Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Newly Diagnosed Baker
0

12 posts in this topic

I'm new to this...I've been gluten-free for a couple of weeks now...I've noticed the "pity parties" and other posts like that and I want to jump into the pity party bus tonight. I admit that after being gluten-free for only a short time, I feel better than I have been. Diarrhea after nearly every meal I ate and headaches, nausea, feeling exhausted, forgetful and worst of all GROUCHY beyond normal GROUCHY...my kids have other names for it, but we'll leave it at that. Bread is my favorite food, however I'm not much of a "food" person anyway. Because most meals made me sick, I had lots of trouble even deciding on food. It just doesn't excite me much. I ate to live, yet am still overweight. I get what I'm being told and I accept it, though grudgingly. I know it will make things a lot better, but here's the thing...

Last spring, I opened a bakery in our little town. Cupcakes, cakes, cake pops...you name it. All my own creations or things my children and husband and friends helped me come up with. I had the absolute best job in the world. Who gets to go to a job every day that they love?! I will be 40 this year and it took me this long to go for my dream and it has now been thrown out the window because of all of this. I have had issues for years with my voice off and on, headaches, the diarrhea and other stuff was all the time. My thyroid has nodules that were too many to count, though thankfully was not cancerous. This led my PCP to think about a gluten issue. I got lucky, I suppose; he himself suffers from it and knows the signs, having researched for several years to become a bonafide expert on the subject.

Anyway, my voice disappeared a month after my bakery opened. It came back, but is husky and a lot of times not much more than a whisper. I was exhausted, from what I THOUGHT was long hours, but was really because I was seriously ill. I got headaches that were blinding, but I pressed on because I was doing what I loved and I couldn't afford to hire help yet...I finally was able to get an appointment with this doc who immediately started checking things out and actually LISTENED to everything I complained about even though none of my issues were even remotely related to each other...or so I thought. I was so tired and so sick that I was told that I needed to find someone to run the shop if I was to get better... that wasn't possible for me; I wasn't even paying ME yet. So in the end, I had to close up in early December so that I could get myself better. Fast forward to today when my doc sat down with me and discussed how important it is that I take this very seriously and completely cut it out. He said that I was slowing committing suicide doing what I love most in the world to do. No more baking items that contain gluten until he and I work together to find a way to make it okay...but he has his doubts that it will ever happen to the extent that I can do it professionally again. I did make gluten-free items, but never really understood how important it was to keep things totally separate until now. I'm not mad that I can't EAT them; I'm mad because I can't MAKE them.

I'm going back and forth between "Thank God I know what it is now and it's something that can be 'fixed' over time!" and "What kind of sick cruel joke is God playing to take away something like this from me?!"

And I KNOW there are lots of things I can still eat. I really do. I didn't eat a lot of cupcakes myself; I just loved to make them for others to enjoy. That being said, I have still had the thought that I'm going to starve to death before I figure this all out. Especially the cross-contamination thing...I have a husband and 4 children as I said, so I'm finding it really hard to figure out how to organize my kitchen and supplies to avoid hurting myself while still giving them what they love to eat.

I've reread this and see how unorganized it is, but I guess that's just me. I realize I'm whining too, so I apologize. I guess I just need someone else who understands. My family is being super supportive, but I don't want my issue to be a burden to them. In other news, I've LOST 12 pounds in the two weeks, but my doc says this is normal. I'm good with that. :) Oh, and after 2 weeks gluten-free, no diarrhea! I still have headaches everyday, but I think there's a difference the last couple of days now. My voice...there's a difference. He seems to think it will come back on it's own.

I wonder if anyone else has the issue I have...not being able to do what they did professionally before their dx? Do I really need a back-up plan? Does anyone have any tips on eliminating CC with a houseful of teenagers who are into everything in the kitchen and a husband who cooks the most delicious foods, but makes the biggest messes in the process, lol?

Thanks for "listening".

1

Share this post


Link to post
Share on other sites


Ads by Google:

Unless you could turn it into a gluten free bakery, i don't see how you could keep working in one. Flying flour and all that jazz (more spacific reason: you inhale the flour via air, it gets in your nose, and down the throat it goes).

Make a spot in the kitchen yours and designate it as such. No gluten in this area. Get your own cutting board/plastic things.

0

Share this post


Link to post
Share on other sites

Unless you could turn it into a gluten free bakery, i don't see how you could keep working in one. Flying flour and all that jazz (more spacific reason: you inhale the flour via air, it gets in your nose, and down the throat it goes).

Surgical mask or similar, is what comes to mind. It may be possible, but it sounds complicated, unpleasant and unfair.

Sorry to hear life threw you this curveball, Maggie.

0

Share this post


Link to post
Share on other sites

First things First! Have your children been screened/tested for Celiac/Gluten Issues???

1

Share this post


Link to post
Share on other sites

Welcome. You never, ever have to apologize for venting or 'whining' here. We do understand how hard this is. Do read the Celiac 101 or Newbie thread as that will explain a lot about what you need to do to keep yourself safe. Please do have your children tested as celiac is strongly genetic. Do that even if they don't seem to have symptoms.

Perhaps when you are healed and feeling better you could consider creating yummy gluten free baked goods. There is a demand for them and while you may not be able to open a shop in the near future you could sell them at your local stores or perhaps even on line. For now though concentrate on getting well.

0

Share this post


Link to post
Share on other sites




I don't know much about the community that you live in but you may be surprised at the response you would get by having and advertising a gluten free bakery on twitter and facebook in your area. I know some people that even keep odd hours and run their bakery on the side part-time completing orders and then work another job concomitantly. I should think it would be difficult to sling flour around all day and not ingest some of it, sorry. You WILL eventually adjust to the new norm. In my industry I am constantly catering lunches and doing dinners so it was quite an adjustment initially. Once the routine gets established, you'll be fine. :-)

1

Share this post


Link to post
Share on other sites

Gluten-free shared meals only, keep a totally gluten free square of counter, get all your own dishes. I'm not much help, my home is gluten free.

But what captaincrab said definitely, get your kids tested. Total randomness gives them a min 1/10 chance of being a celiac. Got to be a higher chance if you include gluten intolerance. If they aren't celiacs now, get them tested periodically and/or if they show any signs of anything odd with their health.

0

Share this post


Link to post
Share on other sites

(hugs) You've been dealt a bad hand. :( I would complain loudly myself. I'm glad you are feeling better and losing weight. Congrats. You must be doing something right. You'll have to be extra careful with so many factors working against you.... but you know that. Kudos to you for doing it. I made my whole house gluten-free partially because the hassle was driving me crazy.lol

Best wishes to you.

0

Share this post


Link to post
Share on other sites

I am so sorry. I met a lady who was diagnosed celiac after her and her husband bought a pizza parlor! She now offers gluten free crusts. She makes them at home and then takes them to the restaurant to prevent cross contamination. (Not sure if that is FDA allowed but I trust that more than making them there!)

Children with autism are often on a gluten free/dairy free diet. You could make cupcakes and birthday cakes for them in addition to celiacs. I had a friend this week complain that no one made dairy free cakes! You may could just adjust your specialty. There is a gluten-free bakery that will ship to your house. You could be one of those, too! Celiacs would love a totally dedicated gluten free bakery! I'd love for you to come to my town!

0

Share this post


Link to post
Share on other sites

Hi Maggiemc

I am a little late arriving here but just to support what everyone else has said really.

I have had some similar issues as I cook for my living too (guest accommodation at home). Evening dinners presented an immediate problem - how can you taste anything to check seasoning, etc if there's gluten in it  :o ! It's been a learning curve for me but our guests get 95% gluten free - that's soups/starters, mains and pudding/desserts and they don't even know it  :ph34r: !!! I no longer make bread rolls, I buy all bread in now from a good bakery  and it has it's own area and hubs does the cutting of it. Breakfast toast as well. In spite of these measures I obviously have cc issues during our summer season but I am getting better at dealing with it - quite a challenge!

 

You have certainly had a lot to deal with and just for the record, I think stress seems to aggravate celiac (starting up a business).

As others have said, a gluten free cake business might be a very good thing - especially supplying to other outlets.

 

I know how you feel though - I don't miss eating gluten but can feel disappointed that I can't produce some of the food that I used to - like you i love feeding people and animals too (mine are gluten free - except the hens) 

babbling ......

going now :ph34r: .........

0

Share this post


Link to post
Share on other sites

Thirteen years into being gluten and milk & dairy free, I also had to stop all foods except fruits and vegetables because of asthma, gout & rheumatoid arthritis.  This morning I took my grandson to a fairly new bakery in Escondido, CA, 30 miles north of San Diego.  All the pastries contained milk, so those were out, but they offered breads that were acceptable.  It is called, "Gluten Not Included," on Centre City Parkway in Escondido.  Maybe the lady would be a resource you'd like to contact.

 

I've found that if you just switch your entire household over to gluten free, it saves so much grief.  As a previous person who posted said, make sure you check them too.  I ordered tests from Enterolab on the internet.  i offer you my condolences on this "change of direction" in your life, and since I once worked at a bakery during the day, and an ice cream parlor at night, and couldn't eat any of the products, I do appreciate how satisfying it was to see the smiles on the faces of those enjoying the foods and the experience.  I know I would have a huge smile on my face if someone offered pastries and bakery items that we could eat.  I think that sometimes those "changes of direction" work out just as they're meant to.  I hope you have smooth sailing during this transition time.  Please email me at welda@att.net if I can offer brands of foods that work, or even encouragement.  Best wishes, Welda

0

Share this post


Link to post
Share on other sites

Maybe you don't have to give up your dream, perhaps wear masks and food gloves in your bakery? I bake A LOT for my kids but I don't eat it myself of course. I've also been having a lot of fun experimenting with coconut flour. I wish you the best of luck!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,657
    • Total Posts
      921,628
  • Topics

  • Posts

    • Hi, you can try reporting your own post.  That should alert the site admin of your request.  I don't think they can delete your posts, but changing your user name may be possible.
    • Hi Pablito, Welcome to the forum! You are right, you should keep eating gluten  until the tests are all done.  The skin problems you describe ma be a condition only celiacs get.  The condition is called dermatitis herpetiformis (DH for short),  DH causes an itchy rash that is usually symetrical on the body.  You get the rash on both arms or legs etc.  It makes little blisters on the skin.  They are caused by IgA antibodies in the skin.  There i a test for DH where they take a small skin sample (biopsy) from the skin next to a blister and check it for IgA antibodies.   If they find DH, then you have celiac disease.  The 2 conditions are never separate.  there is a section of this forum dedicated to dermatitis herpetiformis with lots more information. The usual diagnostic process is to do a celiac antibodies blood test first, and then an endoscopy to test for damage to the gut lining.  But with DH, it is better to get the skin biopsy done instead of the endoscopy. Celiac disease is passed on in genes, so your children should be tested also if you are diagnosed.
    • Research Celiac Ataxia for potential diagnosis. Look at Milk and dairy for potential head and sinus related issues.  I stopped dairy and I can breathe now! Saturated fat may also be a problem, but it's mostly dairy!
    • It is best not to try and do this on your own. Talk to your allergist. Not all will deal with food intolerances but if yours doesn't find one who will.  Mine had me fill out a very detailed diet questionaire and tested for true allergies before he gave me my starting point. I will admit I wasn't real happy with my starting point since none of my usual foods were on it. He said that I was most likely to react to foods I ate the most so most of the 5 I either rarely ate or didn't really like. The prescribed starting point he formulated was designed to make sure I had adaquate nutrition and enough calories.   It took about 2 weeks before a lot of my tummy issues resolved and I was then able to start adding foods in one at a time for a week before moving on to the next.  He said food intolerance reactions can take up to a week to show up so I had to be sure it was a full week between food additions. I did have to call three offices before I found a doctor who could do the formulation of the diet but this guy truely saved my life. Out of all the doctors I had seen, including specialists in big hospitals, he was the one responsible for finally realizing I was celiac. He of course referred me back to my clueless GI doctor who confirmed the diagnosis by almost killing me with a gluten challenge. I should note that some of my intolerance (not gluten of course) did resolve after I had healed. Even dairy which I hadn't been able to have for years! I hope you can get some answers and are able to heal soon.
    • I'm 43 years old. I'm married and have two teen daughters. After all these years it was one of my daughters who tonight said to me: "you probably have Celiac disease" after hearing my wife and I talking about all the pimples I always get on my arms. I never heard of the disease but I have heard about a lot of people having gluten allergies and didn't know they were the same thing. So I started looking it up on the internet. Turns out I have had all the symptoms all my life and no one has ever said anything about it possibly being Celiac disease. When I was a kid my doctor gave me prescriptions to antibacterial soaps to use for the arm pimples. Hibitane I think was one of them. And I've always had swollen looking ankles as long as I can remember. All my life people have noticed it. As a kid and teen I played lot's of sports and have broken my ankles and sprained them so my mom and I brushed it off at that and so did my family doctor when I was young.  But I always thought it was weird that the swelling continued all these years.  I have had a bloated feeling stomach all my life too and chronic diarrhea. My stomach is always hard and swollen feeling. Not ever knowing what that stuff was related too so I have never mentioned the bloat or diarrhea to a doctor. Just kind of embarrassing I guess. As my wife and I were reading about Celiac Disease on the internet together tonight she pointed out to me that that's probably why these symptoms almost all went away when I did a very low carb diet for about a year straight to lose weight a couple years ago. I had solid bowel movements, no bloat, ankle swelling went down but I thought the improvements were from weight loss and just eating healthier . But perhaps in reality it probably had a lot more to do with not eating all the wheat products/gluten products. So tomorrow I will be seeing my doctor to talk to him about it and to ask for the blood tests. I have read that I should continue eating gluten though until my testing is done. So that is crappy but I guess it's better to know for sure. Something else I think I should point out too is that I get headaches quite a bit after having big meals. Now I am thinking that may have something to do with the gluten too. I have read that some people with Celiac also get headaches with the other symptoms. It's great to see there is a forum like this to help people out with these issues. If I test positive for Celiac I will for sure be following this forum closely for advice and diet/nutrition help.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,658
    • Most Online
      3,093

    Newest Member
    Mandi E
    Joined