Started Eating Gluten Free Yesterday.
Posted 17 October 2012 - 11:49 AM
Posted 17 October 2012 - 01:11 PM
Posted 17 October 2012 - 01:13 PM
You doctor should also test your vitamin and mineral levels, especially B12 and D as well as test you for anemia.
IMHO it is unlikely that you would lose 2 lbs overnight from going gluten free. Some of us do lose weight after we have been on the diet for a bit for a variety of reasons but gluten free is not a calorie restricted diet. In fact many specialty gluten free foods are quite high in calories.
If your doctor resists testing you for celiac because you are over weight insist on it because of your symptoms. Many doctors don't realize that you can be overweight and celiac. I was the heaviest I was in my life pregluten-free but in my case it was because of edema because a long period of misdiagnosis had damaged my kidneys.
Do read as much as you can here as the diet has a bit of a learning curve and keep in mind that we can still need the diet even in the event that our celiac testing comes back negative.
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 17 October 2012 - 01:18 PM
Get tested before you take gluten out of your diet.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
Celiac.com - Celiac Disease Board Moderator
Posted 17 October 2012 - 01:51 PM
Allergic to red food coloring.
Posted 18 October 2012 - 08:18 AM
Make sure you get your thyroid checked. It can cause late puberty and hair issues.
I have had my thyroid checked and It was within normal range. I developed in every other way except my period, so not sure if that really counts as late puberty.
Posted 18 October 2012 - 12:06 PM
Removing gluten can make an already difficult process much harder - don't remove it unless you are certain you don't wish to pursue a diagnosis.
Let us know if you have additional questions.
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
Posted 18 October 2012 - 04:10 PM
Negative blood work, positive dietary response
Endocrinologist offered referral to GI if I needed formal diagnosis to follow the diet, otherwise just pass on wheat, barley & rye
and save my money
Posted 18 October 2012 - 05:56 PM
I did lose weight, about 15lbs now, which began after I had been gluten-free about a month. My belly got noticeably flatter within about 2 weeks and proceeded any weight loss. It was a nice bonus to feeling better. LOL
Double check where your TSH was in the range if you can. I ended up with Hashimotos hypothyroidism because of untreated celiac disease, and for the first 10 years of it, my TSH was within normal range but at the high end of it (a 3 to 6 something in a range of .2-6) and I had hypothyroid symptoms (similar to celiac) the entire time. I am fairly confident that if the doctors had run a TPO Ab or free T4 test, I would have been diagnosed and treated much earlier... and felt better years ago.
Good luck to you, and welcome to the board.
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hashimoto's - August, 2012
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