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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Ectopic heartbeats - any relation to digestive issues?
trents replied to cristiana's topic in Related Issues & Disorders
Better than an ectopic pregnancy I'm thinking. -
One piece of advice for increasing the odds for eating out safely that someone else on the forum gave recently is to call ahead to the restaurant, talk to the kitchen staff and plan menu items that are naturally gluten free. Then take along a bottle of GliadinX to cover the likelihood of getting a small amount of gluten from cross contamination.
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Scott Adams' Story of His Diagnosis of Celiac Disease
trents commented on Scott Adams's article in Diagnosis, Testing & Treatment
Celiac disease usually brings along other autoimmune conditions in time. Also, it is typical for celiacs to develop other food intolerances. Intolerance of dairy (casein) is the most common ones.- 173 comments
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Not sure what this means now
trents replied to Ellawells's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The most important thing for you to do about this is to begin eating totally gluten free. No medication will help much with the DH until you do that. You need to educate yourself concerning how and where gluten shows up in the food supply. It is found in many foods you would not suspect it to be. Like, soy sauce and canned tomato soup. It can be found in... -
If you plan on getting testing done for celiac disease, please be aware that you will have to go back on regular daily amounts of gluten (equivalent of 2 slices of wheat bread) for 6-8 weeks before serum antibody testing and at least 2 weeks before an endoscopy/biopsy.
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Not sure what this means now
trents replied to Ellawells's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yousasf, one of the classic signs of celiac disease is a skin condition called dermatitis herpetiformis, or DH for short. -
Diagnosed only 3 days ago with coeliac disease :-( Gliodan antibodies high and duodenal biopsies showed ‘subtotal villous atrophy’. Have done abrupt withdrawal from gluten and I honestly feel worse now off gluten than I did on it :-(
trents replied to Ailish's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
"does Lactose free cheese have Casein?" Lactose is the sugar component in dairy. Casein is the largest protein fraction in dairy. Removing the lactose does not affect the protein. Just for the sake of clarity, celiacs can be lactose intolerant but what I am saying is don't assume that is the issue. It could also be casein intolerance. If you use... -
Diagnosed only 3 days ago with coeliac disease :-( Gliodan antibodies high and duodenal biopsies showed ‘subtotal villous atrophy’. Have done abrupt withdrawal from gluten and I honestly feel worse now off gluten than I did on it :-(
trents replied to Ailish's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Casein is the primary protein in dairy so I'm not sure what you are saying here. Whey is another protein found in dairy but seems not to cause problems like casein does for some people. -
Diagnosed only 3 days ago with coeliac disease :-( Gliodan antibodies high and duodenal biopsies showed ‘subtotal villous atrophy’. Have done abrupt withdrawal from gluten and I honestly feel worse now off gluten than I did on it :-(
trents replied to Ailish's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Whoops, typo. Let me correct it: "The studies that I referred to above also concluded that most of the subjects who claimed to be gluten free but were not were still dining out. Eateries appear to be the biggest threat to otherwise conscientious celiacs. -
Diagnosed only 3 days ago with coeliac disease :-( Gliodan antibodies high and duodenal biopsies showed ‘subtotal villous atrophy’. Have done abrupt withdrawal from gluten and I honestly feel worse now off gluten than I did on it :-(
trents replied to Ailish's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It usually isn't the lactose that's the issue with dairy for celiacs. It's the protein casein found in dairy products. For some people, it can cause villi blunting like gluten does. Digestive enzymes are generally not helpful for celiacs. A good substitute for oats is buckwheat. Highly nutritious and delicious, IMO. Buckwheat is related to rhubarb and is... -
Diagnosed only 3 days ago with coeliac disease :-( Gliodan antibodies high and duodenal biopsies showed ‘subtotal villous atrophy’. Have done abrupt withdrawal from gluten and I honestly feel worse now off gluten than I did on it :-(
trents replied to Ailish's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The studies that I referred to above also concluded that most of the subjects who claimed to be gluten free but were not were still dining out. Eateries appear to be the biggest threat to otherwise conscientious celiacs. -
Diagnosed only 3 days ago with coeliac disease :-( Gliodan antibodies high and duodenal biopsies showed ‘subtotal villous atrophy’. Have done abrupt withdrawal from gluten and I honestly feel worse now off gluten than I did on it :-(
trents replied to Ailish's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, Ailish! Some of our forum members have reported "gluten withdrawal" symptoms when first quitting gluten. Also, it can take quite a while to catch on to the many places gluten can be found, not only in the food supply but in medications and supplements. Recent studies have shown that most people who believe they are eating gluten... -
Refractory Celiac?
trents replied to J Morgan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes. -
Refractory Celiac?
trents replied to J Morgan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
A number of autoimmune diseases are associated with celiac disease. It is very common for celiacs to develop other autoimmune conditions over time. -
Serology Tests Post Covid Vaccination
trents replied to plumbago's topic in Related Issues & Disorders
What antibodies are you talking about as having spiked? Celiac antibodies or COVID? This is not clear to me from your post. -
Diagnosed with celiac a little too soon
trents replied to Ruu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You may also have non celiac gluten sensitivity. Symptoms are a lot the same but there is currently no test for it so first you rule out celiac disease. The rememdy is also the same, namely, abstinence from glute for a lifetime. -
Nearly Two out of Three GI Endoscopes Contaminated with Retained Biopsy Samples
trents commented on Scott Adams's article in Additional Concerns
It also makes me wonder if when a biopsy sample is sent to a lab for analysis of potential celiac disease, whos tissue is being evaluated? Yours or the person who was scoped before you?- 4 comments
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Hopping Between Physical GI Symptoms and DH
trents replied to Moonchild94's topic in Dermatitis Herpetiformis
"Dapsone is a small molecule with anti-inflammatory immunosuppressive properties as well as antibacterial and antibiotic properties. It is used clinically to treat leprosy and malaria, and is being investigated for the treatment of a variety of skin infections." (from https://www.alzforum.org/therapeutics/dapsone#:~:text=Dapsone is a small molecule,a variety... -
I have not heard of this particular symptom before in the celiac community. But I wonder if you are experiencing an allergic reaction to gluten or wheat as opposed to a celiac reaction.
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All foods contain histamines but some are naturally high in histamines like bananas and avocados and many fruits. Aged, pickled and dried things are especially high in histamines as are canned foods. All foods increase in histamine levels over time when stored as in canned or preserved. There are also over the counter DAO supplements that purport to help...