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Advanced Community Member
Posted 05 June 2014 - 05:39 PM
Could it be you are getting gluten from cross-contamination? Did you clean your kitchen well? Do you have people in your house that are still on the gluten, making it in your home? It's every where, can be in toothpaste, hair product, makeup, lip balms, pet foods, the most innocuous places. Your significant other could also be getting you if they eat gluten and don't brush their teeth.
Diagnosed at age 37 after a lifetime of symptoms: migraines, joint pain, muscle aches, nerve pain, IBS, chronic constipation, chronic ear infections/strep throat, weight fluctuations ( most weight lost >150 pounds), acid reflux, stomach pain, nausea/vomiting, inactive gallbladder, stool impacted appendix, multiple miscarriages, premature births, depression, anxiety, OCD, arthritis of the spine, Grave's disease(treated with radioactive iodine)- hypothyroid, multiple drug and environmental allergies, numbness in the hands and feet, possible multiple TIA's, brain fog, dyslexia, extreme thirst, bouts of insomnia rotated by extreme fatigue, multiple vitamin deficiencies, chronic UTI's and vaginal infections, and I'm sure there are more I am forgetting.
Diagnosed April 7th, 2014 by EGD and tTg IgA. Marsh IIIb and 35.7 respectively, Starting what seems to be a very long recovery process.
11 year old daughter diagnosed a month later by a tTg IgA of >100 and a positive EMA. Nine year old son has since tested negative, only had tTg IgA drawn, Will have a full panel drawn in two years unless symptoms present.
Advanced Community Member
Posted 05 June 2014 - 09:27 PM
Advanced Community Member
Posted 06 June 2014 - 01:33 AM
Yes and no for me. I had a whole list of 40-50 symptoms that went away completely when I went gluten free, some taking days to ease up, others slower and taking weeks to disappear completely.
But it took me a couple months of having some of my pains and some other odd symptoms not ease up, and at times to be worse, for me to figure out that I must also have vitamin deficiencies. Got tested, and sure enough, I had some major ones. Treating them did knock my other major symptoms out.
And I found that I had some new food intolerances that I hadn't had before going gluten-free, so a few more foods were removed from my diet.
But I still have odd issues arise from time to time. Some of it I know is related to the damage that gluten did to various organs that is never going to heal. Some of it I still don't understand and continue to do research all of the time, hoping to avoid major problems in the future.
I think one of the things that I have learned through this process is how much I still don't know simply because I haven't stumbled upon the information yet, and how much the medical community still doesn't know because so little research has been done in this area.
Melanoma Warrior
Posted 06 June 2014 - 02:03 AM
Hi Sidelined.
I'm assuming you've seen your Doctor for a look at your symptoms, you may also want to consider a gluten challenge to do blood testing and endoscope. You could have any number of issues going on and not necessarily Celiac. You don't want to leave a medical issue untreated and you also would not want to undertake a medically necessary diet if not diagnosed with Celiac.
Good luck with what you decide.
Colleen
HAVE A SUPER SHINY DAY
LTES gem 2014
*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac
*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity
"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.
Are We There Yet? and Dad says...All you have to do it ride it out.
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New Community Member
Posted 08 June 2014 - 06:09 AM
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