Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recurrent Tonsillitis

Guest nini

By Guest nini
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

Recommended Posts

Guest nini
Guest nini
Posted

Is there a link between recurrent tonsillitis and undiagnosed Celiac? I know a lot of us seem to have had tonsillitis a lot before dx... my neice keeps getting tonsillitis and I'm convinced she at least has food allergies if not celiac based on other probs... she has had blood in her stool on more than one occassion and she's only 2...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Felidae Enthusiast
Felidae
Posted

I had recurrent tonsillitus from grade 7 to 12. I took so many antibiotics in that time period. I could see there being a link.

flagbabyds Collaborator
flagbabyds
Posted

She should just get them taken out, it really isn't that painful, and then after that your sister/brother might be more ademant to get the testing for celiac disease.

Megan Rookie
Megan
Posted

weird...I always had tonsil problems to the point that I had to have an EMERGENCY tonsillectomy the day after Christmas two years ago...( yea I know, gotta be the only person the world...)

maybe there is a connection!?!

lonewolf Collaborator
lonewolf
Posted

I had recurrent tonsilitis for years - long before I knew anything about Celiac. I ended up getting my tonsils out at age 23. If I had known then what I know now, I think I could have avoided it by changing my diet then. My naturopath said that she sees people with chronic tonsilitis get better when they are diagnosed with food allergies and eliminate those foods.

Ursa Major Collaborator
Ursa Major
Posted

My second youngest daughter, Janet (20), has had tonsillitis a few times, and her tonsils are now enormous, she keeps getting strep throat, sore throat all the time, ear infections, sometimes bad pains in her legs............I think she may have Celiac disease, too. And last year once she had those enormous, gross blisters on her feet, and no clue why (they looked just like some of those worst, ugly pics of DH). Unfortunately, I don't know if the lab our doctor uses knows what they're doing when it comes to celiac testing, besides the fact that our insurance doesn't cover it.

When I asked my doctor to write me the order for a full panel of blood tests for celiac for both Susie and Janet, I saw her copy exactly what it says to test for in the celiac brochure I brought with me. I don't think she had a clue what she needed to ask for without my help. So, if she has never ordered those tests before, and the other doctors around are just as clueless, I wonder if the lab has ever done those. So, how do I then know that Susie's negative test results were valid?

And the lab never even sent the exact values, just a note stating that they were all negative. Very frustrating, especially if you have to pay for the testing yourself.

We still have the order for Janet (not dated, so still valid). But I am wondering if its even worth trying!

I used to have tonsillitis when I was little, and my tonsils were removed. Then, several years ago I had tonsillitis again, because my tonsils regrew just enough to be a problem again! I had tonsillitis several times these past five years. Now I only get a sore throat when I know I've had something that makes me sick (like yesterday, I don't know what it was, but I was up until five this morning, running to the bathroom with D every few minutes, and I have a sore throat). So, I really do think there is a connection.

Guest nini
Guest nini
Posted

thanks for your input... I know I had recurrent tonsillitis for many many years and then had them removed in an emergency surgery when I was 17, my throat was closing up and I couldn't breathe.

Does anyone happen to know if there have been any studies done on this particular link or if it is mentioned anywhere?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

hmmm, not sure about a connection, but i had reoccurent tonsillitis also-all through high school, was miserable. got tonsills taken out summer before college. ouch! but worth it!

Canadian Karen Community Regular
Canadian Karen
Posted

Not sure if it is related to Celiac or just a plain common occurence, but I also had recurrent tonsillitis through my childhood. Finally had them taken out in my 20's........

Karen

angielackner Contributor
angielackner
Posted

i had recurrant tonsillitis after my bout of mono in high school (which we think triggered all my health probs)...and finally made my ENT take them out at 19 yrs old...i was a music major and couldnt play my oboe, and was missing concerts...no good. :angry:

angie

Rusla Enthusiast
Rusla
Posted

I had tonsillitis all the time that, when I was 20 I was on antibiotics for 3 months straight until they took them out. Then two weeks ago I had a sore throat, I went to a walk in clinic and the dumb doctor looks in my mouth and says;"Well you don't have tonsillitis." I told her that was good because I had no tonsils.

flagbabyds Collaborator
flagbabyds
Posted

I get recurrent tonsilitis in 8th grade, but that was from my CPAP and they forgot to give me the filter, so it was just circulating the bacteria through my mouth every night.

jerseyangel Proficient
jerseyangel
Posted

I used to get tonsillitis frequently in my late teens and during my 20's. Whats strange about that is that those are the (only) years I didn't have any stomach problems that I can remember.

StrongerToday Enthusiast
StrongerToday
Posted

I had constant strep throat and tonsillitis growing up. When I was 21 I got tonsillitis and it would come back within 36 hours after stopping the antibiotic. My (old) dr. had me on "maintenance dose" of pennicillan. I am now allergic to every antibiotic in the penicillian family - concidence? I think not! I did have my tonsils removed at age 21 too.

penguin Community Regular
penguin
Posted

I had recurrent sinus infections so they took out my adenoids, although I wish they would have gotten the tonsils while they were in there, then when I got mono it wouldn't have been nearly the hell it was. My mom was a nurse for 15 years and said she had never seen anyone that sick and survive...

and then the stomach problems started :rolleyes:

My mom had hers out in her mid-20s because of recurrent tonsilitis.

prinsessa Contributor
prinsessa
Posted

I had tonsil problems my whole life. I got strep throat over and over again and it won't go away. I had to take anti-biotics numerous times. Now my tonsils have been swollen for years. Doctors can't figure out what is the problem. I sure it is from wheat. I read a couple of places that swollen tonsils are a sign of food allergies.

Rusla Enthusiast
Rusla
Posted
I had constant strep throat and tonsillitis growing up. When I was 21 I got tonsillitis and it would come back within 36 hours after stopping the antibiotic. My (old) dr. had me on "maintenance dose" of pennicillan. I am now allergic to every antibiotic in the penicillian family - concidence? I think not! I did have my tonsils removed at age 21 too.

Same thing happened to me. After being on Penicillian for three months, I am now allergic to it.

Felidae Enthusiast
Felidae
Posted
I used to get tonsillitis frequently in my late teens and during my 20's. Whats strange about that is that those are the (only) years I didn't have any stomach problems that I can remember.

I didn't have any gi issues either that I can remember during my constant tonsillitus, strept throat teen years.

I still have my tonsils and I love them.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Donna Moxley
      - Donna Moxley commented on Scott Adams's article in Latest Research
      2

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      I was not a well child and on my own would stop eating certain foods when a stomachache occurred. As I got older, I began more and more anemic and ended up unable to hold food down at all. Once an endoscopy occurred, doctor said I had an obstruction in my stomach but nothing said about Celiac Disease. Dr. did stomach bypass surgery, removed a 1/3 of my...
    2. Scott Adams
      0

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. cristiana
      - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain

      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this. I am not a medical person but it seemed like the extra pressure...
    4. Rogol72
      - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Guinness, can you drink it?

      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    5. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      6

      Related issues

      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,276
    • Most Online (within 30 mins)
      7,748
    Sandra Hawn
    Newest Member
    Sandra Hawn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Rectal pain

      By cristiana · Posted

      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      Guinness, can you drink it?

      By Rogol72 · Posted

      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Related issues

      By Mari · Posted

      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
    • Colleen H
      Brain fog

      By Colleen H · Posted

      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.