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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,285 topics in this forum

  1. AnthonyA333
    Scott Adams
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  14. AnthonyA333
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  24. Guest 648
    Scott Adams

    EGD Biopsy = Train Wreck!

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    1. - Aretaeus Cappadocia replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
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    2. - cristiana replied to cristiana's topic in Related Issues & Disorders
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      Healthy diet leading to terrible bloating

    3. - Scott Adams replied to cristiana's topic in Related Issues & Disorders
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      Healthy diet leading to terrible bloating

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      Healthy diet leading to terrible bloating

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    • Aretaeus Cappadocia
      "I'm wondering if she just hadn't eaten enough to test positive?" --> Because your daughter is "IGA deficient", the (gliadin IGA) test she was given could not work properly and the result of that particular test was meaningless. The amount of gluten she did/didn't eat would not matter for that part, whether or not she actually has celiac disease. If instead she had had normal levels of IGA in her blood, then the question of how much gluten she was eating would become relevant.
    • cristiana
      That sounds very hernia inducing work! You confirm what I have suspected, I get pain just to the right of the umbilical hernia, I am sure there is a connection.  If do see my gastroenterologist I'll mention it again.   I can't help thinking I've also got an issue in my groin, perhaps a hernia threatening, I guess an ultrasound would be needed to confirm it.
    • Scott Adams
      For the Inguinal hernia I could definitely feel it, and it came with an obvious bulge that appeared soon after doing a project where I was drilling holes on concrete using a very old school regular hand drill with mason bit, instead of a hammer drill with mason bit--this left me squatting over the drill putting my weight on it for several hours (the hammer drill would not have required this level of stress, nor the time it took). Bad idea--learn from my mistake in being "lazy" and not renting (or buying) the proper tool for the job. My umbilical hernia was around for many years, and I didn't feel that one at all, so never worried about it. My doctor basically recommended doing both in one surgery, which seemed like wise move.  As far as the possible IBS connection to either, it was definitely apparent after getting the Inguinal hernia, which is why I asked my doctor about that, but after getting both fixed I realize that the umbilical hernia likely also had mild IBS effects over the years.
    • cristiana
      @Scott Adams  Strange question but can you actually feel your hernia?  I have so many abdominal lumps and bumps of longstanding (my GP said it's fat!) that I sometimes wonder if an inguinal hernia could be missed.  I am quite sure some of my pain is from my umbilical hernia but that first came about courtesy of my second pregnancy.
    • Scott Adams
      Thanks for sharing this! I've always wanted to go to Ireland, and we did include Ireland in a recent top travel destinations article, so it's nice to know that we got that right:  
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