Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastric Bypass Surgery And Celiac


Guest franS

Recommended Posts

Guest franS

I had bariatric surgery 7 months ago. I had an awful time eating and not getting very sick. I lost over 120 pounds in the first 6 months and was in the bathroom constantly. I got very sick and doctors were rather unresponsive. My surgeon told me I WAS EATING TOO MUCH. Blood work showed I was not absorbing nutrient, but hey, tat's what the surgery does!!

Finally after weakening significantly a friend and his wife took me to the ER. They admitted me and finally did the test I was asking. I have a PICC line into my heart for IV feedings and after the biopsy results came back found out that I have extensive celiac which was exacerbated by the surgery. The doctor believed that I had this for years undiagnosed. Most celiacs are not obese? But I had all the symptoms and so do 2 of my 4 adult kids. I am much relieved because I have a course of treatment. Ijust want to know if there is anyone out there in a similar situation????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest franS
I had bariatric surgery 7 months ago. I had an awful time eating and not getting very sick. I lost over 120 pounds in the first 6 months and was in the bathroom constantly. I got very sick and doctors were rather unresponsive. My surgeon told me I WAS EATING TOO MUCH. Blood work showed I was not absorbing nutrient, but hey, tat's what the surgery does!!

Finally after weakening significantly a friend and his wife took me to the ER. They admitted me and finally did the test I was asking. I have a PICC line into my heart for IV feedings and after the biopsy results came back found out that I have extensive celiac which was exacerbated by the surgery. The doctor believed that I had this for years undiagnosed. Most celiacs are not obese? But I had all the symptoms and so do 2 of my 4 adult kids. I am much relieved because I have a course of treatment. Ijust want to know if there is anyone out there in a similar situation????

JUST WANTED TO ADD...

I cannot do sugar, lactose, and need to be gluten-free.

I cannot tolerate rice, meat, bread, and many frest fruit and veggies because of what it does to my new pouch. If I cook the heck out of things I can tolerate them better. It is the density and the heaviness of certain foods, plus the rawness that will not allow the food to staydown. But things are getting better. I so the the information available from all of you on this site - thank you! I WAS FEELING SO ALONE .

Guest franS
I had bariatric surgery 7 months ago. I had an awful time eating and not getting very sick. I lost over 120 pounds in the first 6 months and was in the bathroom constantly. I got very sick and doctors were rather unresponsive. My surgeon told me I WAS EATING TOO MUCH. Blood work showed I was not absorbing nutrient, but hey, tat's what the surgery does!!

Finally after weakening significantly a friend and his wife took me to the ER. They admitted me and finally did the test I was asking. I have a PICC line into my heart for IV feedings and after the biopsy results came back found out that I have extensive celiac which was exacerbated by the surgery. The doctor believed that I had this for years undiagnosed. Most celiacs are not obese? But I had all the symptoms and so do 2 of my 4 adult kids. I am much relieved because I have a course of treatment. Ijust want to know if there is anyone out there in a similar situation????

JUST WANTED TO ADD...

I cannot do sugar, lactose, and need to be gluten-free.

I cannot tolerate rice, meat, bread, and many frest fruit and veggies because of what it does to my new pouch. If I cook the heck out of things I can tolerate them better. It is the density and the heaviness of certain foods, plus the rawness that will not allow the food to staydown. But things are getting better. I so the the information available from all of you on this site - thank you! I WAS FEELING SO ALONE .

blueeyedmanda Community Regular

Fran,

I am sorry I cannot say I have been in your boat, but I am glad to hear you have found out what was making you so ill. Things will hopefully start going in the right direction. It might take some time to get back on your feet but in time you will feel like a whole new person. Good Luck.

VioletBlue Contributor
I had bariatric surgery 7 months ago. I had an awful time eating and not getting very sick. I lost over 120 pounds in the first 6 months and was in the bathroom constantly. I got very sick and doctors were rather unresponsive. My surgeon told me I WAS EATING TOO MUCH. Blood work showed I was not absorbing nutrient, but hey, tat's what the surgery does!!

Finally after weakening significantly a friend and his wife took me to the ER. They admitted me and finally did the test I was asking. I have a PICC line into my heart for IV feedings and after the biopsy results came back found out that I have extensive celiac which was exacerbated by the surgery. The doctor believed that I had this for years undiagnosed. Most celiacs are not obese? But I had all the symptoms and so do 2 of my 4 adult kids. I am much relieved because I have a course of treatment. Ijust want to know if there is anyone out there in a similar situation????

I read a Celiac Disease statistic somewhere, don't remember where that obesity is almost as common as being too thin. I'm about 80 lbs overweight but I was severly anemic and vitamin deficient when diagnosed. I was told if I lost weight all my problems would disappear. There is still a lot that's not known it appears about why gluten intolerance affects people differently. It would be nice if more doctors realized that Celiacs come in all shapes and sizes.

  • 1 year later...
Ramona Newbie

I had gastric bypass surgery 4 years ago. Now everything that I eat is making me run to the bathroom......pasta, a sandwich, oatmeal, drink beer. Any help, could I have celiac disease. I cannot tolarant any dairy already.

cyberprof Enthusiast
I had gastric bypass surgery 4 years ago. Now everything that I eat is making me run to the bathroom......pasta, a sandwich, oatmeal, drink beer. Any help, could I have celiac disease. I cannot tolarant any dairy already.

It certainly could be the problem. And you should certainly go to your doctor because after having the surgery you need to be extra careful to get good nutrition, right?

Have your doc do the blood test while you're still eating gluten and go from there. This site has a lot of good info.

Good luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator
Most celiacs are not obese?
Just as another person stated....it is just as common for an undiagnosed celiac to be overweight, as it is to be underweight!!! A malnourished person, someone who is not absorbing vitamins and minerals, can gain weight, just as easily as lose it. I know it doesn't seem possible, but it's very true. I was well on my way to being morbidly obese (@260#+, I quit looking, so I don't really know what I did weigh) before I went gluten free 8 yrs ago. After going gluten free, I lost 60#, and felt so much better. Then more intolerance's started to rear their ugly heads and my metabolism stopped working, I gained weight again. Nothing I did worked to get that weight off, not even exercising. I was glutened by a med in Jan this year, which made me ill for a long time....my metabolism kicked back in. For the first time in years, I have hunger pangs again!!!! I have lost 40#!

I have a son, who is obese, over 360# now. His doctors, going on the 3rd one, will not test him for celiac because, "You do not look like a celiac!" Many doctors still do not know that malnourished people do not have to be skin and bones!!! I can't convince my son to go gluten free without the doctor telling him he has too. He has so many symptoms. Along with the fact, his mom, his aunt, and his grandpa are all celiac's. To me, that should be enough family history for the doctor to do the testing, and yes, they know!!! Joe is almost 27, has high blood pressure, hypothyroid, carpal tunnel (which is a neuropathy and was the beginning of my neuropathy), sleep apnea (which I was just diagnosed with too), anxiety, terrible temper explosions--there is a problem with his liver which they have not figured out, they have had to do a heart echo....and everything seems to be a mystery to them, and still, they have not tested him for celiac!!!! He doesn't think he can demand to be tested. I live in another state or I would be there with him. I may just call his doctor!!!!

Good luck, and I'm glad you finally found out you are celiac too!!

Ramona Newbie

Thank you for replying. This week, I have not been as sick, or running to the bathroom. So I have put off making a doctor appt.

Ramona

mamaw Community Regular

very interesting subject. I know of three ladies who have done the surgery & now are celiac.

It sure is amazing where celiac comes into play.......

One celiac is hoping to have the procedure reversed since now the celiac dx's.

mommida Enthusiast

My sister works in a hospital and it is very common fo a multitude of problems after by-pass surgery.

I have heard of an increase of Celiac diagnoses after the surgery, to the point it may be in the fine print of possible side affects of the surgery. Which came first, Celiac or surgery? Our health system better wake up and start screening people for Celiac before more people lose the quality of life that leads to such a dangerous life altering surgery.

gfpaperdoll Rookie

My sister is an obese non gluten-free gluten intolerant person, she also has seizures, RA, eczema, depression, IBS, bad teeth, migrains, on & on.

My son is also overweight & has the, uh sure, idopathic liver problem. But he does not tell his doctors that he has a failure to thrive son or that gluten intolerance is rapant in his family nor that we also have hemochromatosis in the family.

Whenever I see an obese person I feel so sorry for them, because I know that the chances that they have an undiagnosed problem with gluten & I believe all grains is, huge, & that they probable have some other auto-immune problems already...

I recommend this book "good calories bad calories" by Gary Taubes

& yes, you should be consulting a licensed dietician & reading up on nutrition yourself. I also recommend "Super Foods" it is a great refresher course on nutrition. You will of course have to take supplements. Make sure they are gluten, dairy & soy free.

wishing you the best

  • 4 years later...
floral Newbie

I also had gastic bypass sugery and had nothing but stomach problems since then and now diagnosed with celiac. I wonder just how many of us there are? What the statistics are? I am really interested in finding out more on this subject.

kareng Grand Master

I also had gastic bypass sugery and had nothing but stomach problems since then and now diagnosed with celiac. I wonder just how many of us there are? What the statistics are? I am really interested in finding out more on this subject.

Letting you know this thread is 4 years old. Most or all of these posters are not currently active

GFinDC Veteran

You could try doing a PM (personal message) to some of the original posters. They might see it and respond.

raso Newbie

Hi,

I have had gastric bypass, but not the usual kind, and now am being tested for celiac. My GB was because of a rare cancer, a sarcoma, on the outside of my stomach (part of it had grown into my stomach). The cancer is supposed to be cured, but I lost the distal 1/5 of my stomach, including the pylorus, and my duodenum is functioning as a conduit between the pancreas and the jejunum. So it is kinda like a bariatric GB but not as drastic. Yet I have tested low on copper & Vitamin D for certain. Some of the folks who have had my cancer & stomach surgery experience vitamin & mineral deficiencies but sounds like I am definitely not in the majority there. My GI doctor says she doesn't think my deficiencies are caused by my surgery as they can be absorbed other places besides the duodenum. Celiac fits in with my other symptoms. I wonder about wheat allergy. Whatever, bottom line, I do better without wheat for sure, probably gluten. I did have my gluten test run yesterday. I have not been chowing down on gluten, but never gave it up either.

So we'll see.

Hope this helps somewhat.

RASO

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    2. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    4. - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,581
    • Most Online (within 30 mins)
      7,748

    MaggieSc
    Newest Member
    MaggieSc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.