Jump to content

lovegrov

Advanced Members
 View Profile  See their activity

  • Posts

    3,855

  • Joined

  • Last visited

  • Days Won

    5

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by lovegrov

  1. lovegrov
    There are a few scattered products that have maltodextrin made from wheat, mostly from European countries that want to avoid any chance of using genetically modified corn. But, the wheat will be clearly listed. I think I've seen it twice but do not remember the products. Otherwise, maltodextrin is not a problem. richard
  2. lovegrov
    I'd agree it's very hard. Hug those kids every chance you get. Tell them you love them all the time, cause you never know. Don't overwhelm them with contact because they need their space, but stay in touch. richard
  3. lovegrov
    All of Disney is indeed celiac friendly in that you can find out out whether you can eat something or not. Don't know, though, what Blizzard Beach has, although I think it's all fast food type stuff. Call the dining number and ask. richard
  4. lovegrov
    If you can find gluten-free paints, fine, but I do think it would be overkill for a 24-year-old to just never paint again. richard
  5. lovegrov

    ARCHIVED Doctor Won't Test Son

    lovegrov replied to deesmith's topic in Doctors

    If you do a search you should be able to come up with the NIH paper on celiac. In it they recommend ALL first-degree relatives be tested, symptoms or not. richard
  6. lovegrov
    Scott, There's all this concern because a doctor who has celiac came on here and stated authoritatively that MFS is a major threat, even inferring that millet is not gluten-free, which we know is wrong. He also alleged that the allergen labeling law is simply a recommendation to manufacturers, which is also wrong. This then alarmed other folks. Apparently...
  7. lovegrov
    I've always agreed that you must watch out after yourself. But for a while now my argument has been that MFS has been an EXTREMELY low worry for us. I'm not saying you don't have to check it, and I do. But I haven't seen ANY evidence anywhere that it it is in fact a major threat. I've yet to find any company telling me that they use modified rye, barley or...
  8. lovegrov
    "And there ARE some weirdos on here." Hey, we weirdos are everywhere!! richard
  9. lovegrov
    Seems to me the store management or local health department should be enforcing the pet law, NOT the FDA. That's certainly not what I want the FDA doing (personally I don't even have a problem with a well-behaved dog in a store). I'm another one who lives in area where we never, ever see pets in stores. Guess people here have more sense or more respect...
  10. lovegrov
    I'm pretty certain that wheat starch and modified wheat starch are different animals -- or are they? I've certainly seen my share of wheat starch listed, even before the law. richard
  11. lovegrov
    If anybody feels so inclined, next time you run into MFS made from rye or barley, please post it. In fact, if you ever see modified wheat starch listed please post the product. thanks richard
  12. lovegrov
    I think the labeling thing on the allergens could be more consistent, particularly because somebody new could get caught by this. But to folks with any experience, I think it's quite clear that you have to look at the ingredients AND the "contains" statement. It's not that hard.
  13. lovegrov
    "So no cross contamination issues matter. It matters to us." It does matter to us, however I've never claimed CC was covered. I know it isn't. richard
  14. lovegrov
    Maybe I'm misunderstanding what was being said, but according to this site the allergen law is NOT just suggestions. And there are criminal and civic penalties. Open Original Shared Link richard
  15. lovegrov
    RKB MD really needs to return and give us his source for the claim that allergen law is nothing more than suggestions for manufacturers. That's not my understanding at all. richard
  16. lovegrov
    Powder on gloves is almost without exception cornstarch or cellulose. In more than 5 years I have yet to find any with wheat. richard
  17. lovegrov
    There's just no question at all that MFS in the U.S. is NOT made from barley or rye. This might not be a law but it doesn't happen. In addition, almost no vinegar is made from wheat. Hunts has always been CYA about their ketchup, so I don't buy it out of principle, but it seems to me that it's almost without question gluten-free. richard
  18. lovegrov
    Not a worry.
  19. lovegrov
    Just to add, Johnsonville is very gluten-free friendly. Beer and brats, no. Otherwise, OK. But call them and you'll know. richard
  20. lovegrov
    Raw hamburger patties at the store must by law list any grain added (this is true for any raw meat). If there's no grain listed, they're gluten-free. richard
  21. lovegrov
    Many years ago I started at 100 but had to reduce almost immediately to 50 because of white cell count changes. Eventually I ended up at 25 because that controlled it. I can't say whether dapsone is causing the problems you're having, but for many people 100 just isn't necessary. Especially if you're gluten-free. I'd try no more than 50, and maybe even 2...
  22. lovegrov
    If you haven't gone gluten-free you need to do so. If you have DH, you have celiac. And the only way to control DH without dapsone is by being gluten free. I googled dapsone and it can indeed cause cedrtain types of anemia. I should have looked before. Still, anemia and exhaustion are two of the main symptoms of celiac. richard
  23. lovegrov
    If meat has gluten, it MUST be listed in the U.S. richard
  24. lovegrov
    Coke is gluten-free and the reality is that caramel color is also gluten-free -- at least in the U.S. and probably everywhere else as well. Unfortunately there are too many old lists on the Internet and being passed out by doctors. The safe and forbidden lists on the celiac.com homepage are pretty much accurate. richard
  25. lovegrov
    First a disclaimer. I am not a doctor or medical person, but I was diagnosed with celiac more than 5 years ago, and I took dapsone for DH for 20 years. The severe anemia is very likely because you do indeed have active celiac. You are not absorbing the vitamins and mninerals you need. This is NOT a side-effect of dapsone that I know of. Severe anemia...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.