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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Somebody else recently posted the same thing about being able to eat bread without celiac issues while visiting another country (and I think it was Finland). This needs some investigation IMO. But also keep in mind that it may not hold true for all celiacs.
  2. trents
    Actually, there was an NIH study someone posted on the forum in the past year that did show at the very finest microscopic level that villi may never be quite what they were pre celiac. But, we still seek the most complete healing possible and that's all we can do. It certainly is better than finding little or no healing. How much, how fast can not only depend...
  3. trents
    Kissing someone who has recently eaten gluten containing food can cause a celiac reaction.
  4. trents
    A couple of years or more on the average, maybe, for full healing. A lot depends on how successful you are in avoiding gluten. Every time you get "glutened" it is a setback in healing. Substantial healing can happen sooner, however, and you should start feeling better within weeks of cutting out gluten.
  5. trents
    Could be coincidence.
  6. trents
    It seems to me that thiamine/B vitamin deficiency is the result of celiac disease, not the cause of it. And too much fiber in the diet can be detrimental to health as fiber absorbs and hold onto nutrients. It's like a lot of things. Balance is in order. Extremes are generally unhealthy.
  7. trents
    Gluten test? Do you mean a celiac disease serum antibody test?
  8. trents
    Kind of a irrelevant discussion in that these sensors and their capsules are no longer being manufactured. So this is relevant only for those who already own the sensors and have a good stockpile of capsules.
  9. trents
    The low end of normal for platelets is 150k. Physicians don't get excited about changes in blood parameters until they fall significantly out of normal range. As we age it is common for platelet count to drop due to clumping.
  10. trents
    Keep us posted. I wouldn't think that frozen green beans would be processed on the same equipment as gluten containing food stuffs but that's the only thing that could explain this unless it was the chips your reference, which sounds more likely. Are you certain there was no CC in the meal prep at home?
  11. trents
    Were these canned or frozen? Do all the family members who ate those beans have celiac disease? I'm thinking the illness was caused by something else besides the green beans and if it was the beans causing the illness that it was not due to gluten but some kind of bacterial contamination.
  12. trents
    Perhaps, I am wrong about NCGS producing essentially the same long term health risks as Celia Disease. I certainly was guilty of an over statement at least. Found this: "In addition to experiencing GI symptoms, patients with NCGS most often experience a complex of extra-intestinal symptoms, including a “foggy mind”, which is described as an inability to ...
  13. trents
    Hi, Sharon, and welcome to the forum. It would be more proper forum etiquette if you were to start your own thread and ask this question. We would be glad to help you but we don't want to derail the thread started by Makky.
  14. trents
    Oh, yes. Concerning low IGA. Low IGA will skew the results of the blood antibody tests and many times create false negatives. It also needs to be said that the same tests used for diagnosing celiac disease in adults are not as reliable when used with children. Young body systems just react in different ways to the same disease processes. https://www...
  15. trents
    Welcome to the forum, Gpcoop93. Unfortunately, we here this same story over an over about physicians failing to inform their patients that they should remain on normal amounts of gluten until testing is complete. There generally is much ignorance in the medical community about gluten-related maladies and many doctors still have a dismissive attitude...
  16. trents
    Well, if wheat didn't trigger a response then that rules out celiac disease or gluten sensitivity for the present. A recent study involving around 400 related people showed a 44% chance that the first degree relatives of those with celiac disease will have or will develop celiac disease. It takes both the genetic potential and some kind of stress trigger...
  17. trents
    Thyroid hormone levels, like blood pressure readings, are very variable and it can be difficult to pin down by one blood test done at a point in time. Symptoms may be a better indicator.
  18. trents
    Your son with FPIES, has he been tested for celiac disease? One of the things to grasp about celiac disease is that it is not an allergy. It is an autoimmune disease. It is IGA mediated, not IGE mediated, just like FPIES. I'll take a wild stab at the food sticking in the esophagus issue. So here goes. One of he common health spinoffs of celiac disease...
  19. trents
    QLisa, welcome to the forum! I hope you had not already started trying to eat gluten free before the blood draw as that may invalidate the results. Reflux/GERD is common among those with celiac disease. The gold standard for diagnosing celiac disease is the endoscopy with biopsy of the small intestine lining. Celiac disease damages the lining...
  20. trents
    Itchy anus can be caused by many things. I have this sometimes but it's always associated with a little leakage of stool. One thing that can contribute to this is caffeine. Caffeine is thought to relax the sphincters in our digestive system and can cause both GERD and itchy butt. After I cut out coffee it got a lot better. Coffee and tea are also very acidic...
  21. trents
    Welcome to the forum, GFfireman! You mentioned you had some food intolerance testing done. Have you specifically been tested for celiac disease as opposed to gluten intolerance? They are not the same even though both involve problems with gluten. There are specific blood antibody testes that can be run to diagnose celiac disease vs. gluten intolerance...
  22. trents
    They do not naturally contain wheat, barley or rye so they should be gluten free. Are you concerned about cross contamination?
  23. trents
    He could also have NCGS (Non Celiac Gluten Sensitivity) for which there is currently no diagnostic test per se. It is diagnosed by symptomatically reacting to gluten consumption similarly to those with celiac disease when the celiac tests are negative. In large part, the symptoms are the same, the long term health risks are the same and the antidote is the...
  24. trents
    First, I want to be clear what you mean by saying your hubby is doing the "gluten challenge." We normally use that term to mean that someone who has been on a gluten free diet is temporarily going back on gluten in order before testing in order to ensure that the tests are not invalidated. People with upcoming celiac disease testing need to be eating regular...
  25. trents
    Are you serious? What flavor?
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