trents
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Good advice, Kate, about the excessive amount of processed food products the OP is using. Your admonishment about using the term "refractory" when responding to a newbie post is well-taken but my concern was that after making a serious attempt to eat gluten-free for five months there should have been some improvement in symptoms and blood work. Correct... -
Because of damage to the small bowel villi and resultant "leaky gut syndrome," Celiacs often develop allergies/intolerances to non gluten foods. Allergies/intolerances to dairy and soy are very common but it can be almost anything, like corn, for instance. But since you are still producing celiac antibodies it would seem you are getting gluten from cross...
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There are many contributors to this forum that will tell you that many products labeled "gluten free" aren't gluten free enough to prevent them from having a reaction when consumed. Apparently, the FDA standard of 20ppm is not stringent enough for some. And I note that nothing on our list is "certified gluten free" as opposed to "gluten free." https...
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The vast majority of the things on your list would be naturally gluten-free and would not come in contact with gluten in production. If the chicken and steak are fresh and not breaded then cross them out too. I would be suspicious of any processed foods labeled "gluten free" that you may be using. Look for "Certified gluten-free" for any processed foods you...
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"I consulted a gastroenterologist 2 months after going gluten free, we did a test. He said I hadn't been gluten free long enough for the antibodies to disappear - but it came back negative for celiac. (I did IGA and TTG)." Yeah, I don't know if he was correct about that.
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Not necessarily so. I gained 10 lb. after diagnosis and going gluten-free. There are still lots of carby foods you can eat to replace the carbs from bread and noodles you used to eat. And many celiacs gain weight after going gluten-free because they now absorb nutrients better.
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That's a tuff one. Kids that age tend to be picky eaters and to put things like baked potatoes, steamed rice and steamed veggies in front of them won't be appealing. We typically advise even adult celiacs to avoid eating out if possible because studies show that's where gluten cross contamination happens most often. If an eatery had fresh fruit, that would...
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As you mentioned, for the reason of confirmation, it is good if you can get an official diagnosis. There is a psychological benefit to this as many people find it difficult not to cheat on their gluten-free diet until they do. It can also help convince family and friends but don't kid yourself, there will still be those who would remain unconvinced. Some...
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How old are the kids?
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Pain under the breastbone could be GERD. That is common with celiacs and you are in the right age group for those kind of problems to develop anyway. There is a tendency for people with gluten related disorders to blame all physical and medical problems on that but we are still subject to the same things that everyone else is.
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Some good questions. Historically, DH has been a classic marker for celiac disease but now we know that there is more than one gluten-related disease. There is also the thought that DH and other gluten-related health problems may be the precursor to full-blown celiac disease. So it is possible that in time you would test positive on an endoscopy if you continued...
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Earlier this year my wife made some gluten-free biscuits for me and some wheat biscuits for herself and put them in separate zip lock bags. She penned her name on her baggie and my name on mine. The biscuits themselves looked almost identical. Just before turning in for bed I got hungry and ate two or three of her biscuits by mistake before I happened to...
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Yes, that is totally normal. Works that way for me. I think that is about the time it takes for food to move from your stomach into your small bowel.
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All of them or just the one you had experience with in your celiac journey? That's a pretty broad swipe you made. They may be like doctors. Some doctors are up on celiac disease and some aren't. Some dieticians will have good knowledge on how to avoid gluten and some not. Some of them may have celiac disease themselves and have the personal experience and...
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Blood Test Results Help
trents replied to kbial's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"The finding of tissue transglutaminase (tTG)-IgA antibodies is specific for celiac disease and possibly for dermatitis herpetiformis. For individuals with moderately to strongly positive results, a diagnosis of celiac disease is likely and the patient should undergo biopsy to confirm the diagnosis." https://www.mayocliniclabs.com/test-catalog/Overview/... -
Be aware that kissing someone who has recently consumed gluten can be a source of cross contamination. For very sensitive celiacs that could be an issue.
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Stress can trigger the onset of latent celiac disease but I don't know that it would make it worse in those who have already developed celiac disease. But, on the other hand, stress makes most things worse and digestive/gut issues caused by stress are common and might be difficult to separate from celiac symptoms.
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Yes. Emotional trauma can be the trigger for activating latent celiac disease.
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I would be careful of with cutting out too much fat from your diet. Some vitamins are fat soluble. And if you are eating a low fiber diet that will contribute to constipation.
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It's impossible to tell if there are no reference numbers to compare it to. Labs don't all use the same scales.
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Meat Glue Ingredient Triggers Symptoms in Celiacs and Could Promote Disease
trents commented on Jefferson Adams's article in Latest Research
I hear you. I think most of us had these same thoughts after reading the article. At some point you just have to draw a line. We've got to eat something to stay alive. -
Meat Glue Ingredient Triggers Symptoms in Celiacs and Could Promote Disease
trents commented on Jefferson Adams's article in Latest Research
Then you should cut out tofu as well. -
Just diagnosed celiac and terrified of MS
trents replied to Kyleweber's topic in Related Issues & Disorders
I'm not sure I would vouch for the idea that treated celiac disease does not lead to other autoimmune disorders. For one thing, we now know that the healing of the villi may never be total, even on a strict gluten-free diet. There was an NIH article posted this summer on the forum that showed when more in depth analysis of the villi, more than you would... -
Don't decide to go gluten free until you have discussed the results with your doctor. He may want to have an endoscopy/biopsy done and if you have already been eating gluten free it would likely invalidate the results because of the healing having already taken place.
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Six Ways Celiac Disease Can Kill You
trents commented on Jefferson Adams's article in Additional Concerns
Gluten free vitamin and mineral supplements should help with that. Have you been tested for vitamin and mineral deficiencies? Have you had a followup endoscopy sense being diagnosed to check for healing in the small bowel villi? Most people who think they are eating gluten free really aren't according to several recent studies. Particularly those...
