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Recent Activity
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- trents replied to cristiana's topic in Related Issues & Disorders1Healthy diet leading to terrible bloating
Making significant changes in our diets, even when it is in, what would we are told by the experts, a healthy, can be upsetting to our system until it adjusts. To make an analogy, it's like beginning an exercise regiment when we don't ease into it gradually. That's one thing that occurs to me as a response. And I think as we get up in years this becomes more... -
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- cristiana posted a topic in Related Issues & Disorders1Healthy diet leading to terrible bloating
Hello fellow coeliacs and a Happy New Year I'd appreciate some advice. In December I gave up junk food and ate a new healthy diet, which had a lot of gluten-free oats, nuts, oranges in it, and a quite a lot of black coffee, rather than my usual lattes etc. After a week or so I felt awful bubbling and bloating in the area which I would say is the... -
- TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Prana Organics no longer GFCO-certified
I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what... -
- cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease2
Newly diagnosed mam to coeliac 11 year old
Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK. Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs. If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend...
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Making significant changes in our diets, even when it is in, what would we are told by the experts, a healthy, can be upsetting to our system until it adjusts. To make an analogy, it's like beginning an exercise regiment when we don't ease into it gradually. That's one thing that occurs to me as a response. And I think as we get up in years this becomes more and more true. We become less adaptable to change. The other thing that occurs to me is that you may have added in things, that though they are nutritionally dense, may be things that you as an individual may have some degree of intolerance to. You mention nuts and citrus. Those are packed with nutrition but also high in histamines. And citrus is not only high in histamines but is also a histamine liberator. I know from personal experience there are some things I can eat occasionally, in limited amounts and I'm okay. But if I eat them too often or consume large servings they will give me an upset tummy or a migraine attack. And you might also look at the possibility that you have developed diverticular disease. Nuts and seeds are a no no for that I understand.
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Hello fellow coeliacs and a Happy New Year I'd appreciate some advice. In December I gave up junk food and ate a new healthy diet, which had a lot of gluten-free oats, nuts, oranges in it, and a quite a lot of black coffee, rather than my usual lattes etc. After a week or so I felt awful bubbling and bloating in the area which I would say is the ascending and transverse colon. Earlier in the day it might start with stabbing pain, maybe just two or three 'stabs', or a bit of an ache in my pelvis area, and then by the evening replaced with this awful bloated feeling. I can still fit into all my clothes, there isn't any visible bloating but a feeling of bloating builds from early afternoon onwards. The pain and bloating has always gone by the morning. BMs normal. I went back to my normal diet over Christmas, for a couple of days things improved, but the bubbling and bloating then came back with a vengeance. I'm having an ultrasound in a couple of weeks to check my pelvic area and if that is clear I suspect may have to have a colonoscopy, but is there anything anyone can recommend to calm this bloating down. I have been given an additional diagnosis of IBS in the past but it has never been this severe. I have to confess that I might have had some gluten over Christmas, I ate a lot of Belgium chocolates which were meant to be gluten free but the small print reveals that they were made in a shared facility, so I have probably brought this all on myself!
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By TheDHhurts · Posted
I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware! -
Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK. Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs. If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious. I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof. My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed. Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana
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Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods". Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant. Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
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