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Celiac: The Trendy Disease For Rich White People - Science 2.0
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42 posts in this topic

I'm saying that if you have a problem with the "moronic, useless articles" that appear here, and you really want to improve the site, you would discuss this with the person who is in charge of what goes on this forum site.

There's the misunderstanding again. I'm not at all looking to press for changes that I alone believe would benefit everyone. I'd like that IF everyone (well, most everyone) wanted a change, it'd be considered. 1st step has to be raising the question.

BTW, I don't appreciate the disingenous misuse of my "moronic, useless articles" phrase as if it applied to anything here. I was quite obviously referring to articles throughout the internet which were NOT linked to.

Hey I'm just saying there have been thousands of similarly moronic, useless articles about gluten-free on all sorts of blogs that WEREN'T given the publicity of a post here.

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Perhaps I wasn't clear with regard to my thoughts regarding Tom's proposal that Scott not post links to certain types of information.

I originally thought a link for the "Science 2.0" blog/article should not have a link posted on this site.

Upon more thought - I now believe that it is good for those within the Celiac Community to be aware of false information regarding Celiac Disease being posted on the net. It provides the opportunity to add facts to the conversation, rather than letting the false blogs/articles stand alone.

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There's the misunderstanding again. I'm not at all looking to press for changes that I alone believe would benefit everyone. I'd like that IF everyone (well, most everyone) wanted a change, it'd be considered. 1st step has to be raising the question.

BTW, I don't appreciate the disingenous misuse of my "moronic, useless articles" phrase as if it applied to anything here. I was quite obviously referring to articles throughout the internet which were NOT linked to.

what I'm am trying to suggest to you is that : if you have issues with this website,, rather than make comments in a post that a mod should do somethng, offer to help this be a better place. Talk to the person who makes the rules & purchases the press clipping service and offer to help.

I'm done arguing for tonight.

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There's the misunderstanding again. I'm not at all looking to press for changes that I alone believe would benefit everyone. I'd like that IF everyone (well, most everyone) wanted a change, it'd be considered. 1st step has to be raising the question.

Then you should ask.

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I now believe that it is good for those within the Celiac Community to be aware of false information regarding Celiac Disease being posted on the net. It provides the opportunity to add facts to the conversation, rather than letting the false blogs/articles stand alone.

Makes sense to me.

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The posting of links to articles in this forum is automated. Certain keywords in the article, including "gluten" and "celiac," cause a link to be posted. There is no subjective analysis. Use the word--get a post here.

I do weed out some stuff that really has no relevance. But this does have some merit. It is about how some members of the general public, including this misinformed author, perceive the diet.

Tom, the mods are doing what we have been asked to do by Scott. If that troubles you, you can send your suggestions to him via a PM, or:

http://www.celiac.com/glutenfreemall/contact_us.php

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...

I do weed out some stuff that really has no relevance. But this does have some merit.

..

Ahhh thanks Peter. That answers my original question.

Don't most of us agree that this article deserves no mention here at all?

...

That's the 1st sentence of my 1st(oops 2nd) post in this thread. Trying to see what others thought. So thanks Peter & GottaSki

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Upon more thought - I now believe that it is good for those within the Celiac Community to be aware of false information regarding Celiac Disease being posted on the net. It provides the opportunity to add facts to the conversation, rather than letting the false blogs/articles stand alone.

There's certainly no shortage of false info re celiac disease % gluten-free online.

It could almost be a subcategory in the Publications section, if such a thing existed.

Should we have *more* threads w/ links to false info articles? (In an awareness-promoting sense I mean. Please don't anyone take that wrong)

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There's certainly no shortage of false info re celiac disease % gluten-free online.

It could almost be a subcategory in the Publications section, if such a thing existed.

Should we have *more* threads w/ links to false info articles? (In an awareness-promoting sense I mean. Please don't anyone take that wrong)

I think this site does end up with a lot of those. If they don't get posted through the auto system, then someone finds them and posts to ask about them.

And they may as well be fully discussed here, because ignoring them could easily be construed as supporting them.

But I also find them annoying, and can't be bothered to comment on them. B)

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I just found another one, but lost my first write up.

Science seen lacking for gluten free craze

http://www.foodbusinessnews.net/articles/news_home/Consumer_Trends/2012/08/Science_seen_lacking_for_glute.aspx?ID=%7BA77637C9-F272-4E0B-8C54-3D9AA6565135%7D&cck=1#.UEH5k6p23A8.twitter

8/31/12 Josh Sosland, FoodBusinessNews

NEW YORK

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Interesting, but as far as I know, there is no evidence that supports the theory that eliminating wheat from one's diet is detrimental in any way.

Many people do not consume whole wheat (or any grains for that matter) and they are neither celiacs nor gluten intolerants--and they live healthy lives.

I know many, but 2 examples are:

--- my friend who has MS and she has kept it at bay for 25 years by following a grain free diet (long before gluten-free was "faddish");

-----another is my husband who takes no meds, works out a gym 3x a week, walks 3 miles without breathing heavily, has no health issues and is in better shape than men half his age. (and he has great legs, too)

There are many "theories", many "agendas", many "opinions" out there--and right on here at c.com....but really,

in the end, whose business is it what people eat?

Your own.

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Well, Takala, I followed your links--all of them, but did not arrive at the same conclusion.

I have met Shelley Case. We talked at some length. I have read her writings. Gluten-free does not mean grain-free. Suggesting alternate grains as foods, such as rice, corn, quinoa, and others, is not in conflict with eating gluten-free. I found no evidence to suggest that she is promoting wheat. If you have a specific reference where she endorses wheat as a food, please provide the link.

I can put a link to anyone who has a website in any post I make. That does not mean that they agree with my position, or even know that the link exists.

Edited by psawyer
Irish posted while I was composing.
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From everything I have read, and information from doctors and dieticians, there is really no harm in following a gluten free diet, which is why I decided to make the whole house gluten free instead of making different things for the 2 of us.

On the other hand, gluten is not harmful to those who can tolerate it, and there is no sense in following a gluten free diet for health reasons if a person can tolerate it. I just do it because it eliminates the risk of cross contamination, and means that I only have to make one lot of everything, instead of 2 lots of everything when only 2 of us live here.

I run a local fb group for people in our community, and someone posted a link to a business she is starting up which is making all gluten free goods. It started in a different town 4 hours away and has really taken off, so she is starting it up here. She wanted to guage support for such a business, and was surprised at the amount of people who are interested, and I have already ordered 1 dozen cupcakes from her to pick up in 2 weeks time. She does them vegan as well, but only by order, but everything is gluten free. One of the comments was asking why the government allows gluten in foods when it's proven to be harmful to people, and they can simply take it out. I had to then tactfully explain what gluten was, and that it was not harmful to everyone, only those who cannot tolerate it. Like lactose, only a small portion of the shelf/fridge is set aside for lactose free because the majority of the population don't require it, so more space is set up for regular milk which is not harmful to the majority of people.

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Takala, I see absolutely nothing wrong with Case, who has done a ton of good for our community, being on this board. In fact, I think it's an excellent idea to have a celiac expert on a grain board.

richard

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That "board" of directors is the one governing an organization that is lobbying against gluten free. Hellooooo. They are funding studies by "expert" "professors of xxx with pHd's" which conclude a diet based on wheat is better.

Case has also been quoted in the regular media more times than I can count, as the Registered Dietician Celiac Expert claiming this:

Besides the hassle, you can end up with serious nutritional deficiencies. "Gluten-free doesn't necessarily equal healthy, especially when people yank vitamin-enriched and wholegrain foods from their diets and replace them with gluten free brownies," says Case. In fact, research suggests that those who forgo gluten may be more likely to miss out on important nutrients such as iron, B vitamins, and fiber.

http://www.womenshealthmag.com/health/gluten-free-diet

another one

"Gluten-free doesn't automatically equal healthy," says Shelley Case, RD, author of Gluten-Free Diet: A Comprehensive Resource Guide. And these foods won't help you lose weight: They tend to be higher in calories and lower in fiber than regular grain products because they have to pack extra starch, fat, and sugar to make them palatable, Case says. Also, most are not enriched with iron and B vitamins as are other refined grain products, so you may miss out on key nutrients.

http://shine.yahoo.com/healthy-living/food-labels-really-mean-160500128.html

There's that phrase, "research suggests.... " again.

And the "most are not enriched... so you may miss out on key nutrients"

I had never even paid much attention at all to Case, until she kept getting quoted in the media, implying that a gluten free diet using any sort of gluten free baked good was less nutritious than a regular diet.

Case getting quoted by another registered dietician, Lisa R Young, PhD:

GLUTEN FREE. Gluten free products are on the rise but not everyone needs to eat gluten free, and gluten free does not mean that a food is healthier. Gluten free diets are important for people with celiac disease or people who cannot tolerate gluten. Gluten free cookies, however, are still cookies and these foods DO have calories. In fact, many gluten free products often have more calories than their non-gluten free counterparts. As my expert colleague Shelley Case, RD, author of Gluten-Free Diet: A Comprehensive Resource Guide says

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I agree with this:

If you are eating a poor diet, with lots of donuts, pizza, bagels, and so forth, and switch to a diet with lots of gluten-free cookies, donuts, bagels and pizza, well, you now have an unhealthy gluten-free diet. In fact, in this case, it may be less healthy since many of the gluten-free substitutes have more fat and calories than the gluten ones.

A gluten-free diet can be better and more healthy, or not.

If you go gluten-free by changing your eating habits, not just by substituting poor gluten-free choices, you will have a healthier diet.

It is really about what types of foods you choose to eat, not whether the specific choices are gluten-free or not.

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If you go gluten-free by changing your eating habits, not just by substituting poor gluten-free choices, you will have a healthier diet.

That's the truth. Amen.

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Lately I say things like, "When I was diagnosed with celiac disease...", even though I never got tested by a doctor. I am SELF diagnosed, but if I say that no one takes me seriously. The way I say it, I'm not lying exactly, just heading off the misconceptions.

I do the same thing, and was very annoyed by this article. I'm on an island with doctors who seem to know nothing about celiac disease and have this misconception that celiac disease can only occur in white people. This kind of thing just makes it harder for me to get a proper diagnosis.

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    • The anxiety thing is there I take teas, and supplements along with CBD oil to help with it, and long walks and exercise when I get antsy. As for the human interaction it is a mix of other mental issues, and the way I feel about people who can eat gluten. If they are not eating I have no issue talking with people. I mentioned I have issues accepting them as the same species when I see them eating. My reaction to gluten is so ingrained in me that it is not a food but a poison, that watching others eat it causes a subconscious reaction where I find myself avoiding them and looking down on them like something from another planet. I end up disgusted with them and walking away, I will go out of my way to avoid people and places where foods like this are present. This is my TRAUMA part of the gluten exposure, and one of the big things I am trying to address in my life right now. I know it is irrational to do so but I end up doing it, I have never cared about others race, religion, or looks, but if I see them eating a gluten/poison, it somehow changes how I perceive them and interact with them and I hate this part about me. It is taking a lot of mental effort to try to smile and treat them as a human, and not something to be looked down upon in disgust. I just recall that mental state that gluten puts me in with my mind and body turning against me and not doing what I will it and the fear comes back. This diet is pretty much like mine, I take Doctors best Magnesium powder in a tea that is actually brewed with st johns wort (never thought much of it) , I use Liquid Health Stress & Energy along with the Neurologic Support they have, twice-three times a day for B vitamins(along with a bunch of other supplements) . I can not digest meats or carbs well, meats it is a issue with breaking them down same with egg yolks, I literally just burp up the undigested meats hours later. I have found the only way to eat them is to boil/slow cook them til they melt then blend them into a broth and have it with digestive enzymes so only do it with turkey bacon, longhorn, and salmon in small amounts in soups or for flavoring stock for stir frys.  As for Carbs like rice and potatoes I end up getting really gassy and bloated, same with sugars in any amount greater then like the size of my thumb give or take. Oats I only have gluten-free Harvest in about a tbsp amount when tasting recipes of stuff I sell at farmers markets. So I eat mostly fats and protein from egg whites, nuts, seeds, veggies, and vegan protein powders blends balanced for complete proteins. I have at least 1-2 dried fig, dates, handful of banana chips, or a 1/4 of a small fruit with meals for fruits.  My meals are mostly egg white and veggie omelettes, stir frys, and soups, Always with lots of fats and proteins in each meal. I have found having nutritional yeast to help with my mood and energy levels also and find someway of having it in meals often. I keep my foods on rotation and keep getting updated feed back on ratios with my dietician. I also have a rather odd list of foods I can not eat due to allergies/intolerance.
    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
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    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • DaVinci's Pizza has several gluten-free items great gluten-free pizza (well done suggested) and they don't have anything with gluten that goes in the fryer, so wing and fries are great all salad dressing made in house and gluten-free.  Owners mom has Celiac so they're very empathetic. Cheers. And enjoy. I eat there all the time and have NEVER had an issue. And if someone just touches bread then prepares my food its all over for me 6-8 hrs of reaction for me. Also Jimmy Johns @ 17th and Peachtree Street also great just tellm'to change glove and ask for the paper to be placed on the sandwich board before they make it. Also never had an issue but I have only had the Italian style lettuce wrap. 
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