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Post Diagnosis, Recovery & Treatment of Celiac Disease

Discussions related to the recovery process after you've been diagnosed.

8,819 topics in this forum

  1. GFKerry
    cyclinglady

    When is the best time to get an Upper Endoscopy after a postive blood test?

    By GFKerry, Last action:
    • 6 replies
    • 1.4k views
    • cyclinglady
    • cyclinglady
  2. Rhobhan
    Sara Ann Denson

    Any Experience Trying to be gluten-free while Hospitalized?

    By Rhobhan, Last action:
    • 8 replies
    • 2.4k views
    • Sara Ann Denson
    • Sara Ann Denson
  3. cynthia.m
    Fenrir

    Eating Gluten free

    By cynthia.m, Last action:
    • 1 reply
    • 1.1k views
    • Fenrir
    • Fenrir
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  4. VickyMarshall
    Fenrir

    Can symptoms keep occurring after gluten has been cut out?

    By VickyMarshall, Last action:
    • 2 replies
    • 1.4k views
    • Fenrir
    • Fenrir
  5. Phosis
    NNowak

    Officially diagnosed - recovery struggles after 2 and a half months

    By Phosis, Last action:
    • 8 replies
    • 2.7k views
    • NNowak
    • NNowak
  6. TimmyATC
    GFinDC

    Possibility of Celiac Disease Misdiagnosis?

    By TimmyATC, Last action:
    • 3 replies
    • 1.1k views
    • GFinDC
    • GFinDC
  7. rt-116
    cyclinglady

    Newly diagnosed, sharing my experience for others

    By rt-116, Last action:
    • 23 replies
    • 6.6k views
    • cyclinglady
    • cyclinglady
  8. freshrainbows77
    MtnBear

    How long did it take you to feel better?

    By freshrainbows77, Last action:
    • 7 replies
    • 2.9k views
    • MtnBear
    • MtnBear
  9. C Anderson
    cyclinglady

    New to this Diagnosis

    By C Anderson, Last action:
    • 10 replies
    • 2.4k views
    • cyclinglady
    • cyclinglady
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  11. Aimee G
    Fenrir

    Gluten withdrawal, need help

    By Aimee G, Last action:
    • 1 reply
    • 908 views
    • Fenrir
    • Fenrir
  12. BarryC
    Felix Nuts Tomcat

    Will the distended abdomen ever go away?

    By BarryC, Last action:
    • 3 replies
    • 3.7k views
    • Felix Nuts Tomcat
    • Felix Nuts Tomcat
  13. Bbbhfd
    Fenrir

    Becoming extremely gluten sensitive after going gluten free? 1 2

    By Bbbhfd, Last action:
    • 29 replies
    • 12k views
    • Fenrir
    • Fenrir
  14. Aimee G
    Felix Nuts Tomcat

    Newly diagnosed and feel awful

    By Aimee G, Last action:
    • 4 replies
    • 1.7k views
    • Felix Nuts Tomcat
    • Felix Nuts Tomcat
  15. Drake71
    Felix Nuts Tomcat

    8 Months Post Diagnosis Still Having Problems

    By Drake71, Last action:
    • 18 replies
    • 7.3k views
    • Felix Nuts Tomcat
    • Felix Nuts Tomcat
  16. Rhobhan
    Felix Nuts Tomcat

    Body Odor after Being Glutened

    By Rhobhan, Last action:
    • 2 replies
    • 929 views
    • Felix Nuts Tomcat
    • Felix Nuts Tomcat
  17. Tammy42
    Felix Nuts Tomcat

    Post diagnosis lymph nodes

    By Tammy42, Last action:
    • 3 replies
    • 1.7k views
    • Felix Nuts Tomcat
    • Felix Nuts Tomcat
  18. Irane
    Fenrir

    Ttg levels not going down

    By Irane, Last action:
    • 9 replies
    • 6.7k views
    • Fenrir
    • Fenrir
  19. cristiana
    icelandgirl

    Nausea linked to perimenopause

    By cristiana, Last action:
    • 5 replies
    • 2.5k views
    • icelandgirl
    • icelandgirl
  20. rt-116

    Recently diagnosed - Question about vitamins

    By rt-116, Last action:
    • 4 replies
    • 1.8k views
    • rt-116
    • rt-116
  21. Rhobhan
    Fenrir

    How to find a gastroenterologist who specializes in celiac disease?

    By Rhobhan, Last action:
    • 2 replies
    • 855 views
    • Fenrir
    • Fenrir
  22. BuddhaBar
    NNowak

    Gym on Monday! Anyone else?

    By BuddhaBar, Last action:
    • 7 replies
    • 2.5k views
    • NNowak
    • NNowak
  23. CharlesBronson
    BuddhaBar

    Question on Histamine and the Stomach

    By CharlesBronson, Last action:
    • 15 replies
    • 6.1k views
    • BuddhaBar
    • BuddhaBar
  24. Phosis
    BuddhaBar

    My so-far recovery - FOR PEOPLE WHO FEEL HOPELESS

    By Phosis, Last action:
    • 4 replies
    • 3.7k views
    • BuddhaBar
    • BuddhaBar
  25. Rhobhan
    Fenrir

    Anyone Ever Referred to Mayo, Cleveland Clinic etc.?

    By Rhobhan, Last action:
    • 4 replies
    • 1.8k views
    • Fenrir
    • Fenrir
  26. freshrainbows77
    Scott Adams

    Frequent Urination on gluten free diet?

    By freshrainbows77, Last action:
    • 1 reply
    • 1.2k views
    • Scott Adams
    • Scott Adams
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  • Posts

    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
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