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mommida

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mommida

  1. mommida
    Yes there is a proven link between Celiac and Eosinophilic Esophagitus. (if I remember right JAMA October '12 or even as early as '11) It has lead to the reccomondation that all new cases of EE be screened for Celiac. My daughter was diagnosed with "probable" Celiac at 17 months old and EE when she was 6 years old. (Her EE diagnosing scope was done...
  2. mommida
    Puce is not only an awful sounding word, it is an awful color too. Just checked on fashion trends for home decor. 70's glam. Seriously!!?
  3. mommida
    I am so glad for your son! Yes there is a withdrawal period when you remove gluten from your diet. I also think it takes about 4 months for your taste buds to adjust to gluten free. Maximoo, Can you find out more infomation about growth after a girl's cycle starts? I have heard both theories, but why?
  4. mommida
    First birth, 8lb 5 oz. sunny side up kid (who changed his mind halfway out. Seriously he decided he would grab hold and refuse to budge after head and shoulders were out. All his fingernails were broken backwards from trying to hold on. Mind you from the sunny side up STUCK position he had a big blister on his head when he was born. No pain medication...
  5. mommida
    Some people have seen this from undigested bits of vitamins. Parasites? I'm sure you want to stop reading now...
  6. mommida
    Can you try a compromise? Meatless Mondays. I noticed for my own health I needed to supplement Biotin. It is naturally found in animal liver. I just can not force myself to eat it. There have been warnings for years of animal liver products having more environmental toxins too. Olympians had to remove animal liver from thier diets because they...
  7. mommida
    I think this can resolve on a gluten free diet and better absorbtion of vitamins, minerals, and fats. So work with her doctor and definately explain what is going on, so further tests can be run.
  8. mommida
    My daughter was too sick to have the biopsy done at 16 months old. She was hospitalized days after the blood draw for the Celiac panel for dehydration. She was diagnosed "probable Celiac" from positive panel and DQ2 and DQ8 Celiac genes. Things seemed fine on the gluten free diet diet until she was 6 years old. It seemed she was having gluten sympptoms...
  9. mommida
    Ok thank you. I would like to make frosted mini muffuns.
  10. mommida
    You could also try a (gluten free) probiotic and/or digestive enzymes supplement. Keep a food journal to help determine if you have another food sensitivity,
  11. mommida
    OK so I need to know what size can are you using for the recipe? Are you frosting with a cream cheese frosting?
  12. mommida
    Well sometimes I just use LARD for baking. (please don't start hating on me now) Ghee is the best suggestion. For a spread on sandwiches and such I love hummus! YUM mashed avocado or guacomale. They both have a creamy texture and add some moisture to sandwiches.
  13. mommida
    Can you go over the test results again and check for eosinphil counts? (This should also be on the pathology report of the biopsies taken.) It is more of a "new hard to diagnose" catagory of eosinophilic gastro. disorder. There is now a proven link between Celiac and eosinophilic esophagitus. This could explain some improvement on a gluten free diet diet...
  14. mommida
    You are all very new to the gluten free diet. Some individuals really come to a point of health at 2 years after starting the gluten free diet. ( you definately should feel better, but all the tests for liver enzymes and such that have wanky results before going gluten free start coming back normal.) ~ Your gut has to heal from damage. You may not...
  15. mommida
    You are right to have your pancreas checked. I would just reading (light skimming tease article) about the pancreas and how some some very early signs are some things I tend to take for granted because of Celiac. Fat malabsorbtion and weight loss. A breast lump could be a normal reaction to too much caffiene. They never seem to put that information...
  16. mommida
    You have documented damage in the small intestine. ( Did you get any picutes from the pill cam?) Remember, I am not a doctor. I feel the signs of a food/protein are showing up in your results. There is damage, but it is not out of the normal ranges. The eos, eosinophil count, is higher in the specific area tested. (In adults diagnoses is done by...
  17. mommida
    Get the kids tested ASAP! If they are going through the scoping make sure there is a pathology request for eosinophil count. I would take the house gluten free, you will learn about cross contamination. Try not to be discouraged about not liking gluten free foods at first. It took about 4 months for my taste buds to adjust. Have a gluten free snack...
  18. mommida
    Ask what the eosinophil count was. I advise you to research Eosinophilic Esophagitus. Barret's esophagus Nutcracker Syndrome Now when you look at the results, know why these possible disorders were ruled out, if they were even tested for. Could you please give further details about PFAPA?
  19. mommida
    I just want to add when we had genetic testing for Celiac with Prometheus labs we got back confusing results. This genetic test was said to be at least 99% accurate. So when my test result did not have a close enough match to my biological daughter, we had questions. So Prometheus labs would not do the testing over and offered these reasons.. the known...
  20. mommida
    Yes there are other diseases/disorders that present with the same symptoms as Celiac. H. Ployri parasites hernia the list is quite long and I can't remember the top 8 most likely diagnoses. (I don't count IBS as a diagnoses) Eosinophilic disorders can be diagnosed anywhere in the GI track and also has a food "trigger" (not an actual allergy). Some...
  21. mommida
    I think your state will have "homebound" student exemptions too. It is not easy, but all her work is sent to your home with a teacher visit once a week. Some states are starting more on-line options for PUBLIC school as well as private school options. Connections Academy (make sure you are in the public school option) and K 12 are two cyber schools that...
  22. mommida
    I can't wait to get an extra hour of sleep! It does help to have more light during your waking hours too. People start to stagger around like zombies during this time of the year, until the time changes.
  23. mommida
    That is the point, Michigan has had some residual weather from a very strong hurricane before. I think about every 7 years we get some rainy weather from winding down cyclones. This storm was soo big we had the rain, wind, and cold BEFORE Sandy even made landfall. This was the first time we had to listen to wind all night long and wonder if the house construction...
  24. mommida
    Let the kids trade some of the bounty with their friends. Give some of it to the teenager who thought they were too cool or too old to go out begging. Did they have a friend that wasn't feeling well enough to go out? Give it to them. We also gave it to teachers before.
  25. mommida
    In Michigan... A road was closed when I was out. A lot of strange debri in the road. Power has been flickering.
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