Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are You Beyond Your Past Intolerances? Needed Answers For How To.


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

I am hearing so many that are struggling with intolerances and having extreme difficulty. They seem to need to avoid everything in their diet.

I am here to ask to hear from someone who has been there done that. We need to know how you did it.

Sometimes I am feeling so well lately, I am wondering if I have done it, but I want someone gluten free longer than 7 months.

I hope all will get there one day: Beyond intolerances.

If you are still in the process, you might describle how you are trying to overcome it.

Diana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Chaff Explorer

Diana, once again, we are totally on the same wavelength. Just sayin'. :rolleyes:

mushroom Proficient

Four that I am beyond: can eat all dairy now; can eat things with corn starch in them now; can eat things with potato starch now; can eat things with soy lecithin now. Small but significant steps in what can be added back into the diet. Pamela's baking mix, anyone? Udi's bread? Chocolate?

GottaSki Mentor

Took me a very long time to find all mine, but I can do small amounts of cocoa and I had a slip up a week ago and ate dairy - no reaction! I'm staying the course on my current list of foods since I've only been vertical again for a little over a month.

Mid-May I plan to trial many of my problem foods with the exceptions being gluten and histamine containing and histamine inducing foods.

Hang in there Diana - it really does get better and going without many foods doesn't bother me now that I'm feeling better - you will get here too :)

Edited to add...just read your tag -- sorry guess I should not have responded as I have not overcome many intolerances -- I just have every reason to believe I will.

bartfull Rising Star

Got corn starch back. Seem to have gotten nightshades back. Although I haven't tested ASPERIN yet, I seem to do OK with the salicylates in most fruits and veggies now. I can eat chocolate again too. :wub: There are a bunch of things I haven't tested yet.

How did I do it? By sticking to nothing but whole foods for a year. Then I added back one thing at a time, and only trying a new food once a month. And I really think that the fact that I went totally organic for the first six or eight months really helped.

JNBunnie1 Community Regular

I have been gluten free for 8 years, I developed a (likely stress-related) intolerance

of all things tomato a couple years ago. Gave myself a year off, tried it again, was good.

Sometimes, you just have no idea.....

Gemini Experienced

I have been gluten-free almost 8 years and the only other intolerance I have is to dairy. I haven't gotten that back so it's doubtful I will at this point.

I can eat small amounts like milk in my tea but can't eat ice cream, drink a glass of milk or eat anything with a big dairy hit. However, I am not too bothered by this because dairy isn't always the best thing to go heavy on. If you have asthma, which I don't, or have allergies where you can develop congestion from time to time, dairy is something to be avoided as it's very mucous producing. I feel clearer in my lungs and head when I don't eat dairy. Besides, there are alternatives like soy milk and almond milk, which I like so it's not a problem for me.

Other than that, I have healed to the point where I am doing well and rarely get sick from GI issues anymore.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Had to go grain- free in the beginning, did everything with nuts I ground myself, and at first dairy free, then a tiny bit of hard cheese, but after a nearly week - long storm damage power outage around 2008(?), realized that it would be easier in an emergency if I could tolerate some sort of packaged foods, so I gradually added in things like rice cakes and peanut butter. Finding an agreeable p-b was entertaining ("here, honey, could you finish this jar while I open a new one :rolleyes: ") but I got there. Was really amazing the first time I ate gluten-free pizza out and didn't suffer, took a while. Had to go back to avoiding cc in many gluten free grains with commercially prepared products because I can't do soy flour, flax or oats, but, fortunately I have the "baking gene" :D , got to taste what is possible, and I just make my own stuff, using the gluten-free Chebe tapioca as a base product, because at least that's in the hf stores around here.

I don't think of this as being "restrictive," because it certainly beats being crippled by neurological problems, so much as it is just being time consuming. I have family members who have actual food allergies and who must avoid other categories, which I can eat, so I think I'm fortunate, and I think that is actually a bigger problem, a sort of mental trick. They probably think the same thing. To each their own... B)

GottaSki Mentor

How could I forget.....I got almonds back - was nut free for over a year - still can't do cashews - haven't tried others yet. Almonds were a fantastic addition - I use whole raw almonds to make milk, flour, butters and the best thing is my cocoa "mousse" - yum!

cahill Collaborator

I have been gluten free for over 3 years , soy free over 2 years. I has taken me a very long time to identify all my intolerances.

I fought very very hard to keep corn ( that did not work out so well :blink: I am grain free ( with the exception of rice , which I limit ) Xanthum gum is totally of limits :ph34r: . Legumes and nuts I rotate in/out of my diet .Potatoes are not happening for me but now I can rotate tomatoes and peppers in /out of my diet.I have a lot of foods that I still rotate in/out of my diet .

The key to getting "past" your intolerances? I would think it would be identifying them. Then eliminating them to allow your body to heal, then reintroducing them ( one at a time) to judge your reaction to see if it is now something your body can tolerate.

Not to be a downer but, I do not expect to " get beyond" most of my intolerances. I was undiagnosed for an extremely long time. There was a lot of damage . I have A LOT of intolerances. Most of them are here to stay.I live with that every day and I am OK with that because for the first time ( probably ever in my life ) I am healthy :D And I am good with that :D

I did get dairy and eggs back :D ( two biggies to me :D )

  • 5 weeks later...
designerstubble Enthusiast

Just found this thread, been looking for some inspiration! It's a great topic (for me!), as I am SO struggling with just eating fruit & veg. It's so good to hear that some of you are actually getting a few foods back. I'd be happy with dairy, eggs, and corn. Life would be soooo much simpler. And happier.

pricklypear1971 Community Regular

I got back high iodine foods (egg yolks, potato, asparagus, dairy, sea fish, etc) after my DH cleared. Weaned back on them slowly. Took about 4-5 months total.

Can have more sugar now that adrenals have improved: that includes fruit and processed sugar. Drastically reduced it for months.

Have discovered sugar delivered with starch/grain is not good. I have no "stop" button. Sugar with coconut/nut flour hits the stop button. Problem solved.

My gut is much better, energy better, no rash (unless I get a virus then it seems to flare just a tad, but nothing that stops me). I attribute the bulk of "feeling better/energy" to time, healing, and finally being able to work out. That said, working out has been an adventure with a few setbacks. But overall, I move forward.

I've been gluten-free almost2 years.

  • 2 weeks later...
1desperateladysaved Proficient

I have a concern that  eliminating food could be conterproductive..  Someone might get malnourished as a result.  That is why I was wondering if anyone recovered when they had very few things left in their diet.  The whole thread has been interesting for me, though.  I was intolerant to some degree to most things I was eating.  Rather then just eat the ones Ihat I had left, I began a rotational diet.  I was puzzling which way to go, to take out every food that I had antibodies for, or the rotational diet.  The rotational diet has done well.  I didn't have  an IgE reaction to anything, so that is why I was allowed to eat all of the foods.  If a person has an allergic reaction, they would not have it in their rotation.

 

Any thoughts in these directions I would appreciate.

dilettantesteph Collaborator

My experience seems different from others here.  It has been close to 6 years now.

 

I hadn't been eating dairy for years when I was diagnosed, but I was able to add it back after about a year.  Then I started reacting to it again.  I found some grass fed milk locally and I can drink that, but when winter comes, the cows get wheat and I can't drink it anymore.  The same thing happened with eggs.  I was told that I must be intolerant of nightshades because I reacted to tomatoes.  Then I found someone at the market whose tomatoes I could eat.  Unfortunately she wasn't there the next year, but I had planted some of my own by then.  Same thing happened with rutabega, squash, potato, etc.  I would get quite sick sometimes from other sources, but when I grew my own I was good. 

 

As far a your questsion goes, I did seem to be able to heal with a limited diet.  I paid careful attention to getting all necessary nutrients and that can be difficult with a limited diet.  My diet is still pretty limited in the winter.  It would sure be a lot easier if I could find more sources of food that I could trust. 

 

It is really nice feeling this healthy.

cahill Collaborator

I found going organic resolved a lot of my issues . Meaning that it was the pesticides  ,waxes  ,additives and fertilizers  I was reacting to rater then the food its self .

Buying local organic fresh foods has made alot of foods tolerable.  Winter is tough but we deal :)

 

** just to add ** certain foods are off my consumable list permanently,,, meaning even if  organic  they are  NOT something my body tolerates .   Soy,Gluten,Sugar/Artificial sweeteners  and grains are OUT of my diet .

cahill Collaborator

I have a concern that  eliminating food could be conterproductive..  Someone might get malnourished as a result.  That is why I was wondering if anyone recovered when they had very few things left in their diet.  The whole thread has been interesting for me, though.  I was intolerant to some degree to most things I was eating.  Rather then just eat the ones Ihat I had left, I began a rotational diet.  I was puzzling which way to go, to take out every food that I had antibodies for, or the rotational diet.  The rotational diet has done well.  I didn't have  an IgE reaction to anything, so that is why I was allowed to eat all of the foods.  If a person has an allergic reaction, they would not have it in their rotation.

 

Any thoughts in these directions I would appreciate.

 

 

The malnourishment I suffer before my elimination diet was killing me. So eating foods that my body could  actually absorb ,, even though very limited in my selection ,, saved my life .

Removing those foods I was intolerant  of allowed my body to utilizes the foods it could actually absorb and allowed my body   to heal so that I could eventually add some foods back into my diet

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,146
    • Most Online (within 30 mins)
      7,748

    April Martin
    Newest Member
    April Martin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hi, @jeriM, I can attest to Celiac and eye problems being connected!  There's a higher rate of Sjogren's Syndrome in Celiac people than in those without celiac disease.  Sjogren's Syndrome causes dry eyes and can even lead to dry mouth which can alter taste and smell.  Have your doctor check for Sjogren's.  Correct low Vitamin D, which regulates the immune system.  Talk to your nutritionist about including in your diet plenty of Omega Three's. Omega Three's help keep our eyes moist and lubricated.  You know how oil floats on water, same thing with our eyes!  Fun fact:  Our eyes are derived from the same sort of tissues as our digestive tract in a developing fetus. Oh, check your thyroid function, too.  Hashimoto's thyroiditis frequently occurs with Sjogren's. Autoimmune diseases tend to cluster in celiac disease.  I also have Diabetes type two.   Discuss with your nutritionist the benefits of a low histamine diet.  A low histamine diet can help reduce inflammation and gets those inflammation markers down.  I like the Autoimmune Protocol Diet, a Paleo diet that promotes intestinal health. Best wishes!  Keep us posted on your progress!
    • jeriM
      Ah, Scott,    Ha ha!  Thats almost a reasonable assumption given the prices during the shortage.  However, our eggs?  We always gave them away to friends and seniors we know, so no mansion here.  Now we have to buy eggs like everyone else.   The house we found, we loved so much that it made it worth it for us to give up the chickens.  A hard decision.   
    • Scott Adams
      Claritin is an allergy medication which can help with allergy symptoms, but may not be helpful with gluten exposure.
    • Scott Adams
      I know what you mean about the high cost of drugs. I recently had to get meds for my mother from a Canadian pharmacy because only the non-generic version is available is the USA, and it is ~$550 per month here, while in Canada the generic version is only around 1/3 the cost. 
    • Scott Adams
      Reddit is another place to search, which I found this thread:  
×
×
  • Create New...