Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Do When People Dont Listen?


hh73

Recommended Posts

hh73 Apprentice

What do you do when people insist that you eat, when they cant *really* verify they made is gluten-free, but they insist that it *is* gluten free. For example, I have a very motherly mom, and she could not verify that the spices she used to make yesterday's meal were gluten free, but she was absolutely stubborn and self-confident that they were gluten-free. I know that they were not, because I have been feeling extreme fatigue (my one and only celiac symptom) since eating her food yesterday.

How do you deal with this from the social point of view? Some people cannot accept that this is a *strict* diet and they think its better to gluten us rather than face facts! They don't want to accept they made have made a mistake as a host!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Likely if they were plain spices, they were gluten-free. If they were a packaged mix, like a chili seasoning, they might not be gluten-free. The problem with her even slicing you an apple, is that her kitchen stuff is cc'ed. The cutting board she cuts the apple on - she cut bread on this morning. Her colander that she washed the strawberries in is also used to drain pasta. She had the pot of gluten-free beef stew simmering on the stove while she mixed flour to make biscuits, next to the pot.

My mom absolutely does not listen to anything anyone says 80% of the time. I have tried to explain why I won't eat at some place or don't want her potato salad (but the ingredients are gluten-free!) many times. She doesn't remember or "remembers" that I said I can have eggs & potatoes. With her this applies to everything. She could ask my son about his football game, and the next day ask me the same question or tell me what she wanted to hear. Its not Alzheimer's its just she is not paying attention. I try to distance myself from anything having to do with food with her.

So: other people are not responsible for your health and special diet. Inform your mom, firmly, that you will bring all the food or your own food, or some combination of that. You go to a party, eat ahead or bring a dish that's filling that you can eat. I like to bring twice baked potatoes. I either grab the first ones out of the pan or bring a separate dish with mine in it. Its filling and not too unfriendly.

tarnalberry Community Regular

I don't eat the food. Period. It's not my fault if they choose to feel upset over it; they make that decision all on their own. I will say something like "No thanks, I'm going to pass." No room for questions, no room for debate - simply your choice to not eat the food. (Though it's usually nice to add something like "I do really appreciate the thought, though. It looks lovely.")

bluebonnet Explorer

i just don't eat over sparing their feelings (moms included). moms generally want the best for you but if they don't fully understand the disease they don't *know* what the best is for you. so you just gotta be tough and more insistent then they are. EVENTUALLY they'll get it. :) oh and give them information overload.

Reba32 Rookie

Yeap, they either get it or they don't. I've tried to explain to family that I can't have even a single crumb of bread to touch my food, and then they'll serve lunch and put the gluten free bread and the "regular" bread in the same dang basket! And stick the crumb filled butter dish in front of me and then ask why I'm not eating.

hmph...

So, you take your own food, and say you don't want to seem rude or ungrateful, but you really enjoy their company, and so that you can stay a bit longer to chat, you brought your own so you're not distracted by pains in your gut. ;)

When I go to my sister's house, I try not to touch anything. At all! I'm even scared sometimes to have a cup of tea!

Maybe eventually they'll get it.

fran641 Contributor

It is a challenge to live in a different food world than most people around us. I have a dear neighbor that we always had lots of meals with. She usually invited us because she doesn't go out much. Once I couldn't eat what she cooked it took the fun out of it for her so we were invited less and less. We took food over for the dinners a lot but that didn't fill her need to feed. I hate that it turned out that way but I'm ever so grateful to be gluten free and feeling like a new person physically. I recently had a biopsy that showed no sign of disease! yeah! I've been doing this since Dec. 08 and it is working. Don't give up it is so worth it.

Ahorsesoul Enthusiast

There are people you just can't make understand. Either do not eat at their house or bring your own food. You choice is to hurt their feelings or hurt yourself. They will get over their hurt feelings without a health risk. You might not.

I do go to family/friends houses for dinners. I just do not eat their food. I bring some gluten-free food (i.e. casserole) and/or dessert. I share with them, eat my food and have a nice social time without an unhealthy risk. Everyone I know knows I will not eat their food. It's a rule. They have learned to accept this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

I think it is difficult for others to understand because they don't have the physical ramifications of this that we do. I don't know how understanding I would be it I didn't have this. My friends and relatives accept me bringing my own food at least. However, like many others, I get invited to meals and to go out to eat less and less.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,517
    • Most Online (within 30 mins)
      7,748

    Lizie
    Newest Member
    Lizie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.