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trents

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Everything posted by trents

  1. trents
    May we ask, are you male or female. An important fact when talking about hair loss. I'm 70 now and I lost most of mine some years ago. Now I shave my head every other day so I'm bald and don't have to fuss with the little that is left. I was diagnosed with celiac disease twenty years ago but realize now I had it for many years before it was diagnosed...
  2. trents
    That does help me understand what you were trying to say, cristiana. The article in the link (and reflected in your post) is distinguishing between concentration of gluten in food item and total gluten consumption over a day's time. That is a concept I don't think I have ever seen discussed anywhere else and certainly not on this forum. I think it is an important...
  3. trents
    Cristiana, I'm not sure what you are trying to say here. You seem to be contradicting yourself by saying in one place that 20ppm is deemed safe but then immediately lower it to 10ppm in order to be safe. Could you clarify your intent here?
  4. trents
    "Free from" is not one I have seen but judging from your spelling of "coeliac" it must be a UK thing.
  5. trents
    The proof is in the pudding, isn't it!
  6. trents
    Sometimes villi blunting can be very patchy and depending on where the samples for the biopsy were taken, the damaged areas could have been missed. The tTG-IGA is considered to be very specific for celiac disease. There are other antibody tests for celiac disease can be done that are less specific but more sensitive. So, when the tTG-IGA is clearly positive...
  7. trents
    Age is always against you except for wisdom and senior discounts.
  8. trents
    Ella, There are many "silent" celiacs out there who, like you have very minor or no GI symptoms. This is not that unusual and is a very big misconception, even within the medical community.
  9. trents
    With no instant replays, please!
  10. trents
    All your symptoms are common to celiac disease except maybe the elevated platelet count. I haven't heard that one before.
  11. trents
    I think that is the highest tTG-IGA value I have seen reported on this forum. Are you sure the laboratory doing the analysis didn't mistype when entering the report data? If that is a valid number, there is no wonder you are not assimilating the vitamin and mineral supplements you are taking. My guess would be your villi are badly damaged. Do you mind me...
  12. trents
    Welcome to the forum, Ace! Can you be more specific about the particular antibody test or tests that were done? There are a number of antibody tests that can done for celiac disease. The most commonly ordered test is the tTG_IGA. It is the most specific for celiac disease but not the most sensitive. Maybe this will help you to get a flavor for what I...
  13. trents
    Yes, there is a chance he could still have celiac disease. A full celiac antibody panel was not run and that should have been done since children often do not develop antibody responses in the same pattern as adults. Really, only one celiac antibody test was done and that was the tTG-IGA. The other one is just a total antibody count to make sure the total...
  14. trents
    Make sure the doc doing the scope not only looks for celiac but actually takes biopsy samples and sends them to a lab for microscopic analysis. Depending on the experience of the one doing the scoping, the resolution of the scope being used, and the extent of the damage it may not be visible to the naked eye.
  15. trents
    Living in a large metro area you will likely have resources to help you cope such as celiac support groups. There may even be gluten free eateries available where your family can dine without fear of cross contamination. The hardest part can be getting family and friends onboard in the sense of taking it seriously. Many people take the attitude that gluten...
  16. trents
    It is a very good thing that this was discovered at such a young age and it might prove to be a blessing for other family members in the since of being on the lookout for celiac disease. But this will have a major impact socially on all your lives it if is confirmed that your son does have celiac disease.
  17. trents
    Oh yes. If your son goes for further testing such as the edoscopy/biopsy he should still be consuming regular amounts of gluten. Many people sabotage the testing by starting a gluten free diet prior to testing. And many physicians don't know enough to tell them not to do that.
  18. trents
    Studies that show the chances of first degree relatives of someone with celiac disease having celiac disease themselves are all over the map. One large recent study done by the Mayo Clinic determined that is is 44% but the most common figure I have seen over the years is 10%. First degree relatives would be siblings and parents. Celiac disease can develop...
  19. trents
    Yes, it certainly looks like celiac disease. The gold standard for confirmation is an endoscopy with biopsy of the small bowel to check for damage to the villi. But docs are more reluctant to do something invasive like that on children than on adults.
  20. trents
    Cari, it definitely looks like he could have celiac disease. Do you have the reference range for each of those tests? They say "high" but the actual values aren't particularly large. Do you have the reference range for what is normal? Different laboratories use different standards. In the meantime, you might find this helpful: https://celiac.org/about-celiac...
  21. trents
    NCGS produces many of the same symptoms as celiac disease but does not cause damage to the small bowel villi, and hence does not produce positives on the antibody tests or with the endoscopy/biopsy of the small bowel. There is also the occasional situation where someone who really does have celiac disease tests negative for antibodies. The endoscopy/biopsy...
  22. trents
    Have you been checked for diabetes?
  23. trents
    What was your total IGA score and what is the reference range for that laboratory? If total IGA is low then it skews the individual tests downward. If you were practicing a low gluten diet for some weeks before testing that could be the reason for the low scores. You could also be looking at NCGS (Non Celiac Gluten Sensitivity). What made you look...
  24. trents
    And this happens regardless of what you eat? If you were to eat a plain meat patty would this be true?
  25. trents
    When giving dairy products to cats and dogs, vets advise starting with very small amounts but increases over time to give the animal's gut biome a chance to adjust by making more microbes that produce lactase. I think it works the same for most people. Many other examples of new foods introduced into the diet could be cited.
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