Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Steps For A True Elimination Diet

JonnyD

By JonnyD
in Coping with Celiac Disease

Recommended Posts

JonnyD Rookie
JonnyD
Posted

Hi, All,

I hope you can help. I've been gluten free for almost a year but still suffer from an allergy to something(or multiple things?) in my diet. I'm going to have to do an elimination diet soon and am hoping for some advice. Just so you know, I've been allergy tested but those results all came back negative. A strict elimination diet is the only way to determine what's still bothering me.

But, apparently, an elimination diet means different things to different people and there's a lot of conflicting infomation out there.

For any who have had success with an elimination diet, can you describe the safe foods you started with and the process you went through to re-introduce/challenge foods?

Thanks.

Jonny

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciamarie Rookie
ciamarie
Posted

Here's what I've been doing for about a week or a little over that. I started with a list of foods that I know are o.k. / safe. On that list is:

chicken, turkey, rice, homemade rice bread, broccoli, green beans, yam, tomatoes/sauce, celery, apple, squash, salted butter, olive oil, tapioca starch, carrots. (I basically went with things I have in my cupboard, fridge and freezer -- there are other things that could probably make it to the safe list but I'm not planning to do a big grocery shopping trip soon.)

Then I made a list of foods that are 'probably safe' and on that list I have banana, peanut butter, oranges (juice), potatoes, raisins, pork, buckwheat, onion, cream, eggs, corn, brazil nuts and beans. I then have a space to note the date I ate a particular food and the result.

I have another list of 'maybe safe' foods which doesn't have much on it now. I'm working on the 'probably safe' foods first. I'm basically trying to see what bothers my DH, and of course there are many more things I'll be trying as time goes by.

I've been testing one different 'probably o.k.' food per day, but some advocate giving it 3 days. When I get into more of the 'maybe' foods I'll possibly do that. I decided to do that for now, instead of the food diary I was keeping, because it seems a bit more methodical to me.

StephanieL Enthusiast
StephanieL
Posted

It may be easier for you to do a food log before you start eliminating foods. Have you tried that?

If you really want to go to the ED, look at Dr. Sears. He's a ped but is the go to for ED's for Mom's trying to figure out what's up with babies.

Avalon451 Apprentice
Avalon451
Posted

I've had this one in my sights for a couple of years, but too scared to try it. It sounds like the official way to go, to really figure out what your problem is. Hard, though.

Open Original Shared Link

Adalaide Mentor
Adalaide
Posted

Out of curiosity reading through the caveman diet link it lists sea salt as the salt you can have. Living in Utah I can get salt from here (apparently it's called "real salt" as if all the other stuff is fake or something) that is amazingly cheap and if you've never had salt from here you have no idea what you're missing. I use a quarter of the amount I would use if it were that iodized crap in a box. It's also amazingly flavorful in a way I never imagined salt could be. Anyway, since it isn't chemically altered or treated at all would it probably be equally okay to use if I'm reduced to trying this diet? If so, I'd recommend it to everyone over sea salt. It simply can not be beat.

ravenwoodglass Mentor
ravenwoodglass
Posted

You said your allergist tested you for true allergies. Can you go back and have him give you a starting point for your elimination diet? Not all allergists will do this but that is how I did mine and it was what pinpointed my gluten problems. I had the testing for true allergies then he started me with only 5 foods. No beverages other than water, no spices, teas, coffee and only salt as a seasoning. I had to stick to those 5 foods for about 2 weeks, or until my symptoms resolved, and then I added back one food at a time, 3 times a day in pure form, for a week and if no reaction occured then I was allowed to keep that food in. He said that food intolerances are often delayed reactions so that was why we had to do a full week because that was how long it can take for a delayed reaction. If I reacted I dropped that food, waited until the reaction resolved and then introduced a different food.

Skylark Collaborator
Skylark
Posted

My first elimination many years ago I went down to lamb, rice, and lettuce for two weeks. I felt better so I started reintroducing foods three days apart. I'll usually have a reaction within 48 hours if something is going to make me sick since I have pretty good intestinal transit time. I was reacting to soy, cow dairy, and gluten. (This before celiac was in the news so I didn't know to get a celiac test.)

This time I went on GAPS, eliminating dairy as well as the GAPS-required legumes, grains, and soy. I also started keeping a food diary. Sure enough, I'm back to reacting to casein and also foods high in tyramine. I'm very suspicious of nightshades at the moment based on the food diary.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JonnyD Rookie
JonnyD
Posted
  • Author

Thanks for all the input. I'm formulating a diet right now and am hopeful that I can identify my other food issues.

Ty Cannon Newbie
Ty Cannon
Posted

Hi Jonny,

There are three main sources of inflammatory/allergic response. They are gluten, dairy and animal proteins.

What I have my clients do when they have these kinds of problems is simply cut those three things out of their diet for two weeks. That is usually enough for most people to notice a difference. I also recommend using blended drinks. This can be a very powerful tool for insuring you are getting all the necessary nutrients you need to heal your body, as well as helping to detoxifying your system.

Let me know if you would like a good blended drink recipe I would be happy to post one for you.

Ty

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,327
    • Most Online (within 30 mins)
      7,748
    somethinglikeolivia
    Newest Member
    somethinglikeolivia
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Am I celiac or not?

      By Scott Adams · Posted

      I'm unable to determine your situation--did you go gluten-free for a while before your endoscopy for celiac disease? If so, the results would not be accurate because you need to be eating lots of gluten daily for at least two weeks leading up to the procedure. Also, your strong TTG Antibodies IgA results do indicate celiac disease. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • somethinglikeolivia
      Am I celiac or not?

      By somethinglikeolivia · Posted

      I get so confused constantly by what constitutes an official celiac diagnosis. I’ve been told blood work alone is enough to diagnose, because biopsies are inconsistent, and it can take years for the damage to be severe enough to show in that way. I’ve also been told an endoscopy is the only way to officially say. My sister was diagnosed with type 1 diabetes in 2018. I had T1D antibodies checked (I was negative) and a celiac panel done. Both she and I presented with the same two positive celiac tests - mine were as follows: deanimated gliadin antibody IgG - 28.2 (ref range <0.4-14.9 U/ml) TTG Antibodies IgA - 65.9 (ref range <0.5-14.9 U/ml)  The endocrinologist who ran these stated a biopsy was not necessary and to immediately go gluten-free (he even went so far as to tell me I needed to quit my job working in a biscuit restaurant). I did end up leaving that job for unrelated reasons and went gluten-free. A few months later I went vegan for ethical reasons (no longer the case but at the time it seemed right) and of course lost weight, cleared up my skin, and was the best I ever felt.  A marriage, two pregnancies, and a pandemic later, I had a ton of weight gain and lots of bad symptoms like joint pain, cold sores, exhaustion, brain fog, etc. Went ahead with a endoscopy in 2022 to finally see for sure, and was told I had no intestinal damage and therefore no celiac. I ended up being diagnosed with Rheumatoid Arthritis in 2023 based on a positive anti-CCP test and having the HLA-B27 gene w family history as well (negative RF).    All of this to say, I struggle with disordered eating, so between that and the chronic autoimmune stuff it’s been emotionally distressing to not know how careful I need to be about gluten, how much it should interfere with my diet, and whether or not it is actually present. Any advice or others experiences would be very helpful! Thanks! 
    • Scott Adams
      gluten-free in Wilmington, DE

      By Scott Adams · Posted

      Thanks for sharing this, I've never heard of Ted's Montana Bar and Grill.
    • NoGlutenCooties
      gluten-free in Wilmington, DE

      By NoGlutenCooties · Posted

      For anyone looking for a great place to eat near Wilmington, DE, I did not find anyplace in Wilmington that looked like they could do safe gluten free. I was also there on a Sunday and most places are closed on the weekends. However, I found a really great place in Newark, DE - just 20min away.  It's Ted's Montana Bar and Grill and it was absolutely amazing! They have a great gluten free menu and they really understand about keeping things from being cross contaminated. They had the best Bison burgers and hand-cut fries.  Yes, in a separate frier, of course. My friend got the gluten free bun and she said it was really good. Ted's Montana Bar and Grill is also a chain, with several locations across the country.  If you happen to be near one, I highly recommend them.
    • Mari
      Ocd making gluten fears unmanageable. Need advice

      By Mari · Posted

      I havesome of the replies to your post(which by the way is a gread piece of writing) and think that it will take lots of time and reading to decide what you are going to do. I would like to give you some practical suggestions. Your anxieties and OCD are a perfectly natural response when your body is sending signals that you have physical problems. The body does not use words it uses biochemistry and electric interactions. Celiac disease is not a killer disease so you are not going to die in the near future if you get glutened.  It can be a disabling problem unless you stay gluten free. For OCD attacks I have used spearmint or peppermint teas to relax. I also sitorlay down , relax as much as possible and review what I have been eating for the last few days and can usually identify that I have been eating too much of something and not enough of other foods that would balance my body. My body may have become too acid when it needs to be slightly alkaline. For me this means eating more vegetables and less starches and proteins. There are some websites that will list acid forming foods and alkaline forming food and many foods that are in between. Just admit that you are anxious about gluten being present in foods and anything that is used to prepare foods or even in your environment. When you eat anything that makes you anxious take a capsule of an anti-gliadin enzyme. I use a brand called GliadinX. It works in the stomach and will break down small amounts of gluten. Look up online the amount of plain water your body height and weight needs every day. Two years ago I was 5' 4" and weighed 100 lbs and needed 48 oz. every day.  Even if you can't drink the full amount if you just drink more water you will notice some improvement in your digestive system.  That's enough for tonight and it's way past my bedtime. Don't hesitate to ask more question or ask for more information.       
×
×
  • Create New...