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Blood Test Negative
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Hello there everyone. Well the doctors office just called and said my blood test was in normal range. They were not very familiar with the test itself but said that the normal range was less than 10 and that my level was 1.6.

I'm not that familiar but with all the signs, symptoms, etc I really thought the test would be a positive. Not to mention two positive biocard celiac tests:( they were faint positive but judged as positive . I've eaten no bread, pasta or oats for a year however hav still been getting small amounts of gluten.

This seemed like the answer to everything with the past history of celiac as a child(via stool test) and array of problems I've had last year with the reactiv hypoglycemia and adrenal fatigue. Now I think the doctor will just go back to the approach where she doesn't know what it is etc:(

Feeling very let down but hoping these blood tests can be wrong. What do you think??

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Obviously, they only ran one of the five tests, probably the tTG (tissue transglutaminase). It is possible to be negative on some of the tests and positive on others. Also, if you were eating no bread or pasta, you probably were not getting enough gluten. I am not very familiar with the biocard test and its degree or reliability so can't comment there. ND's use the stool test but it seems like most MD's disregard its validity. So although you were diagnosed as a child, it was not with a test that MD's tend to accept. So it does leave you in an awkward place in regards to testing.

Since you already don't eat pasta or bread, my feeling is that you should accept the childhood diagnosis (and no, you don't grow out of celiac -- if you had it then you have it now) and just go totally gluten free right now.

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Couldn't agree more. Once a celiac, always a celiac. Blood tests only catch it some of the time. Diagnose yourself, and feel better!

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I diagnosed myself with a Biocard test (which tests ttg IgA) and had a very faint positive; in a dimly lighted room you could barely see the line. When the doctor had my ttg IgA tested it went above their normal high limits so I believe the Biocard tests are fairly reliable. But if you are going gluten-lite, that can affect your results and give false negatives...

If you were diagnosed as a child, and had two positive Biocard ttgIgA tests, I would say that you ae a celiac. If you want to test further, you'll have to eat much more gluten that you are now, and keep it up for a few months. If you are celiac, that will cause you to be ill though so I think you should probably start eating completely gluten-free without any gluten at all. I was shocked to discover how little gluten it takes to make me ill once I had gone gluten-free; you'll need to cut it out of your diet entirely. Once you take the leap, a gluten-free diet isn't as hard as it sounds. Honest. :)

Best wishes. I hope you feel well soon.

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Thank you very much ladies:) in my heart I am sure it is celiac as it all makes sense. Too many yes you have it and no you donts and now the body is breaking apart. I am going completely gluten free and hoping that adrenals and all the rest start to heal. I am meeting inter nest at hospital on Saturday at one and I am going lush that he start the bloodwork to check for deficiencies and adrenal fatigue, etc as well as ask for some fluids and vitamins via iv as I've now become dehydrated as well.

This celiac is a real complex bugger of a thing but together we will all get thru.. Xo

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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