Jump to content

mommida

Advanced Members
 View Profile  See their activity

  • Posts

    2,918

  • Joined

  • Last visited

  • Days Won

    7

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mommida

  1. mommida
    I suggest you find a pediatric gastroenterologist try find out if there is a misdiagnoses here. It is possible to have more than one auto-immune issue. If the lab work wasn't ordered for eosinophil count, the kids weren't tested for it. There is now a known connection to Eosinophilic Esophagitus and Celiac. Eosinophilic conditions can exist anywhere...
  2. mommida
    My daughter has Eosinophilic Esophagitus and Celiac. There is a connection between the two (recently reported ?JAMA? October 2011).
  3. mommida
    The way my daughter's EoE symptoms developed, a scope was how she was diagnosed. She didn't have any food stuck in her throat before diagnoses. Good luck for your testing on Tuesday. Please keep us informed on how things are going.
  4. mommida
    I try and warn new people that you will find out who your friends are. You have to learn to live with the new diagnoses, changing your diet, and akward social situations. The rose colored glasses have to come off too. Your family and friends tend to show a different side that you haven't seen before. I can't put up with someone who puts Celiac (me)...
  5. mommida
    It could also be symptoms of a hernia. But honestly, the best way to get answers is for an endoscopy with biopsy.
  6. mommida
    There really can be food stuck. The eosinophils damage the esophagus with inflammation, furrows, schatzki rings (rings of inflammation that keep tightening down to the point there may be a need for surgery to dilate). Oddly enough young patients complain of the WHOLE belly area hurting and constipation is an on-going battle. Constipation to the point...
  7. mommida
    Get to a gastro. doc. as soon as you can. You should be checking for Eosinophilic Esophagitus (by the way has a proven connection to Celiac). You have not listed tons of symptoms for this, but it can cause food to be stuck in the esophagus.
  8. mommida
    Keep in mind that some reactions to food(S) or airborn allergens can last 12 days.
  9. mommida
    It could be Celiac, so you need to continue eating gluten for testing. Feeling faint upon standing could be POTS. Continue with your testing and remember there is growing evidence that a gluten free diet can be very helpful in many auto-immune diseases. Remember to get all copies of your test results.
  10. mommida
    Well I remember a few makes and models of automobiles. I do remember that hump thing (as described by IH too). Adding lemon bars to the some of the images in my mind... Powdered sugar!!? right
  11. mommida
    I agree with RAvenwood. Take a multivitamin and up the Biotin and B12 with additional supplements. Both B12 and Biotin are not known to have any toxity level. Liquid form would be best for vitamins for quick absorbtion.
  12. mommida

    ARCHIVED Hair!

    mommida replied to bartfull's topic in Coping with Celiac Disease

    There is a POSSIBLE link between B12 defiency and premature greying. (also a possible link for geographic tongue) I really suggest the Biotin. Biotin would naturally be found from eating animal liver. I seriously doubt many of us are eating enough Biotin in our diets. (that and there has been warnings for years about too much contamination in...
  13. mommida
    I've replied on the youth posts too. Sometimes the younger ones do need a "grown up" for a different point of view. I lost count of nieces and nephews after 27. Expecting to be a great aunt by October.
  14. mommida
    Carob is tyramine FREE! But it is considered a cousin of the pea (legume ~ soy) I would consult a nutritionist/ allergy specialist. Quick search information says white chocolate does not contain tyramine either.
  15. mommida
    Sorry this happened to you original poster. Well this hasn't killed you, and gluten free is just going to make you stronger! Welcome to the forum! I'm sure you will stick around and learn a lot and have some fun.
  16. mommida
    Hang in there kiddo. We all have adjusted to gluten free. You can take the substitute choices for old favorites and make do with this too. A little on-line help from friends for some research ideas please. Give us more basic infomation on your new avoid list. Carob? White chocolate (which I really have heard isn't chocolate at all)? Vegan...
  17. mommida
    This should have been visible in the scope. Sometimes the eosinophils are embedded into "normal" looking tissue. No diagnoses will be made if the pathology order doesn't list an eosinophil count. Make sure your gastro. is up to speed on EoE. Testing should be done because 1. negative symptoms are affecting your child, 2. there is a known connection between...
  18. mommida
    There is now a proven connection to Eosinophilic Esophagitus for Celiacs. My daughter was diagnosed as Celiac first, gluten free for 4 years and then these symptoms started. Really close to "glutening", but take on the vomitting. "Food came back up and went back down" in the throat. Honestly if the eosinophils are causing damage the swelling is causing...
  19. mommida
    By removing gluten from your diet, you may have eliminated your chances of being diagnosed Celiac or Eosinophilic Esophagitus. Your symptom list fits both disorders.
  20. mommida
    Hey Razzle, I am concerned about the "cottage cheese" description of the back of your throat. Eosinophilic Esophagitus can look like that. There is now proof that Celiac and EoE have a connection. The symptoms are very similar to Glutening for Celiacs. Keep a food journal. Keep in mind eosinophils are active for 12 days once activated by food...
  21. mommida
    Keep a food journal to help you determine if it is another food intolerance or trigger. It would also help determine what type of reaction you get. The journal can also help the doctor determine better testing options for you. Keeping a food journal helped my figure out I had a contaminated bottle of vanilla. (adding a teapoon to different recipes was...
  22. mommida
    ARe you trying to get a further diagnoses? As a Celiac some (supposedly common) digestive issues are Pernicious anemia and lacking the gut enzyme that helps digest papaya (if I remember right, papsein) Kinda sounds like you want to add more foods to your diet. So this is the advice I will tell you. Keep a food journal. (REmember some reactions are...
  23. mommida
    No you are right about having concerns about a gluten challenge now. Our daughter did end up being hospitalized for dehydration because of the gluten challenge. She was about 14-15 months old and still in diapers. That explosive "D" helped give her a UTI, along with the vomitting and "D" to dehydrate her really fast. She was too ill to scope and I made...
  24. mommida
    You definately need to be tested for Celiac. It should start with a the blood panel and then an endoscopy with biopsy. I don't know if there are people on this forum who weren't mis-diagnosed with IBS, before being diagnosed with Celiac. The testing is notorious for false negatives. If you test negative for any reason, still try the gluten free...
  25. mommida
    WOW That is exactly the same timeline for my daughter too. Diagnosed Celiac at 17 months, and diagnosed with Eosinophilic Esophagitus at 6. It is odd that young children with EoE complain that the "whole stomach hurts" and not complain of any pain in the esophagus area. EoE is very painful and the pain is worse at night. Is she a slow eater? Very thirsty...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.