Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Foods Besides Gluten Foods Set You Off?

3bears2

Recommended Posts

3bears2 Explorer
3bears2
Posted

I think high fat foods, beef, dairy and some soy foods set me off. Also many hurbs and tomatoes. What about you? Pickled foods do too. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


icelandgirl Proficient
icelandgirl
Posted

I think high fat foods, beef, dairy and some soy foods set me off. Also many hurbs and tomatoes. What about you? Pickled foods do too.

Both high fat and high sugar give me D...not sure if it's the lack of gallbladder or something else. I had my gallbladder out 2 weeks after diagnosis so I never got to see how I did gluten free with a gallbladder.

I'm doing a trial elimination of soy and dairy...After 6 days I don't notice any less bloating.

beth01 Enthusiast
beth01
Posted

Soy, garlic, dairy, eggs whole( baked into recipes don't bother me) and whole rice bothers me.  I was using a huge tub of " I can't believe it's not butter" that I bought after my diagnosis that I was using in everything I needed butter for not ever even thinking twice that soy is on the ingredient list in like four different places.  I stopped using it on Thursday and feel considerably better already. High fat foods and high sugar foods also bother me. Damn food

 

 

* added content

dilettantesteph Collaborator
dilettantesteph
Posted

If high fat and protein is botheriing you, look into exocrine pancreatic insufficiency: https://www.celiac.com/forums/topic/105648-exocrine-pancreatic-insufficiency/?hl=%2Bexocrine+%2Bpancreatic+%2Binsufficiency

w8in4dave Community Regular
w8in4dave
Posted

Corn , Soy, Lactose, Think i'm getting some lactose back! I can eat regular butter now! I don't care about soy, and corn , well I don't care if I ever get HFCS (High Fructose corn syrup) back , but it would be nice to eat corn chips! Soy I really don't care about tho either. 

Austin Guy Contributor
Austin Guy
Posted

In order of the worst symptoms:  soy, peanuts (both legumes so I hesitant to try other legumes), eggs, dairy.

Ele Newbie
Ele
Posted

Lactose, tomatoes, melon, watermelon, kiwi, shrimp, soy, legumes. recently I'm getting back potatoes (but before eating I put them in to water for a lot of time), oranges and green beans 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


klisja Rookie
klisja
Posted

What does not set me off is: rice, GFcornflakes, eggs, lactosfree milk, coffie, salt, gum, crispbread made of rice and cornflour, cheese, butter, chicken (don't know about fish and other meets, chicken is the only thing that taste good just with salt).

 

Anything else can set of some symptoms. I don't know what kind of food intoleranca I have, if other things irritate the system because I am not healed after gluten damage or something else is bothering me. I haven't tested positive for celiac though.

Ele Newbie
Ele
Posted

What does not set me off is: rice, GFcornflakes, eggs, lactosfree milk, coffie, salt, gum, crispbread made of rice and cornflour, cheese, butter, chicken (don't know about fish and other meets, chicken is the only thing that taste good just with salt).

 

Anything else can set of some symptoms. I don't know what kind of food intoleranca I have, if other things irritate the system because I am not healed after gluten damage or something else is bothering me. I haven't tested positive for celiac though.

Hi Klisja,

 

Have you ever do a test for the allergy at nickel? My mother has this problem and the foods that she can eat are very limited... I don't know if this can help you, but if you don't feel good I think that prove something else is important.  :)

 

(sorry for my English... I'm Italian and I'm just started a new method for learning English better  ^_^ )

SillyBoo Newbie
SillyBoo
Posted

I cannot eat eggs, dairy, or soy. I'm in the midst of an elimination diet right now, and sadly (but not unexpectedly) reacted to corn. Nightshades are also suspect, but I haven't put them to the test yet. However, after avoiding them completely for the past 3 weeks, the joint pain is gone. I will miss potatoes and tomatoes the most. :-(

 

When I first got diagnosed 8 years ago, there were very few foods I could eat without a reaction. Over the years I have gradually added things back in as I healed. But apparently there are some things that seem to have a permanent place on my naughty list.

BlessedMommy Rising Star
BlessedMommy
Posted

Dairy and excess sugar bother me. I feel much better on a dairy free, low sugar diet.

klisja Rookie
klisja
Posted

Hi Klisja,

 

Have you ever do a test for the allergy at nickel? My mother has this problem and the foods that she can eat are very limited... I don't know if this can help you, but if you don't feel good I think that prove something else is important.  :)

 

(sorry for my English... I'm Italian and I'm just started a new method for learning English better  ^_^ )

 

Hi Ele, thanks for responding.

 

I haven't been tested for anything but celiac (wich was negative) and some common allergies. I have looked into nickel but I have yet to test if that is the case. I have alot of testing to do to see what kind of chemicals I don't tolerate, if I can stay clean for a while (but that is soooooo hard :blink: ).

 

Your english is just fine, I am from Iceland and know how puzzling it can be sometimes to line up the right words in a sentence :P

icelandgirl Proficient
icelandgirl
Posted

Hi Ele, thanks for responding.

 

I haven't been tested for anything but celiac (wich was negative) and some common allergies. I have looked into nickel but I have yet to test if that is the case. I have alot of testing to do to see what kind of chemicals I don't tolerate, if I can stay clean for a while (but that is soooooo hard :blink: ).

 

Your english is just fine, I am from Iceland and know how puzzling it can be sometimes to line up the right words in a sentence :P

Hi klisja...I'm from Iceland too! Crazy!
klisja Rookie
klisja
Posted

Hi klisja...I'm from Iceland too! Crazy!

 

Nice! Cool to see a fellow icelander here :D

millerb68 Newbie
millerb68
Posted

Pretty much everything, unfortunately. I'm so frustrated right now. My food intolerance issues started with lactose intolerance in 2005, then onions and green peppers, then a bunch of other things. Last year, while working with a dietitian, I had some food sensitivity testing done, and found many other things, from meat to fruits and vegetables and tea(!), that I have reactions to. I was just diagnosed with celiac disease and leaky gut this May. Now, my dietitian thinks I may have sensitivities to high FODMAPs foods, which I understand, as many of those foods were also on my test results last year. However, being dairy-free, meat-free and gluten-free already, eliminating high FODMAPs foods leaves me very little to eat.  I'm currently eliminating oats to see if they are causing continued issues, so I'm stumped for breakfast foods. 

 

Sometimes I get so envious of people I see in restaurants who can eat whatever and not have to worry about it making them sick! 

klisja Rookie
klisja
Posted

Pretty much everything, unfortunately. I'm so frustrated right now. My food intolerance issues started with lactose intolerance in 2005, then onions and green peppers, then a bunch of other things. Last year, while working with a dietitian, I had some food sensitivity testing done, and found many other things, from meat to fruits and vegetables and tea(!), that I have reactions to. I was just diagnosed with celiac disease and leaky gut this May. Now, my dietitian thinks I may have sensitivities to high FODMAPs foods, which I understand, as many of those foods were also on my test results last year. However, being dairy-free, meat-free and gluten-free already, eliminating high FODMAPs foods leaves me very little to eat.  I'm currently eliminating oats to see if they are causing continued issues, so I'm stumped for breakfast foods. 

 

Sometimes I get so envious of people I see in restaurants who can eat whatever and not have to worry about it making them sick! 

 

Hey Millerb68

 

Have you looked into amines, salicylates and glutamates and tried failsafe diet? It's a tough challenge but might help, here is a great site Open Original Shared Link

 

The food restrictions bother me less then peoples behavior around my intolerances. Sometimes I feel like a freak!

millerb68 Newbie
millerb68
Posted

Hey Millerb68

 

Have you looked into amines, salicylates and glutamates and tried failsafe diet? It's a tough challenge but might help, here is a great site Open Original Shared Link

 

The food restrictions bother me less then peoples behavior around my intolerances. Sometimes I feel like a freak!

Thank you, Klisja! I will look into that! I hadn't even thought about additives. I eat mostly whole foods (fruits, veggies, few grains), but I bet there are some hidden additives in things I'm not thinking about. 

 

Yes, people's behavior around my intolerances brings a lot of eye rolls. They think I'm being difficult or picky! 

klisja Rookie
klisja
Posted

Thank you, Klisja! I will look into that! I hadn't even thought about additives. I eat mostly whole foods (fruits, veggies, few grains), but I bet there are some hidden additives in things I'm not thinking about. 

 

Yes, people's behavior around my intolerances brings a lot of eye rolls. They think I'm being difficult or picky! 

 

Excactly, people find me sooo boring hahaha. Hope this helps, good luck on your journey :)

  • 2 weeks later...
w8in4dave Community Regular
w8in4dave
Posted

I hate to hear people treating other people bad because of their intolerances. Not like you chose this for your self. I really feel Bad for anyone with all the intolerances. I just have a few. I feel so lucky. But when I tell someone my intolerances they say. Wow! What on earth can you eat? 

  • 2 weeks later...
Finally-45 Contributor
Finally-45
Posted

I think high fat foods, beef, dairy and some soy foods set me off. Also many hurbs and tomatoes. What about you? Pickled foods do too.

I think high fat foods, beef, dairy and some soy foods set me off. Also many hurbs and tomatoes. What about you? Pickled foods do too.

This pattern is very common among people with mastocytosis.

klisja Rookie
klisja
Posted

I hate to hear people treating other people bad because of their intolerances. Not like you chose this for your self. I really feel Bad for anyone with all the intolerances. I just have a few. I feel so lucky. But when I tell someone my intolerances they say. Wow! What on earth can you eat? 

 

I think people don't like when your different, "you ought to be like the group and eat cake!". Once at work I had a piece of candy and one lady said she was so happy seeing me eating candy! I notice when I eat with other people that they don't relax and eat their food, they are watching what other are doing with their food. Pretty weird.

  • 2 weeks later...
Twenty4Oceans Newbie
Twenty4Oceans
Posted

I'm sensitive to gluten and dairy (casein, whey, and lactose). Sometimes, I feel like the dairy is harder to avoid, and have to ask about vegetable sides containing butter whenever I go out to eat--still figuring out all the places where family and restaurants sneak in milk, butter, and flour. 

John Burlingame Explorer
John Burlingame
Posted

Im sensitive to Gluten and dairy and allergic to soy. had a run in the other day put me to shame. I make all my food at home, if I leave, I make sure to bring food with me. Some sodas are ok. found out why fanta made me sick, had soy in it. you just dont think about whats in food until this stuff happens to you. I wish I knew what the the gluten tasted like before the modified the strain.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      22

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    2. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    3. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
    4. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Here is a link to the spreadsheet I kept to track my nutrition intakes. Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/...
    5. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Hello @catnapt, That's so true. Every person with Celiac Disease has different symptoms. There are over 200 that it mimics. Too many still believe that it is only a childhood disease you outgrow. Or it's psychosomatic or simply a fad. Idiots. It's easy to get angry at all of them. You just have to pick at the answers until you find...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.