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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    The same could be said about many diseases. The immune system is incredibly complex.
  2. trents
    Beverage, about 10% of celiacs react to the protein in oats, avenin, the same as they do wheat gluten. It may not be that gluten cross contamination is your issue with oats but cross reaction with avenin.
  3. trents
    Also, testing for celiac disease is invalidated if you have already placed yourself on a gluten free diet.
  4. trents
    What is the Prilosec supposed to do for the dermatitis herpetiformis? Prilosec is a GERD med.
  5. trents
    Welcome to the forum, @emilyyy! Countless contributors to this forum have found themselves in the same conundrum as you. But I think you have your answer. Your greater well-being since instituting a gluten free diet is not a placebo effect. However, it seems to be true that some people do need an official diagnosis to help them stay on the gluten...
  6. trents
    This may be helpful in understanding what tests are run for celiac diagnosis and which are the most reliable. I should also add that many people are not warned by their physicians that they should not begin the gluten free diet until all testing is complete. Doing so likely sabotages the results and creates false negatives.
  7. trents
    Found this: https://www.healthyhearing.com/report/52556-Can-antibiotics-cause-hearing-loss
  8. trents
    Can Minocycline cause damage to the inner ear or some component of the vestibular system? Nausea and dizziness are often closely related and dizziness can be caused by inner ear/vestibular system problems. And Dramamine is often prescribed for those who are experiencing nausea, say from sea sickness/motion sickness which, of course, involves the inner ear...
  9. trents
    Welcome to the forum @B1rdL0ver! And why were you taking Minocycline and how long? Have you been checked for SIBO (Small Intestine Bacterial Overgrowth)?
  10. trents
    There is a very short time window allowed for adding an attachment. This is purposeful as it helps thwart spammers. However, when you open a new post window you should see a paperclip symbol at the bottom and a message saying you can also just drag the file over. Having said that, a lot of users complain they cannot do attachments so I'm not sure if that...
  11. trents
    The doctor dropped the ball. I can't understand why he did not schedule for a follow-up appointment to discuss your results. But he may have elected to not use the term "celiac" because it is unfamiliar to many or most people whereas most people are aware that "gluten" causes problem for some folks for one reason or another. It is common for celiacs...
  12. trents
    Welcome to the forum, @celiacpaula! First, a colonoscopy cannot be used to diagnose celiac disease. Celiac disease causes damage to the small bowel (the part of the intestines just below the stomach). A colonoscopy cannot reach up that far. The kind of scoping that is used for diagnosing celiac disease is called an endoscopy (aka, "upper GI"). Having...
  13. trents
    I understand your concern about the health risk you face with continuing to consume gluten. However, what happens when you go off gluten is that inflammation in the small bowel subsides and healing of the villous lining begins. It is the damage to the villous lining of the small bowel that the endoscopy/biopsy is looking for. They will send the biopsy off...
  14. trents
    By the way, I should ask you about your testing. What tests have been run so far? Blood antibody tests? Have you already been officially diagnosed as having celiac disease? Has there been mention of a second stage of diagnostic testing which consists of an endoscopy with biopsy of the small bowel lining to check for the actual damage caused by celiac disease...
  15. trents
    I'm betting your are in the throws of gluten withdrawal. Gluten has an opiate-like addicting effect and this is well-known by the celiac community. And being currently in menses is probably exacerbating the effect. By the way @goatmanvevo, welcome to the forum!
  16. trents
    There has been a lot of controversy over Degiorno gluten free pizza products being safe for celiacs. I think at one point the company actually removed the gluten-free advertising claim. Anyway, they are now claiming GFCO certification. Not sure if this represents a tightening of quality control or an entirely new formulation or a more effective gluten removal...
  17. trents
    Boy, it's really tough to avoid gluten when you travel a lot and have to eat out. Studies have shown it's the number one sabotager of gluten free eating. You may order what seems to be gluten free menu items but you have no control over how it's prepared and handled back in the kitchen. Likely it's being cooked on the same surfaces and in the same pots and...
  18. trents
    So, I'm not clear on whether you are saying your are reacting to minute amounts of gluten in supposedly "gluten-free" foods or cross reacting to other non-gluten foods.
  19. trents
    D3 (5-10k IU daily), magnesium glycinate or magnesium citrates and zinc to start with. I wouldn't take calcium long term. It can contribute to cardiovascular disease. Absorption of calcium is usually the problem rather than low dietary intake. Are you on a proton pump inhibitor (PPI) or other acid blocker? Having sufficient gut acidity is a key in proper...
  20. trents
    You are also at an age where you may be naturally beginning to lose muscle mass due to falling testosterone levels. Your decrease in activity level . . . Any particular reason for that? One thing to consider is that gluten containing flours are fortified with vitamins and minerals ala USA federal mandates. Now I am assuming you are in the USA. Gluten...
  21. trents
    Welcome to the forum, @DHaney! May we ask, are you male or female? Women tend to store body fat below the belt whereas men tend to store it in the belly. Have you lost weight or gained weight as a whole since going gluten free? Are you consuming approximately the same amount of protein and calories as before going gluten free? Have your...
  22. trents
    Consider also that your hormone med could be a source of gluten. Wheat starch can be used as a filler in pills. You might want to research that through the dispensing pharmacy.
  23. trents
    Yes, the extra data is more helpful. The most widely used test by physicians when testing adults for celiac disease is the tTG-IGA. It is considered to combine excellent sensitivity with good specificity, specificity meaning a positive is not likely to be caused by some other medical condition. However, the tTG-IGA is not as reliable for children...
  24. trents
    Which IGA? There is more than one IGA test. Please see the link I have embedded that summarizes celiac antibody testing. And could you please included the reference ranges for what is normal (negative) for the tests you cite? Each lab uses it's own reference ranges. There are no industry standards. Also, did the same lab evaluate the most recent tests that...
  25. trents
    Welcome to the forum, @ALLAN HUGHES! Have you been checked for a special kind of anemia known as pernicious anemia? It results from the destruction of the autoimmune destruction of the parietal cells that line the stomach which produce an enzyme known as "intrinsic factor" needed to absorb vitamin B12 which, in turn, is necessary to the assimilation...
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