same for most people. Many other examples of new foods introduced into the diet could be cited.
  17. trents
    Jackie, if you knew me well you would realize I like to play the "devil's advocate" as the old saying goes in order to make people think through the implications of their theories and also to gain clarity for myself on what they are saying. That is not to say I am not skeptical about your hypothesis but I just want you to know it is not a personal attack...
  18. trents
    You seem to be moving from the position that dairy causes celiac disease because of your claim that dairy is high in histamines to the position that gluten also causes high histamines. Such that, if you remove one or the other, the histamine level goes down and there is healing of the villi which allows some people to consume a certain amount of dairy without...
  19. trents
    As long as you don't intend to pursue additional testing, your next step would seem to be total elimination of gluten from your diet to see if the brain fog improves. But total elimination of gluten from the diet is not as easy as it sounds because wheat (particularly) is included in many, many prepared foods that you would neve suspect it to be in as well...
  20. trents
    Jackie Garrett, there is one factoid that contradicts your theory that dairy intolerance is the root cause of celiac disease rather than the other way around. And that is that some celiacs who are originally intolerant of dairy find that after their villi have healed they can go back to dairy without issue.
  21. trents
    So without the endoscopy/biopsy to confirm that there is or isn't damage to the villi, with what we have to go on being the limited antibody testing, I would look at NGCS as being the issue. You also have the option of asking for a more complete celiac panel: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. At any rate, whether...
  22. trents
    The Endoscopy/biopsy still is the gold standard, though in Europe more and more celiac diagnoses are being made with the blood tests alone.
  23. trents
    Those lab results do not indicate you have celiac disease. But there are instances where people who do have celiac disease test negatively on the labs, especially if they have already started eating gluten free previous to the blood draw. Is that true in your case? There is also the possibility that you have NCGS (Non Celiac Gluten Sensitivity) for which...
  24. trents
    There’s no way we can tell without reference ranges to know where negative ends and positive begins with that particular laboratory’s rating scheme. You need to give us more info.
  25. trents
    The tTG-IGA test is the most common one run by physicians. It is considered to be the most specific test for celiac disease but it suffers from being less sensitive than some others that can be run and hence, it misses some who actually do have celiac disease. The Immunoglobulin A is done to measure total IGA. If total IGA is low then you can get false negatives...
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