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Celiac Disease & Gluten-Free Diet Blogs

Gotta Have More Surgery... :(

So I went to the doctors/surgeon's office today...and I have to have surgery to repair an insitional hernia I got when I had the last surgery to remove part of my bowel. which came about in the first place when they discovered I had celiac disease... the irony of it all... Now keep in mind, I have been sick and undiagnosed for 20 years, so imagine...if they caught it earlier all this crap now would have been avoided....OMG I'm furious!!!!!   And since my last surgery I haven't really hea
mis-chiff

mis-chiff

0

March 27, 2007 Feeling Good!

Even though the weather is changing with a rain storm coming in, I'm feeling really good! My joints don't hurt at all and I feel energetic, and this is a day after my mtx!! I would like to get all the pasta out of the house but hubby likes it. It's not really fair to deny him just because I can't have it. I feel like I'm losing a little weight but my scale is unavailable at the moment. The one thing i hate though is i have prednisone waist. I always had a smaller waist but it's really u
Ann1231

Ann1231

2

Hello Monday My Old Friend I Come With You To Talk Again

It was mothers birthday Saturday, which as ever presented the dilemma of omg! What am I going to eat and how not to cause too much fuss and too many arguments with the folks. We had the rest of the brood over in the evening and after some discussion it was agreed we
snowcoveredheart

snowcoveredheart

0

March 25, 2007 The Full Monty Is Over :(

I am soooo tired. It's been 2 solid months of driving 160 miles every day. The play was great but everyone involved is exhausted. Now we have to get thru Much Ado About Nothing and THEN we rest!   Tomorrow I don't have to go anywhere!!!   The last few days I've had some problems with breathing. I felt like I do when I am around peanut dust or other peanut products. I then realized my wheat problem is the cause. I'd had two bites of pizza at a cast part Friday night and I could have swo
Ann1231

Ann1231

0

It's Been 4 Days And I Haven't Cheated!

I am very pleased with myself, it's been 4 days and I haven't cheated! Don't get me wrong, I haven't learned to cook or anything simple like that! But I've been working and I never really had the chance to cheat, BUT I didn't cheat cause I managed to eat only 1 meal a day! It was always dinner and even though it was pretty much the same thing twice chicken and potatoes and veggies for 2 dinners and fish potatoes and veggies for the other 2.... But at least it's a start on not cheatin
mis-chiff

mis-chiff

0

Undiagnosed,help

I am 39 years old and until about 5 years ago enjoyed perfect health. In the last 5 years I have been diagnosed with gastro issues galore, chronic psoriasis (never goes away although treated with steroids and creams and antibiotics) and worst of all, hearing loss. The hearing loss is profound in both ears, and I am scheduled for cochlear implantation next month. Although these are only a few of my issues, not including the fatigue all my doctors agree it suggests auto immune issues. My husba
dilsmom

dilsmom

4

...brand New...

...so i am new here and still trying to figure out the site....mostly what i am hoping for by joining is finding some one to relate to....i guess i'll start with how i ended up here... ...if i think about it i can remember being sick always....as a kid i always had a headache...i also had chronic sinusitis and what i thought of as skin rashes....my family did not have alot of money growing up so the doctors i saw were not top notch....example: when i was 12 i remember being sick and the doctor
Guest

Guest

1

A Never Ending Saga!

Everyday it's the same battle - "what do I or don't I" eat? I don't want to sound like a wimp or anything but this sucks! 3 years and I can't figure it out! I have alot more information available to me now but it's got to be simple I can't say that enough! I don't want to make 3 course meals with fancy schmancey food and sauces. I want a fast great tasting meal at least 4 times a week, rest of the time I don't care - there is always fish - or eggs...but summer is coming and time for the
mis-chiff

mis-chiff

0

Let Us Watch Well Our Beginnings, And Results Will Manage Themselves.

Salutations,   By way of introduction I am a late (ever later) 20 something, gothique - like, over opinionated, liberal voting, chthonic, libertine female from the west middle lands of Englandshire.   In my old age, I am beginning to fit far too well the terribly Victorian image of the domesticated aging spinster that I have mocked will be my future.   I was given a Celiac diagnosis about 6 years ago, but promptly ignored it. I was young, I was at university, I was having lots of other
snowcoveredheart

snowcoveredheart

0

Too Much Info!

After re-reading my posts I can see I definetly need help...so I went on a little search - that turned into a big search and confused the hell out of me! I thought I knew nothing before - I am now convinced of it! There are words I have never even heard of, words I cannot pronounce..... :eek: I had a guest come into the motel where I work and she told me she has a daughter that is Celiac. She had some great cookie recipes - but again - I can't cook! So she made them for me and left them at th
mis-chiff

mis-chiff

10

Wanna Have Your Baby

A man shouted, "Andy, I wanna have your baby!" at the Indian Wells quarterfinal where I was watching (with my tongue hanging out, lustingly) Andy Roddick beat Ljubicic in two sets with two tiebreaks in 80 degree evening weather with a nice breeze. Loved. It. Afterwards, in the perfect finale to this starry evening, I retracted the top in the Benz (MB is the tournament sponsor that gave me the ticket discount) and smelled my FAVORITE scent ever on the way home-- ORANGE BLOSSOMS!! A precursor t
brendygirl

brendygirl

0

I Can't Stop!

I would rather starve for 2 days than eat some of the stuff I can cook I am sooooo sick of rice - I haven't made it right yet! I can go for a couple of days when my willpower is in gear, I won't cheat, I'll just wait till I'm finally hungry enough and I'll make fish and veggies and of course RICE!   But when I have brain fog and I just don't care, I'll break down and eat a burger or something...I figure I'll pay for it later - I do ... but at the time it seems worth it! and then of cou
mis-chiff

mis-chiff

0

Am I The Only One?

How come everyone seems to know so much about this disease? Is it cause you have the handbooks? Go to the meetings? Know how to cook? Are the handbooks that big of a deal? Sheesh for the life of me I can't figure this stuff out...it seems unless it's in simple step by step instructions - I can't seem to comprehend it I don't mean things like you can use this product or that product - what I need is ready to prepare meals - kinda like the way I have them on my website (www.theceliac.com) under
mis-chiff

mis-chiff

0

The Proof Is In The Stuffing

This is harder than I thought it would be....and I don't mean going Gluten Free, either! I just spent the last 40 minutes trying to figure out the settings for this website! Sad, but true.   Anyway, I've always got something to say. As I sit here, with my gut on fire 'cause I used some idiot-premade-sauce for my rice crust pizza. It didn't say gluten free, but I didn't see any warning ingredients, so I went for it. {{sigh}} Another lesson learned, I suppose.   I have known I couldn't
Guest

Guest

0

It's Amazing!

Isin't it just amazing how people around you have absolutely no clue as to what it's like to be gluten-free! Everybody wants to go out and get "pizza" or "burgers", even after repeatedly telling them about being celiac. The worst....a family member....living with a person who watched what you went through for 20 years, and now on the road to recovery - a total 360 life change - and they still ask "WHAT DO YOU WANT ON YOUR PIZZA"? OMG - come on! This is hard enough...help me out!
mis-chiff

mis-chiff

0

Republican Dinners

My husband and I went to our first ever Republican Party dinner. It's not really my "thang", but we needed to go because my husband is considering running for Congress in 2008. We needed to do a "meet and greet".   Anyway, we had specified ahead of time that I needed a gluten-free meal. The person my husband talked to on the phone told us that one gluten-free meal had already been requested for someone else, so it would be no problem for me to have one, too. So when we found our table (the
Mosaics

Mosaics

0

Eggcellent! Egg Drop

Some of us have never gotten around to getting that book about gluten free restaurant eating, but I'm aware that Pad Thai is naturally Gluten-Free(people on this board rave about it). So, I finally tried it yesterday at this CHEAP restaurant (all lunch plates $4). It was spicy and delectable! The whole dining experience was nice--ordering without having to specify anything (except, I did make clear that I'm allergic to soy sauce). Funny, I noticed everyone oogling MY plate, for a change! The
brendygirl

brendygirl

0

Go-dive-in-a *#(@&(*$@#

After being gone all weekend for work, a romantic interest of mine came over, showered me with affection, told me how much he missed me, sang love songs to me, and gave me a gift bag with a little shirt that recommends misbehavior, and two giant Godiva chocolate-covered strawberries, one dark and one milk chocolate since he forgot which kind I could have. Well, how do I tell him that if it's Godiva, I can't have it at all??!!! Eventually I alluded to that and told him to eat them, but he refuse
brendygirl

brendygirl

0

Should've Trusted My Gut

Enjoyed a cool techno teacher conference in Palm Springs this weekend. Yes, I was hungry and annoyed after eating a bunless burger and NONE of the divinely greasy and thick onion rings my compadres ordered at lunch. (red meat still isn't a treat for me, it's merely tolerable.) At night I Dined on the lovely, warm patio in a Tex-Mex restaurant. Palm Springs has a large gay community, so it was noticeable that all of the waiters we had all weekend seemed very effeminate (sp?). Well, when I asked
brendygirl

brendygirl

0

A Long Time....

I have a website Open Original Shared Link that tells my story in a nutshell...but I want to start at the beginning and end up where I am today! I am still having issues BIG issues! I have had surgery (I'll get into that) as a result of the celiac disease, and I'm still not done! Talk about poor health! You live your life thinking things will get better then BAM poop happens! I want so much to have a normal life again...I say normal cause I know I've changed and I don't like who I am now!
mis-chiff

mis-chiff

0

More To Come!

I just found this forum again after almost a year of lost hard drives and computer crashes and anything else that could go wrong! I plan on getting active again and getting the information I need to live my life properly, without resorting to eating foods I'm not supposed to! Over the next month I plan on updating my web site - Open Original Shared Link - to what I have learned to date, however, I will keep it as simple as possible because when I was diagnosed I couldn't find anything I could
mis-chiff

mis-chiff

0

First Thoughts

Well, I am new to all this gluten free stuff. It is a little overwhelming. No, a lot overwhelming. I got my results from enterolab back on 2/27/07. I have been reading up on this and trying to decide what foods will be safe to eat. Was feeling pretty confident until I learned I am also casein sensitive. That throws a wrench into things. I LOVE cheese. Milk not so much or butter. But I know there is hidden milk in a lot of products. I am going "home" in a week, and can't ask my sister t
SUZ42

SUZ42

1

Help!

I was just diagnosed with Celiacs last month. At times I think that I am doing pretty well but other times I feel at a lost with what is OK to eat and what isn't. I was very sick and lost alot of weight I am 5'10 and got down to 80 pounds, I have gained a big 10 pounds woo hoo. If anyone reads this and has any advice for me, I would love to hear from you
jktenner

jktenner

1

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  • Blog Comments

    • Wheatwacked
      GLUTEN EASE TABLETS DONT WORK

       

      "Vitamin D, as an immune modulator, is known to regulate immune response and maybe implicated in disease pathogenesis or susceptibility of celiac disease. Components of the immune system, such as B-lymphocytes, T-lymphocytes, and dendritic cells, are influenced by the regulatory effects of Vitamin D ... Increasing evidence also suggests that Vitamin D deficiency increases the risk and worsens the outcome of extraskeletal diseases such as cancer, irritable bowel syndrome, and inflammatory bowel disease ... Previous studies have shown that vitamin D levels in the celiac disease group are negatively correlated with symptom severity, which means the lower the vitamin D levels, the more severe the symptoms of celiac disease patients. Vitamin D deficiency is associated with reduced expression of the Vitamin D receptor and epithelial barrier proteins E-cadherin and claudin-2. "  https://bmcpediatr.biomedcentral.com/articles/10.1186/s12887-024-04688-0#:~:text=However%2C celiac disease occurs only in,newly diagnosed celiac disease [19].

    • Scott Adams
      GLUTEN EASE TABLETS DONT WORK

      This company is a Celiac.com sponsor...read the studies here:
      https://www.gliadinx.com/publications

      and decide for yourself.

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